smashingwalnuts
@smashingwalnuts
Our 10-y.o. daughter had terminal brain cancer the size of a walnut. Funding #ChildhoodBrainCancer research & appropriating #GabriellaMillerKidsFirstResearchAct
ID:2232190616
http://www.smashingwalnuts.org 06-12-2013 00:15:26
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šļøToday we raise awareness of #ATRT , an ultra-rare, aggressive brain tumor mostly affecting children under 3. We are committed to shifting the narrative for pediatric brain tumor patients, starting from our drug candidate, LP-184. $LTRN #ICCD2024 #ChildhoodCaner Hope4ATRT Foundation
Most parents don't like #ChildhoodCancer or weeds. Kids are attracted to dandelions, & cancer seems to be attracted to kids. Both are hard to cure. Chemicals appear to work well at first, but may cause unwanted late effects. #FindACure CAC2 Happy Quail Lisa (Loehr)Spaulding
#ChildhoodCancer has lots of 'Final Fours.' For every 5 kids diagnosed, only 4 (85%) live more than 5 yrs. 100,000 worldwide will die in '24. 'How many kids have to die before we stop calling it 'rare' & start calling it a 'priority.' CAC2 Happy Quail Lisa (Loehr)Spaulding
Average age of a #ChildhoodCancer diagnosis is 6 yrs old. Only 4 out of 5 kids survive 5 yrs, can you imagine how it feels to see them celebrate significant milestone birthdays like sweet 16 or their 21st birthday? Get involved Happy Quail CAC2 4sqclobberscancer.com/on-capital-hilā¦
Some think Winston Churchill said it first, I believe our parents demonstrate it 24/7/365. How many children have to suffer before we stop calling it a 'rare' disease and begin to call it a 'priority?' 400,000+ worldwide get #ChildhoodCancer yearly.
Happy Quail CAC2
Be THE voice for kids. It can be a tweet, an email, a comment on their website, or a call. Ask them to help by cosponsoring one of the bills here: wp.me/P2TETU-nG CAC2 Happy Quail Lisa (Loehr)Spaulding Mary lckc šļø Jan Halash š»šš Jane Fosteršš Judy Fulmer Amanda Haddock š§¬
.Buddy Carter reintroduced a bill (3rd time) which requires keeping vital medicines in stock govtrack.us/congress/billsā¦) Sadly, not much interest to correct the problem. Only Rep. Lisa Blunt Rochester & Rep. Nancy Mace cosponsored #ChildhoodCancer #Cancer Happy Quail Susannah Koontz, PharmD, BCOP š CAC2
Worldwide, over 400,00 will get #ChildhoodCancer & more than 100,000 will die from it. We need to call it a National Priority! Stop calling it 'Rare!' Check a few legislative initiatives that focus on kids cancer. 4sqclobberscancer.com/on-capital-hilā¦
CAC2 Happy Quail Lisa (Loehr)Spaulding
.Gus Bilirakis Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ CAC2 Happy Quail Susannah Koontz, PharmD, BCOP š
.Larry Bucshon, MD Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ CAC2 Happy Quail Lisa (Loehr)Spaulding
.@MichaelCBurgess Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ CAC2 Happy Quail Lisa (Loehr)Spaulding
.Rep. Cammack Press Office Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ CAC2 Happy Quail Lisa (Loehr)Spaulding
.Rep. Dan Crenshaw Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ Happy Quail Susannah Koontz, PharmD, BCOP š Lisa (Loehr)Spaulding
.Rep. John Curtis Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ Happy Quail Susannah Koontz, PharmD, BCOP š Lisa (Loehr)Spaulding
.Congressman Kelly Armstrong Since May, we are out of stock on 4 vital drugs to fight #ChildhoodCancer & short on 12 adult drugs. Join Buddy Carter & cosponsor HR 405: Essential Medicines Strategic Stockpile Act govtrack.us/congress/billsā¦ CAC2 Happy Quail Susannah Koontz, PharmD, BCOP š