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NEW VIDEO Heme Review Herman Connor (patient HC), a survivor of Renal Medullary Carcinoma, tells his story directly -RT! youtu.be/w5zLOZE-Goc

Most rad oncs probably have never heard of renal medullary carcinoma (RMC). It's a rare, and usually fatal, disease seen in patients almost exclusively diagnosed in young men/women of African descent. Check out this video by my buddy Chubbyemu. rb.gy/ayb8nz

Could the distinct methylation profile found in #RMC pave the way for #targetedtreatment or personalized therapies? Learn more: bit.ly/3wPGlfb #mutation Dan Shapiro Pavlos Msaouel #endRMC Kidney Cancer R.M.C. Inc Chris Johnson Foundation Inc. Rare Cancer Research Foundation + Pattern.org

👇Elated to see this international trial open for #RenalMedullaryCarcinoma. Goal remains to get median survival to 24 months by 2025 and to 5 years by 2030 on track to eradicate this rare #kidneycancer. #EndRMC RMC Alliance Kidney Cancer KidneyCAN R.M.C. Inc Chris Johnson Foundation Inc.

March is #KidneyCancerAwarenessMonth! Revisit Kyle A. Richards and Daniel Shapiro's WInnovations podcast discussion exploring UW's multidisciplinary approach to treating kidney cancer – and how these collaborations are leading to exciting advances in the field! winnovations.podbean.com/e/advancing-ki…

🧪What tests are necessary to confirm a #renalmedullarycarcinoma diagnosis? Check out our FAQs: rmcalliance.org/faq/ #endRMC Kidney Cancer R.M.C. Inc Chris Johnson Foundation Inc. Rare Cancer Research Foundation + Pattern.org Daniel Shapiro Pavlos Msaouel

We're THRILLED to work alongside MD Anderson Cancer Center Matt Campbell MD, MS Pavlos Msaouel Surena F Matin MD Chad Tang, MD Zita Dubauskas Lim Katie Coleman and other #kidneycancer experts to bring you this in-person patient education event! Register now: bit.ly/49JgAvJ

This is the Way! Much more work to do but every setback is a learning opportunity getting us one step closer towards eradicating #RenalMedullaryCarcinoma and other rare and common #kidneycancer subtypes! #endRMC

"As long as you have a #blooddisorder that could cause red blood cell sickling, #sicklecelldisease, #sicklecelltrait, or any of these variants like #hemoglobinSCdisease (SC) or #sicklecellbetathalassemia (S-beta), you are at increased risk for #RMC": bit.ly/43Lh4zb

What are the challenges with diagnosing #RenalMedullaryCarcinoma? Dr. Nizar Tannir from MD Anderson Cancer Center via Patient Empowerment Network explains: bit.ly/3U4gjwF #RMC,  #kidneycancer R.M.C. Inc KidneyCAN Chris Johnson Foundation Inc. RMC Alliance @KidneyCanc KCCure

Grateful for the pivotal first funding support for #RenalMedullaryCarcinoma by Conquer Cancer, the ASCO Foundation & Kidney Cancer MD Anderson Cancer Center. It takes a village for progress in #RareCancers & appreciative of trailblazing efforts by @NCICCR_UroOnc Mark Ball, MD, FACS across #kidneycancer subtypes.

📢Exciting news! House Energy and Commerce Committee announced a hearing focusing on bolstering Medicaid access to ensure care for millions of Americans in need. #RMC is on the agenda!! Learn more: bit.ly/4d9ECSJ, #HealthcareReform RMC Alliance, @KidneyCanc, KCCure

Facing #RenalMedullaryCarcinoma? You're not alone. Passionate advocates & respected researchers are raising awareness and improving survival rates. Stay tuned as experts work towards doubling survival rates #RareCancers #kidneycancer

Research, teamwork, determination, and patient advocacy can transform the “impossible” into reality. #RenalMedullaryCarcinoma #endRMC #RareCancers #KidneyCancer Heather Williams Katie Coleman @naborala Chad Tang, MD Giannicola Genovese MD, PhD Luigi Perelli RMC Alliance Chris Johnson Foundation Inc. R.M.C. Inc

👇Unfortunately sunitinib, pazopanib and cabozantinib are ineffective against #RenalMedullaryCarcinoma and need to be taken off this chart as they will produce toxicity without benefit. More info here: rmcalliance.org/treatment-info… Laurence Albiges Kidney Cancer RMC Alliance Chris Johnson Foundation Inc.

Our friend Kimryn Rathmell Dr. Kimryn Rathmell shared how a young #RMC patient ignited her #patientadvocacy. And was brought to tears seeing Katie Coleman, who shared her story w the Rathmell lab @VUMCKidney, in the audience. Grateful for the passion of #kidneycancer community! #ASCO24

Next Friday, join the KCA and MD Anderson Cancer Center for a #kidneycancer education event and learn about treatments, side effects, rare kidney cancers, and more! This FREE event is on Friday, June 14 at 10:30 am CT. Register now: bit.ly/49JgAvJ

KCA has partnered with Patient Empowerment Network (PEN) to share with you Digitally Empowered™, a series of video modules guides that will open the door to a whole new world of knowledge. It's free, accessible online and available in English and Spanish. kidneycancer.org/kca-pen/

Grateful to The V Foundation for Cancer Research for supporting our #kidneycancer research leading to our clinical trial targeting Ca-125 in #RenalMedullaryCarcinoma and #EpithelioidSarcoma: clinicaltrials.gov/study/NCT06444… Excited for the synergies with Rare Cancer Research Foundation + Pattern.org to accelerate #rarecancer discoveries.

It all started with one patient. Dx at 18 with #renalmedullarycarcinoma, a rare cancer hitting young people with #sicklecelltrait. He fell through the cracks. Advocacy turned this into a mission. Now, it's getting the attention it deserves at the #NCI: cancer.gov/grants-trainin…