If you or your carer have the capacity to sue for medical negligence of #ME, contact Tim Annett at Irwin Mitchell in Shefffield. No win no fee. [email protected]. Please share far and wide.

Maeve's inquest was a whitewash and the coroner betrayed everyone living with #MEcfs #MaeveInquest Deborah Archer has muddied the already murky waters of just how the NHS supports people living with ME even further says Steve Topple 👇 thecanary.co/opinion/2024/0…

This is the first article of a three part series I will be doing this week discussing activism, the accessibility for #chronicallyill and #disabled people within it, abusive behaviour and the rule book you need to know...👇

It's Gastroparesis Awareness Month - yet we need to talk about EDS and #MEcfs. August is #GastroparesisAwarenessMonth #GPImpact - however two conditions often overlooked in the discourse are the #EhlersDanlos syndromes and myalgic encephalomyelitis 👇 thecanary.co/uk/news/2024/0…

Grieving for loss of life: the untold #MEcfs - from silent, darkened rooms. As part of the Canary and @TheChronicCollaboration Amplify media training programme, Lisa_Cat wrote this moving piece on living with ME & the side the media isn't showing. Please read: thecanary.co/opinion/2024/0…

Out tomorrow #MaeveInquest #MEcfs

INTERVIEW: Our co-founder Steve Topple spoke with Dr William Weir about the inquest into the death of Maeve Boothby O'Neill: his thoughts on it, her case, the similarities with #SaveCarlasLife, & what the future holds for #MEcfs. Please do watch & comment: youtube.com/watch?v=JME4ir…

This is a brilliant interview with a wonderful doctor who, @ 75yrs old, is trying (almost single-handedly) to save the lives of severe ME patients in the UK. What are ME Association and Action for M.E. doing to amplify Dr Weir’s voice? #myalgicencephalomyelitis #thereforME

Steve Topple at @TheChronicCollaboration speaks to leading #ME #MEcfs expert Dr William Weir about #MaeveInquest NHS England East Sussex Healthcare NHS Trust Chelsea and Westminster Hospital #MedTwitter this Dr is who you must all listen to if you're going to save the lives of patients with #VerySevereME youtu.be/JME4iroEIF8?si… via

Andrew Gwynne MP the delivery plan for #MEcfs would benefit greatly from the input of Dr Weir. He has been helping #SevereME patients for decades, has great knowledge, yet is often ignored. Time for this to change. #MaeveInquest #SaveCarlasLife #SaveKaren #MyalgicEncephalomyelitis

Action for M.E. ME Association as the 2 biggest #MEcfs charities in the UK, it would be great to see you lift Dr Weir's voice. His depth of knowledge, experience & compassion are not to be missed, yet too often ignored. He's a true champion for #pwme. #MaeveInquest #SaveCarlasLife

This happens on your watch, Wes Streeting MP! Are you just going to look away and let this young lady die of malpractice and torture? She is called Carla. Carla Naoum. She’s 23. #SaveCarlasLife Stephen Kinnock Karin Smyth Andrew Gwynne MP Disability Rights UK Amnesty UK Commissioner for Human Rights Human Rights Watch

An update from Pierre #SaveCarlasLife - the same nurse he was discussing yesterday effectively doubled down on her behaviour last night and refused to follow NICE guidelines on very severe #MEcfs 👇

An update from Pierre on #SaveCarlasLife - it seems that nothing is improving regarding the conduct of the nurse he told you about previously #MEcfs