Lara Stanić(@StanicMd) 's Twitter Profileg
Lara Stanić

@StanicMd

M.D., ENT specialist, IBCFPRS,
LongCovid/ME/CFS patient.
Hoping to get rid of the last abbreviation

ID:1657065361475358720

calendar_today12-05-2023 16:50:05

1,5K Tweets

663 Followers

352 Following

Christoph Ströck(@cstroeckw) 's Twitter Profile Photo

'It's still not discussed enough how the majority of practicing physicians worldwide, particularly in sub-specialties frequently interacting with patients, have a considerable conflict of interest, leading to an inherent bias against updating their knowledge base.'

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Neurologist Mom(@NeurologistMom) 's Twitter Profile Photo

“Why can't we use encephalomyelitis? That means inflammation of the brain and spinal cord. When will we be able to use the name ME instead of ME/CFS and get rid of CFS? That's my main comment.' Dr. Maureen Hanson, from today’s NIH meeting kids

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Dr. Sean Mullen(@drseanmullen) 's Twitter Profile Photo

I highly advise against doing this. I’m an exercise scientist. This is WHY I am here.

I’ve learned this from Long Covid patients, clinicians and exercise physiologists.

In rare circumstances, some have bounced back… and some athletes have pushed through. But the overwhelming…

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Lara Stanić(@StanicMd) 's Twitter Profile Photo

Triple anticoagulant therapy, day 50. For a week, I've seen marked improvement in ortostatic intolerance but none in exertion intolerance. I don't crash anymore but I get dead tired. If you are on triple, I wonder if you experience the same.

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Lara Stanić(@StanicMd) 's Twitter Profile Photo

Hairdo for the friend's costumed party this evening; if I had been born half a century earlier, I could have worne this all of the time and avouded too.

Hairdo for the friend's costumed party this evening; if I had been born half a century earlier, I could have worne this all of the time and avouded #LongCovid too.
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a_ryback(@aryback4) 's Twitter Profile Photo

We still urgently need 30 more healthy volunteers to carry out the study as planned. Please share with anyone eligible/who can spread the word in Sheffield! Volunteers get a £25 shopping voucher.

Thanks to all who signed up & shared so far, every sample makes a huge difference!

We still urgently need 30 more healthy volunteers to carry out the study as planned. Please share with anyone eligible/who can spread the word in Sheffield! Volunteers get a £25 shopping voucher. Thanks to all who signed up & shared so far, every sample makes a huge difference!
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Neurologist Mom(@NeurologistMom) 's Twitter Profile Photo

Please sign and share this petition to help us reach a wider audience. As a neurologist, I advocate for the reclassification of ME/CFS in medical textbooks from psychiatry to neurology. I'm confident that my psychiatrist friend Marya Alexander, MD will agree as well.

ME/CFS:…

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Jacqz🇦🇺🇬🇧🇨🇾🇬🇷🦘mewarriorau.bsky.social(@MEwarrior_au) 's Twitter Profile Photo

PLEASE sign, Retweet & Share as much as you can to help people with ( CFS) in Australia. 👇👇👇

We need updated medical guidelines to remove harmful & , Dr education, easier access to social services & so much more.



change.org/p/harm-caused-…

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Resia Pretorius(@resiapretorius) 's Twitter Profile Photo

Absolutely, Putrino Lab. CBT and GET for post-viral diseases like LongCOVID and ME/CFS should be seen as malpractice. In time, the psychosocial label and those driving that agenda will also be proven wrong.

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Christoph Ströck(@cstroeckw) 's Twitter Profile Photo

I should probably have added that I am trying to convince a big PR agency to work pro bono on our cause. I told them, 'we get the numbers on Twitter.' So please hit the button, folks. 😄

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Christoph Ströck(@cstroeckw) 's Twitter Profile Photo

How many , , post-infectious disease patients, and their respective loved ones are active on Twitter? It would be great to get a rough estimate of how many folks we can mobilize. Please like and RT. Let's see if this works.

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