PwME 4 bioMEdical research (@valebodi) 's Twitter Profile
PwME 4 bioMEdical research

@valebodi

Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer

ID: 2458652654

linkhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8910780/pdf/fmb-2022-0031.pdf calendar_today22-04-2014 20:40:23

58,58K Tweet

4,4K Followers

2,2K Following

Wellcome (@wellcometrust) 's Twitter Profile Photo

Have you ever been disbelieved by a doctor? Or had your symptoms dismissed because of who you are? Then you might have encountered epistemic injustice. Professor Havi Carel's Discovery Award project is investigating this form of injustice in healthcare.

Wellcome (@wellcometrust) 's Twitter Profile Photo

Epistemic injustice can have dire consequences for clinical care. By bringing together philosophy, legal scholarship, medical history and other disciplines, this project can build a fuller picture of the problem and create tools to help. Learn more ⤵️ wellcome.org/news/epic-stud…

Long Covid Support 🌍 (@long_covid) 's Twitter Profile Photo

🚨Dr Barry Jones (CATA) at #CovidInquiry: “It was defined as aerosol transmitted from the very moment it came in to the country, it was an airborne highly consequential infectious disease. As indeed SARS1 & MERS were & still are.” #LongCovid #WeNeedAnswers

Oonagh Cousins (@oonagh_cousins) 's Twitter Profile Photo

✍️Due to the influx of support from healthcare professionals after the #ThereForME open letter was published, we're compiling a second list of signatories! Follow the link to add your signature here: forms.gle/f87kuUfT4qWxbQ… Please note we are looking for *UK-based HCPs*

Rowan Walrath 😷 (@rowanwalrath) 's Twitter Profile Photo

I also have to give flowers to betsy ladyzhets 📊 for covering the heck out of what RECOVER has failed to deliver, and for spotlighting long COVID and other infection-associated chronic conditions as a public health crisis at The Sick Times. Foundational reporting.

Andrew Ewing (@andrewewing11) 's Twitter Profile Photo

1/n "Welcome to the new normal, an age where many things that we used to deem unusual or unacceptable have become just what we live with." "Truth tellers are the Achilles heel of collective denial because they call attention to what’s being ignored." scientificamerican.com/article/weve-h…

PwME 4 bioMEdical research (@valebodi) 's Twitter Profile Photo

EBNA-1 antibody and autoimmune rheumatic diseases: A Mendelian Randomization Study Our findings provide compelling evidence that EBNA-1 antibody levels play a role in developing ARDs. These findings enhance our understanding of ARD pathogenesis #EBV #ARDs cell.com/heliyon/fullte…

tern (@1goodtern) 's Twitter Profile Photo

"COVID is a good case study for illustrating the collective-denial playbook that underpins our new normal reality." You may think it's bad already, but brace yourselves because the collective denial is going to go up several levels. scientificamerican.com/article/weve-h…

elle carnitine 🍉 (@elle_carnitine) 's Twitter Profile Photo

Many have tried to theorise doctors not listening to their patients as a from of 'epistemic injustice'. In my new blog post, I explain what that means, and why I'm not convinced epistemologyoftheclinic.blogspot.com/2024/09/the-li…

Many have tried to theorise doctors not listening to their patients as a from of 'epistemic injustice'. In my new blog post, I explain what that means, and why I'm not convinced

epistemologyoftheclinic.blogspot.com/2024/09/the-li…
Raoul Schendel (@raoul__lucas) 's Twitter Profile Photo

A new phase II RCT for #PostCOVID / #LongCOVID with abrocitinib (a JAK inhibitor) at the BIDMC in Boston. The trial with around 90 planned participants is scheduled to start at the end of 2024. clinicaltrials.gov/study/NCT06597…

Julia Marie (@julia_doubleday) 's Twitter Profile Photo

If this administration is so certain the public would freely choose to ignore the millions suffering from Long COVID, the risks of infection, the high rates of transmission in our communities… why do they work so hard to hide all of the above? thegauntlet.news/p/people-cant-…

elle carnitine 🍉 (@elle_carnitine) 's Twitter Profile Photo

It’s become very popular to analyse the struggle between sick people and their doctors as a form of “epistemic injustice”: the testimony of patients is not given sufficient weight and credibility by doctors. Kyle did a beautiful illustration of my critique

PwME 4 bioMEdical research (@valebodi) 's Twitter Profile Photo

Untargeted Metabolomics and Quantitative Analysis of Tryptophan Metabolites in Myalgic Encephalomyelitis Patients and Healthy Volunteers: A Comparative Study Using High-Resolution Mass Spectrometry | ACS Chemical Neuroscience Bergquist et al. #MECFS pubs.acs.org/doi/10.1021/ac…

Samuel Beckett (@samuelbbeckett) 's Twitter Profile Photo

Samuel Beckett’s entire personal library has been digitised. Take a glimpse at the collection | rhystranter.com/2016/06/07/sam…

Samuel Beckett’s entire personal library has been digitised. Take a glimpse at the collection | rhystranter.com/2016/06/07/sam…