1/ How can palliative care seriously be considered a better option than cannabis medicines? Yes, keep building the evidence, but children like Carly Ashton don’t have that long to wait. They need some form of compassionate access now, as they should have had 5 years ago.

Does this little girl not deserve a chance at life? The latest research shows there’s over a 96% chance medical cannabis would help her….. that’s a lot higher than any of the options we now have left available. Rishi Sunak SaveTheUnicorns NHS England Epilepsy Society

please Sajid Javid speak up for the children you set out to help when you changed the law in 2018. Esmé has a form of epilepsy known to respond to cannabis medication but instead she is being offered sedation and palliative care

Exhausted from multiple seizures, my child can’t even rest and recover. As soon as she nods off the tonic clusters start and wake her 💔 Rishi Sunak Steve Barclay BBC News (UK) Make advanced cannabis available for Esmé via the NHS NOW please 🙏 don’t leave her to suffer any longer

Bailey will be attending Parliament in November, along with his family, asking ministers to support NHS access to advanced cannabis medicines, which have allowed him to live a much improved life, with significantly fewer seizures. Here he is seeing his avatar for the first time.

The first official international recommendations on diagnosis and treatment of TSC-Associated Neuropsychiatric Disorders have been published. But what will this actually mean for people with TAND? 🤔 Ella, our Research and Policy Officer, found out: tuberous-sclerosis.org/news-what-tand…

The Unicorns are coming to Parliament! Can't wait to meet up with the other unicorns tomorrow. And if you can't make it yourself, there's still time to email your MP and ask them to meet kids like me in the River Room at 2pm Bring on the unicorns! 🦄🦄🦄🦄🦄

We are pleased that The Labour Party want to provide an NHS dentist for "all who need one" but, for many people, fees are still too high. People with epilepsy repeatedly fall and break teeth as a result of their seizures. We believe these repairs should be free #FixIt4Free Wes Streeting

Our dads are the best xxxx

The unicorns have arrived at Millbank #SaveTheUnicorn These children need urgent action to get the medication they need #epilepsy

What an amazing bunch of dad’s 💜💜💜💜

The Unicorns are in the Hoooouuuse! The House(s) of Parliament that is. #SaveTheUnicorn

Yes we are taking all the MPs and doctors very seriously…

Turns out you can’t take inflatable unicorns through security in Parliament so we’ve just collected it from the ARMED GUARDS who were assigned to look after them! We weren’t allowed to take pictures of the guards 😳

So this is me. U can see how comfortable I am being the centre of attention😳 But it’s important for young people with #epilepsy to speak up for each other because being a teen with epilepsy is hard. Wish Alf was with me to get 👏👏👏 Young Epilepsy Brain Ablaze TalkAboutIt.org

Would you know what to do if you saw someone having a seizure? Always remember: Stay CALM CUSHION their head CALL for help Our aim is to make sure everyone knows how to support someone with #epilepsy 💜 For more information: bit.ly/3P2Hu9Z

One little unicorn yesterday got a lot of attention. Support dog Freddie braved the rain to stand up for the kids. Who’s a good boy!

Our fellow Unicorn Warrior Tegan is seriously ill in hospital because her mum has run out of money to pay for her advanced cannabis med privately. She can’t get an NHS prescription Which child ends up in ICU should not come down to how much money their family has

Our helpline is open 9-5pm every weekday, 9-7.30pm on Mondays and Wednesdays, 9-12.30pm on Saturdays. We're here for everyone affected by #epilepsy. Call 01494 601 400 or email [email protected] bit.ly/3buOohT 💜

#Epilepsy trying to get noticed by the government’s Major Conditions Strategy (niche medical gags are the best kind of gag)