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Anna Higo Physiocure Physiotherapy Clinic Leeds | Est. 2000 is our first Community Champion of 2023! Thank you Anna for all you do for those touched by #EhlersDanlosSyndrome and #HypermobilitySpectrumDisorder. ehlers-danlos.org/news/anna-higo…

Just 3 months ago I struggled to swim 1450m and ached for days 😕 Today, I managed 3000m (120 lengths) and am bouncing 😀 I'm sure I'll hit some barriers yet, but am so pleased with preparations for my 5k challenge 🤞 Thank you for all donations so far justgiving.com/fundraising/sh…

🏆 Excited to announce that we won UK Research and Innovation funding, part of @HealthyAgeingUK to co-produce and evaluate personalised HoPES (Hope and Prepare Effectively for Surgery) #selfmanagement support for people on hip and knee replacement waitlists #socent bit.ly/3zS3pZ3

Thanks to everyone who has participated in this research. Recruitment will close soon, so please complete if you’re eligible or forward onto eligible young people. We need 13 - 18 year olds with symptomatic hypermobility and also non hypermobile young people Vicki Busby

Listening to some fascinating CRISP presentations and discussions on Online Harms and the Online Safety Bill this afternoon Business in Society #onlinesafety #onlineharmsbill

My PhD student Erin Wang is arranging a public involvement session with people who have HSD or hEDS who stumble and fall to help us design her study. Are you interested? An online session for about 1 hour? see below Ehlers-Danlos Support UK hypermobility.org Prof Jane Simmonds Prof Shea Palmer

Fantastic to hear about the Spider symptom tool ⁦World Physiotherapy⁩ by our wonderful ⁦Ellen Ewer⁩ ⁦UCL Physiotherapy⁩ ⁦UCL Great Ormond Street Institute of Child Health⁩. Thanks to ALL who have helped ⁦Ehlers-Danlos Support UK⁩ ⁦hypermobility.org⁩ ⁦The Ehlers-Danlos Society⁩ ⁦Central Health Physiotherapy⁩

Nurses, Midwives and Allied Health Professionals identified mentorship and in-service training as key to helping them engage in research bmchealthservres.biomedcentral.com/articles/10.11…

Lack of time and other work roles taking priority are key barriers to Nurses, Midwives and Allied Health Professionals engaging in research bmchealthservres.biomedcentral.com/articles/10.11…

Nurses, Midwives and Allied Health Professionals are confident in their abilities to find and critically review literature bmchealthservres.biomedcentral.com/articles/10.11…

Important patient and public involvement activity on knee pain Dr Gemma Pearce UHCW NHS Trust R&D at UHCW @CfCExcellence

The Bristol Impact of Hypermobility questionnaire has now been successfully translated into Arabic to help support clinical practice and research into these conditions pubmed.ncbi.nlm.nih.gov/37368177/

Extremely proud we have been shortlisted for the #CAHPO Research Impact award for the excellent work of the Centre for Care Excellence on supporting AHP research @CfCExcellence Therapy Department UHCW R&D at UHCW @covuni_chr Professor Liz Deutsch Dr Emma Murphy Prof Jenny Gamble Professor Jane Coad RN FRCN

Please keep sharing, can we get to 20,000 by Sunday? petition.parliament.uk/petitions/6373… #Ehlersdanlossyndrome #hypermobilityspectrumdisorder #EnoughIsEnough

Fantastic to see the @CfCExcellence shortlisted for the #CRNWMAwards23 highlighting the fantastic impact of #clinicalAcademics to improve patient outcomes Professor Jane Coad RN FRCN Professor Liz Deutsch Dr Emma Murphy Prof Jenny Gamble Rosie kneafsey R&D at UHCW Coventry University

After a summer break we were back last night with a fantastic round table style hypermobility webinar. Next month will see the return of complex case discussions

It’s been one year since the official launch of the Centre for Care Excellence @CfCExcellence and what a year it has been. This joint initiative between Coventry University and UHCW NHS Trust to appoint professorial clinical academic staff for NM&AHP’s has had a huge impact across organisations

2 new articles out on pregnancy & birth outcomes, experiences & tools to support people with hypermobile #EhlersDanlosSyndrome & #HypermobilitySpecrumDisorders 1 mdpi.com/1660-4601/20/2… 2 mdpi.com/1660-4601/20/2… Dr Sally Pezaro PhD FRCM MSc SFHEA PgCAPHE RM @LMBell_ Emma Reinhold hEDStogether Paul Magee

A new aid to clinical reasoning has been developed to help clinicians identify a potential diagnosis of adult hip dysplasia - the ALPHA alert doi.org/10.1016/j.msks…