Does anyone here use the paid-for Visible armband? Genuinely asking for a friend, who wants to know more about people's experience with the technology, from a #MECFS perspective. I've seen the official adverts; wondering what it's like you you. #LongCovid #Pacing

Monzo Bank doing an amazing job on a weekly basis of reminding me I'm single 🫠😅 Yes Monzo, yes I do.

Just seen an update from Lee Colligan on Instagram, who hiked the Wild Atlantic Way in memory of his brother Josh 💙🕯️ Final tally... £26k raised for Action for M.E. €13.5k raised for Irish ME/CFS Association 👏👏👏👏👏 #MECFS #LongCovid

6 years of ME/CFS has made me a lot more direct with people

ME Association I think the most important thing is for the psychologists themselves to understand that what they are offering is not in any way a treatment for the actual disease mechanism, that they are offering a supporting function, and that it should NEVER be pushed on #pwME or made to feel

Organelle transplants for mitochondrial disease?!?!! Some days I feel like the future is now.

Thinking of Sammy and all who love her. She passed away recently from severe #MECFS and #MCAS. Sometimes people ask why I’m in this area of research and practice where people are really sick, the progress is slow, and public awareness and funding are atrocious. This is why.

This is absolutely awesome 💙

“This is the longest follow-up study of children with SARS-CoV-2 infection, showing a significant and long-lasting burden of Long Covid in the pediatric population. This highlights the urgent need of investing in pediatric Long Covid” Danilo.Buonsenso_Surf4Children thelancet.com/journals/eclin…

The Free Visible app. can generate a Health Report covering the past YEAR of twice-daily readings. I have got significantly better at managing my #LongCovid #PEM symptoms since getting advice from Todd Todd Davenport and Robin McNelis Physiotherapy (via Binita Kane)...

The BPS dogma in a nutshell: you've memed your own ME into existence #MECFS #LongCovid