Today, on Rob Burrow Day and the day of Rob's funeral, we want to pay tribute to all he has done for the MND Association and the MND community. We will be forever grateful. Thank you Rob.

Having an absolutely fab time at #MNDEnCouRageUK explaining what I do through the medium of labrador cartoons!

Neuroscience Institute Tatyana Shelkovnikova Lab *#ScottAllen Final speaker from Neuroscience Institute (and also SussexNeuro) is Sarah Gornall

I've had a fantastic couple of days meeting brilliant people and honing my presenting skills at #MNDEnCouRageUK. Thanks once again to MND Research MND Association for giving us this fantastic opportunity!

“It’s easy to go and sit in the lab, and get good at science, but unless you can communicate that science there’s no point having done it.” #MNDEnCouRageUK aims to give #MND #ALS early career researchers the skills to communicate their research to the people it matters most –

Come join us for a fun day on the park to learn what's going on with MND research, enjoy the sun, and the chance to chuck cold water over some scientists!

Join us on 27th Sept, 12 PM (🇬🇧) for the next ALS/MND Platform session, part of the Drug Discovery & Trials Optimisation working group! Dr Heather Marriott will present her work on ALS subtypes using machine learning! UK MND Research Institute DEMON Network #ALSPlatform #MND

Come and work with us! We're looking for a post-doc to join us for 40 months, to implement personalised care predictions into clinical practice for people with #MND. Some qualitative parts, some quantitative parts, but all working with people with MND. jobs.shef.ac.uk/sap/bc/webdynp…

Today, on his birthday, we remember our late patron, Rob Burrow CBE. We'll never forget the difference Rob made to awareness of motor neurone disease, the MND Association and the MND community. He's influenced thousands and we will not stop until we see a 🌍 free from #MND.

Every year, we invite experts to give talks at the International Symposium on #ALS/#MND. This year is no different! We are thrilled to have 20 plenary speakers covering #ALS #MND research and clinical management. Find out more ⬇️ symposium.mndassociation.org/programme/plen… #alsmndsymp

There’s an important new study indicating a blood test could speed up the detection of ALS/MND, unlocking the possibility of faster and more accurate diagnoses. Read our lay summary of the research, and see why that's so important, at readableresearch.com/mnd/mnd-detect… Neuroscience Institute

Our co-director,Ammar Al-Chalabi, will appear on MND Association #BBCLifeline appeal this Sunday at 1405 on BBC1 and then on iPlayer for 21 days. Tune in to learn about the impact of #ALS #MND and what you can do to help find a cure. bbc.co.uk/programmes/m00…

Thank you to our local MP Michael Wheeler MP mentioning anna barrow in his maiden speech in parliament this week! It means a lot! From our 1st meeting he gets Anna... 'Her indomitable Spirit and Humour' MND Association MND Campaigns MND Association - Manchester & District Branch ✌️ & 🧡💙 #MNDcommunity #MNDawareness

#Tofersen is an effective new treatment for those with the SOD1 genetic variant of MND. It works. It can slow progression of their #MND. Join us and call for NICE to make an exception to its normal criteria. Sign MND Association petition: ecampaigns.mndassociation.org/page/151379/pe… #PrescribeLife

🎉 BREAKING: Incredible campaign win! Thanks to you, our #PrescribeLife campaign has been successful. Tofersen, a groundbreaking new treatment for the 2% of people with the SOD1 type of #MND, is now much closer to being available on the NHS. Read more 👇 mndassoc.org/4exYoXv

Yesterday I officially graduated with a PhD in Clinical Neuroscience from KCL 💻🧬. 2 months ago I didn't think I'd be able to attend the ceremony and walk across the stage, but the incredible support of my family, friends and colleagues made this possible! Onwards and upwards 🎉

We have heard concerning reports that people living with SOD-1 MND are unable to access tofersen due to a lack of service capacity to deliver the treatment. If you are in this situation we would like to hear from you directly to find out more. Please contact us at

Meet Libby one of our ✨ new ✨ research team members! She has a PhD in #MND#ALS research and will be helping to share research updates with the community! Read more 👇 mndresearch.blog/2025/02/20/mee…

May is #PSPAwarenessMonth. QurAlis joins the global effort in spreading knowledge about #progressivesupranuclearpalsy (#PSP), fostering community support, and promoting research for a cure. PSP, often referred to as a "cousin" of #Parkinsonsdisease, is characterized by severe

We chatted to some of our MND Association funded researchers about the challenges they face in #MND #ALS research 🔬 And how they overcome them 💪 First up is Sarah Gornall from Neuroscience Institute and University of Sussex ⬇️ #GlobalMNDAwarenessDay