RMC Alliance
@RmcAlliance
RMC Alliance is a non-profit bringing together clinicians, researchers, and patient advocates to better understand RMC. Tweets = RMC Alliance Staff
ID:1253797620738166784
24-04-2020 21:27:16
430 Tweets
135 Followers
162 Following
📢Exciting news! House Energy and Commerce Committee announced a hearing focusing on bolstering Medicaid access to ensure care for millions of Americans in need. #RMC is on the agenda!! Learn more: bit.ly/4d9ECSJ, #HealthcareReform RMC Alliance, @KidneyCanc, KCCure
Grateful for the pivotal first funding support for #RenalMedullaryCarcinoma by Conquer Cancer, the ASCO Foundation & Kidney Cancer MD Anderson Cancer Center. It takes a village for progress in #RareCancers & appreciative of trailblazing efforts by NCI Urologic Oncology Branch Mark Ball, MD, FACS across #kidneycancer subtypes.
NEW VIDEO Heme Review Herman Connor (patient HC), a survivor of Renal Medullary Carcinoma, tells his story directly -RT!
youtu.be/w5zLOZE-Goc
What are the challenges with diagnosing #RenalMedullaryCarcinoma ? Dr. Nizar Tannir from
MD Anderson Cancer Center via Patient Empowerment Network explains: bit.ly/3U4gjwF #RMC , Â #kidneycancer
R.M.C. Inc KidneyCAN Chris Johnson Foundation Inc. RMC Alliance @KidneyCanc KCCure
'As long as you have a #blooddisorder that could cause red blood cell sickling, #sicklecelldisease , #sicklecelltrait , or any of these variants like #hemoglobinSCdisease (SC) or #sicklecellbetathalassemia (S-beta), you are at increased risk for #RMC ': bit.ly/43Lh4zb
This is the Way! Much more work to do but every setback is a learning opportunity getting us one step closer towards eradicating #RenalMedullaryCarcinoma and other rare and common #kidneycancer subtypes! #endRMC
We're THRILLED to work alongside MD Anderson Cancer Center Matt Campbell MD, MS Pavlos Msaouel Surena F Matin MD Chad Tang, MD Zita Dubauskas Lim Katie Coleman and other #kidneycancer experts to bring you this in-person patient education event! Register now: bit.ly/49JgAvJ
March is #KidneyCancerAwarenessMonth ! Revisit Kyle A. Richards and Daniel Shapiro's WInnovations podcast discussion exploring UW's multidisciplinary approach to treating kidney cancer – and how these collaborations are leading to exciting advances in the field! winnovations.podbean.com/e/advancing-ki…
🧪What tests are necessary to confirm a #renalmedullarycarcinoma diagnosis? Check out our FAQs: rmcalliance.org/faq/
#endRMC Kidney Cancer R.M.C. Inc Chris Johnson Foundation Inc. Rare Cancer Research Foundation + Pattern.org Daniel Shapiro Pavlos Msaouel
👇Elated to see this international trial open for #RenalMedullaryCarcinoma . Goal remains to get median survival to 24 months by 2025 and to 5 years by 2030 on track to eradicate this rare #kidneycancer . #EndRMC RMC Alliance Kidney Cancer KidneyCAN R.M.C. Inc Chris Johnson Foundation Inc.
Could the distinct methylation profile found in #RMC pave the way for #targetedtreatment or personalized therapies? Learn more: bit.ly/3wPGlfb
#mutation Dan Shapiro Pavlos Msaouel
#endRMC Kidney Cancer R.M.C. Inc Chris Johnson Foundation Inc. Rare Cancer Research Foundation + Pattern.org
S B Rahul Sheth Katie Coleman COA - Chromophobe and Oncocytic Tumor Alliance Kidney Cancer Jeffrey Graham Lisa Henske ROHIT MEHRA Nazli Dizman Andy Hahn Petros Grivas Dr. Bishoy M. Faltas Yup, however there is a relevance-robustness trade-off here. Population size is only one dimension. Note that our #RenalMedullaryCarcinoma trials account for this trade-off and yet are less stringent than most trials & follow our consensus recommendations👉pubmed.ncbi.nlm.nih.gov/30287223/
This is a pivotal annual event to raise #RenalMedullaryCarcinoma awareness & research. Now in its 11th year, it has grown to include participants from all over the world. Every year we provide research updates to our patients & advocates. This year will be the strongest to date!
What are #kidneycancer treatment priorities for newly diagnosed patients? Register to join Dr. Moshe Ornstein Moshe Ornstein MD from @clevelandclinic on March 19th, and don't forget to send in your questions! ow.ly/Wv3X50Qxkq9 #RCCSM #KCSM #RCCAwareness
How is #renalmedullarycarcinoma associated with germline NF2 #mutation ? bit.ly/3IiWsVc
Dan Shapiro Pavlos Msaouel #cancerresearch #endRMC Kidney Cancer RMC Alliance R.M.C. Inc Chris Johnson Foundation Inc. Rare Cancer Research Foundation + Pattern.org
Help in raising awareness for RMC, renal medullary carcinoma. And rare kidney cancers.
ITV Granada Reports Lucy Meacock Kidney Cancer UK Greater Manchester Cancer Alliance Chris Johnson Foundation Inc. Oldham Hour Lucille Brobbey David May
What does molecular characterization reveal about the tumor environment in #renalmedullarycarcinoma ?rmcalliance.org/molecular-char…
Renal Medullary Carcinoma (RMC) is a rare type of #kidneycancer that's more common for black communities in the US. It's important to talk to your family & doctors about your #cancer history. Learn more about RMC here: kidneycancer.org/know-and-tell/
#renalmedullarycarcinoma #rarecancer