Not sure how to support your partner or spouse as they live with VEDS? Talk to others who are trying to figure it out at tonight's group: bit.ly/3HW7nnc #VEDS

Wishing a joyous Passover to those who celebrate.

'I was born with VEDS. I will always have VEDS. I am learning to live with VEDS. Is it scary? Yes. However, is life in general scary? Yes, sometimes more so.' Read how Dan is learning to live with VEDS: bit.ly/3Yu7gp4 #VEDS #VEDS Awareness

Wet weather didn't stop our amazing community members from coming out for a great Walk for Victory in Atlanta this weekend. Thanks to everyone who made the day so special! Find a Walk for Victory near you: bit.ly/3mKPlxm #walkforvictory #MyWalkSavesLives #VEDS

Find out how VEDS is diagnosed: bit.ly/3K9y3Da #VEDS #RareDisease

Get the resources you need to help your patient manage their VEDS diagnosis: bit.ly/3mcmUbm #VEDS #MedTwitter

Friday May 17th is #REDS4VEDS Day. Show your support for our friends at Annabelles Challenge Vascular EDS Charity and people everywhere living with Vascular Ehlers-Danlos syndrome by getting your red 'ready to wear!' Need some red? We've got you covered. bit.ly/3rSXy5n #VEDS

Have you prepared for a VEDS emergency? bit.ly/3EelSSb #VEDS #RareDisease

'I have also learned I am a fighter.' Find out how Liz is living positively after a VEDS diagnosis: bit.ly/3KUx62g #VEDS #VEDS Awareness

This #NMHM24 we join with Minority Health in encouraging everyone to Be the #SourceForBetterHealth for racial and ethnic minority populations. Read how addressing social determinants of health can help eliminate health disparities: bit.ly/4b2ZVUd

Ben Lloyd Kemena is leading Team VEDS at the Denver Walk for Victory! Who else is excited to support him by joining his team or making a donation? bit.ly/3xJ8rtj #VEDS #MyWalkSavesLives

Are you studying VEDS? Learn how we can inform our community about your research studies: bit.ly/3Ej3OGM #VEDS #MedTwitter

'Living with VEDS in the here and now is vital because that’s all we really have. Everything else, past and future, is memory or speculation.' Read how this family went from tragedy to getting comfort from our community: bit.ly/4alxyAW #VEDS #VEDS Awareness

How were you diagnosed with VEDS? How did you learn to live with that diagnosis? Share your story and help us raise VEDS awareness: bit.ly/3k7qrae #VEDS #VEDS Awareness

Have you submitted your application for the #RAREis Scholarship? The deadline is April 22: bit.ly/3Jt2OCK #VEDS #RareDisease

Wondering what you need to know about living with VEDS and pregnancy? Read Meg's story: bit.ly/3SEUItO #VEDS #VEDS Awareness

Camp Victory helps young people like Rowan find their biggest, brightest smiles! Sign up for Camp Victory: bit.ly/3td1bjZ #VEDS

Prepare your Emergency Department for a VEDS emergency: bit.ly/3E3pDJY #VEDS #MedTwitter #EmergencyMedicine

For Black mothers with genetic aortic & vascular conditions, health disparities make patient-centered collaborative care essential. Black Maternal Health Week is 4/11-17. We stand with Association of Black Cardiologists in raising awareness aimed at safeguarding maternal health. bit.ly/442rrig

'I’ve been through so much in the past eight years, and I’m still here.' Read how Kim's diagnosis has saved future generations of her family: bit.ly/3IRlknX #VEDS #VEDS Awareness