Whether a #Carer #Family or #Disability Warrior -Join us on Saturday at 2pm -Garden of Remembrance to Rally for #JusticeForHarvey -Organised by the Inimitable Access For All Ireland Bernard Mulvany The Scoliosis Advocacy Network #BackUs Spina Bifida & Hydrocephalus Paeds Advocacy#backus OrthoKidsIreland Mary Lou McDonald For Harvey For #DisabilityRights

Home now. The traveling & walking was hard, but for Brendan, Harvey, & all the children waiting or who suffered waiting, it was worth it! May this lead to change, FINALLY! #JusticeForHarvey #Scoliosis Profound Ireland PS: It was wonderful to see old friends & meet new ones💜

Please share to try and help 11 year old Brody and his family. If you know anyone that might be able to help, please send this onto them!

Paul Murphy 🇵🇸 Is the HSE not willing to pay for a night nurse/HCA for them? I'm assuming not as they never did for me and my profoundly disabled son (RIP) even though I'm a lone parent. There should be PROPER, FULL in-home supports for medically complex children. There isn't. Profound Ireland

Is the HSE not willing to pay for a night nurse/HCA for them? I'm assuming not as they never did for me and my profoundly disabled son (RIP) even though I'm a lone parent. There should be PROPER, FULL in-home supports for medically complex children. There isn't. Profound Ireland

Fianna Fáil Norma Foley T.D Will you be consulting with #disability advocates who represent people with profound disability? Profound Ireland

Facebook memory of the day, this from 2016. A glimpse into the world of having a profoundly disabled child and not receiving the in-home supports as needed. No wonder my back is in chronic pain after nearly 18 years of being a lone parent carer. #disability #carers

Hi Claire, Did this amendment ever go through and the anomaly in Disability Allowance payments for disabled children 16 years old & over ever get changed? If it hasn't, can we please raise this again with the current Minister for Social Protection? Claire Kerrane TD Profound Ireland

Facebook memory of the day, this from 2017. Needless to say, it didn't change anything. 💔 #scoliosis #disability Profound Ireland

Condolences to all who loved them from all of us at Profound Ireland. A devastating loss for their family and all in the disability community

Tony Murray’s frustration has led him to establish a group called 'Before We Die’ to lobby politicians about the care of adults with disabilities, but when he called a meeting of 15 local politicians, 8 did not even reply #Disability #WhoCares

What Dara Calleary et al need to understand is that many #carers CAN'T work outside the home in paid employment because they are working literally 24/7 caring for their disabled loved one, especially if profoundly disabled. I was in that situation for years. Profound Ireland

Hey Fine Gael is this actually the message you want your reps sending to people with #disability or the family #carers working 24/7 to care for their disabled love one? €244 means tested weekly pymnt is poverty level. Care to reply please Hildegarde Naughton? Profound Ireland

Families caring for adult offspring with intellectual disabilities “don’t want sympathy, they want certainty, they want to know that their children will be safe, valued, and loved, when they are gone” — Gary Gannon TD #Disability #BeforeWeDie #IEPOL share.google/i69IlkQbQE6zrQ…

Disappointing news in the field of CMV #cytomegalovirus vaccine research. CMV is a leading cause of childhood disability & what severely damaged my late son's brain in utero. If you are pregnant, PLEASE learn about CMV and take hygienic precautions esp. around young children.

Be good if as many people as possible would fill out this survey. A vital part of our activism is engagement and what better way to engage then to make those decision makers aware of the issues we face. #HaveYourSay

Irish Human Rights & Equality Commission Sam Blanckensee Cathryn Costello Patricia Munatsi Mavhinga🇿🇼🇮🇪 Rose Wall Adam Harris Dr. Rosaleen McDonagh And not one of them represents the appx 20% of our society with a disability, especially those with severe/profound disability. I had hoped for a better selection but Ireland has never been great when it comes to human rights for people with disabilities. Profound Ireland

Tracy 💜 ☮️ 📸 ✍🏼 Profound Ireland Irish Human Rights & Equality Commission Sam Blanckensee Cathryn Costello Patricia Munatsi Mavhinga🇿🇼🇮🇪 Rose Wall Adam Harris Dr. Rosaleen McDonagh Such a disappointment that there seems to be no selections / appointments to the Irish Human Rights & Equality Commission Disability Advisory Committee DAC with a lived experience of high support intellectual disability or their informal support.

ILMIreland It says 'for disabled people only' What about the family carers of profoundly disabled people? Can they participate? Profound Ireland

It's #InternationalDayOfPersonswithDisabilities For nearly 18yrs I was a lone parent carer to my profoundly disabled son Brendan Bjørn (RIP). Cost of living for disabled ppl is higher than others. Many can't afford heating & wait years for healthcare. Ask why b/c it shouldn't be.