SHEPHERD Foundation (@shepherdfound) 's Twitter Profile
SHEPHERD Foundation

@shepherdfound

Our mission is to revolutionize the rare cancer system: To redefine, redesign, and redevelop the patient journey so that all patients may live.
#RareIsntRare

ID: 718202105660616705

linkhttps://www.rarecancertoolkit.com/action-center calendar_today07-04-2016 22:21:40

480 Tweet

909 Followers

1,1K Following

Carson Leslie Foundation #cureMEdullo (@carsonleslie3) 's Twitter Profile Photo

For the 2nd year in a row, the White House was illuminated in GOLD! A special thank you to #ShepherdFoundation and #TeamBeans who are using their influence to inspire hope in our community, so that children and families all over the world will know that they are never alone.

For the 2nd year in a row, the White House was illuminated in GOLD!
A special thank you to #ShepherdFoundation and #TeamBeans who are using their influence to inspire hope in our community, so that children and families all over the world will know that they are never alone.
Liz Powell, Esq., MPH - G2G Consulting Founder (@g2gconsulting) 's Twitter Profile Photo

#Cancer #Warriors #Patient #advocates - Thank you for working so hard to #makeadifference for millions! SHEPHERD Foundation Lisa Ward If you want to help #patients support the Cancer Patient Equity Act - HR 5377! #RareCancerDay

#Cancer #Warriors #Patient #advocates - Thank you for working so hard to #makeadifference for millions! <a href="/ShepherdFound/">SHEPHERD Foundation</a> <a href="/LisaWardspeakup/">Lisa Ward</a> 
If you want to help #patients support the Cancer Patient Equity Act - HR 5377! #RareCancerDay
Tyler Robinson Foundation (@trfdotorg) 's Twitter Profile Photo

Today is #RareCancerDay. Did you know all #ChildhoodCancers are considered rare cancers? Join the SHEPHERD Foundation #RareIsntRare campaign to change the system.rarecancertoolkit.com/action-center

SHEPHERD Foundation (@shepherdfound) 's Twitter Profile Photo

Thank you Katee Sackhoff for supporting the RARE≠RARE campaign and supporting rare cancer #patients & #advocates by letting the world know that, with more than 500k diagnoses in the U.S. each year #RareIsntRare! Help us change the narrative here: bit.ly/3oOzFIv

Thank you <a href="/kateesackhoff/">Katee Sackhoff</a> for supporting the RARE≠RARE campaign and supporting rare cancer #patients &amp; #advocates by letting the world know that, with more than 500k diagnoses in the U.S. each year #RareIsntRare! 

Help us change the narrative here:
bit.ly/3oOzFIv
SHEPHERD Foundation (@shepherdfound) 's Twitter Profile Photo

"We need to kill the cancer and not the patient." - Kara Amey, Rare Cancer Patient and Advocate Learn more now: HR5377.com #RareIsntRare #RareCancer #cancer #patient #educate #advocate #legislate #MolecularDiagnostics

Dr. Catharine Young (@catgyoung) 's Twitter Profile Photo

So grateful for the opportunity to talk with #childhoodcancertalkradio about the newly introduced #HR5377 bill that lays the groundwork for the acceleration of precision medicine for all cancer patients. #rareisntrare toginet.com/podcasts/child…

So grateful for the opportunity to talk with #childhoodcancertalkradio about the newly introduced #HR5377 bill that lays the groundwork for the acceleration of precision medicine for all cancer patients. #rareisntrare toginet.com/podcasts/child…
SHEPHERD Foundation (@shepherdfound) 's Twitter Profile Photo

"Creating an equitable health care system that provides equal access to potentially live-saving diagnostics is something we all should be fighting for." - Alonzo Bodden HR5377.com #RareIsntRare #RareCancer #cancer #HR5377 #HealthJustice #HealthEquity

SHEPHERD Foundation (@shepherdfound) 's Twitter Profile Photo

WHY WEAR RARE ISN'T RARE? Because there are 500,000 "rare cancer" diagnoses each year. Because 380 out of 400 cancers are considered "rare" Because ALL children's cancers are considered "rare" #RareIsntRare Learn more: rarecancertoolkit.com/rare-isnt-rare… #RareCancer #Advocate #WearRare

WHY WEAR RARE ISN'T RARE?

Because there are 500,000 "rare cancer" diagnoses each year.

Because 380 out of 400 cancers are considered "rare"

Because ALL children's cancers are considered "rare"

#RareIsntRare

Learn more: rarecancertoolkit.com/rare-isnt-rare…

#RareCancer #Advocate #WearRare
House Veterans' Affairs Democrats (@vetaffairsdems) 's Twitter Profile Photo

The Honoring our PACT Act recognizes toxic exposure as a cost of war. This bipartisan bill ensures that present and future toxic-exposed veterans can get the care and benefits they've earned. Watch Jon Stewart explain why this bill is needed. ⬇️

SHEPHERD Foundation (@shepherdfound) 's Twitter Profile Photo

"I can't wait for the day that we're not terrified of losing a loved one to #cancer & instead we're rejoicing because #bipartisan groups came together & decided together that they would prioritize rare cancers, #ChildhoodCancer, ALL #RareCancers. " Lisa Ward #RareIsntRare

SHEPHERD Foundation (@shepherdfound) 's Twitter Profile Photo

Watch the CureFest Sunrise Panel on preclinical #DIPG #research and data collaboration here: curefest.vids.io/videos/119dd7b… #RareIsntRare #RareRevolution #RareCancer #cancer