UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile
UK National Haemoglobinopathy Panel

@panelnational

A network providing strategic leadership, oversight, & clinical decision-making for haemoglobinopathy patients. Chair: Prof. Baba Inusa @PdbInusa

ID: 1313829832325767169

linkhttp://www.nationalhaempanel-nhs.net calendar_today07-10-2020 13:13:47

262 Tweet

184 Followers

93 Following

HCC_UCLH (@hcc_uclh) 's Twitter Profile Photo

"HCC is looking forward to the new Grafton Way Building, with our fantastic art installation, by Dryden Goodwin, giving us an amazing presence and featuring some of HCC’s heroes." Stephen Rowley HCC Chair Senior Matron Haematology UCLH

"HCC is looking forward to the new Grafton Way Building, with our fantastic art installation, by Dryden Goodwin, giving us an amazing presence and featuring some of HCC’s heroes."
Stephen Rowley
HCC Chair
Senior Matron Haematology <a href="/uclh/">UCLH</a>
UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

Please circulate among South London-based patients, families, and clinicians, and encourage them to take part in this important initiative. It's a brief survey, will only take 5 minutes to complete. #sicklecell

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

Thanks to all those who attended yesterday's monthly MDT for February, some excellent and thought-provoking discussions on pregnancy in #sicklecell patients, management of extramedullary haematopoiesis, and other issues. Next MDT is Monday 29th March.

Imperial NHS 💙 (@imperialnhs) 's Twitter Profile Photo

Asking twice can make all the difference. Here are some tips on how to start conversations about mental health with your friends, family or colleagues. #TimeToChange #MentalHealth ⬇️

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

Our NHP clinicians are at the forefront of treating patients with rare anaemias and helping them to live healthy and fulfilling lives. Long may it continue. #RareDiseaseDay2021

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

We have recently published information on COVID-19 in haemoglobinopathy & rare anaemia patients, dealing with case numbers, hospitalisations & clinical outcomes. It can be found with other resources on COVID-19 on our website nationalhaempanel-nhs.net/covid19

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

The Sickle Cell Disease Association of America Medical and Research Advisory Committee (MARAC) has issued a statement regarding the temporary suspension of bluebird clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease. Read via our website: nationalhaempanel-nhs.net/news-and-updat…

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

Interested in learning more about 'transfusion challenges in haemoglobinopathy'? You can view the video of this event hosted by @STSTNetwork & the papers given by Sara Trompeter & Dr Stella T. Chou of the Children's Hospital of Philadelphia via our website: nationalhaempanel-nhs.net/educational-re…

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

Our friends at West London HCC have produced an informative FAQs guidance sheet on the #CovidVaccine. Find it along with other guidance on COVID-19 vaccines in haemoglobinopathy patients on our website. Thanks Elizabeth Rhodes and colleagues. nationalhaempanel-nhs.net/covid19-vaccin…

UK National Haemoglobinopathy Panel (@panelnational) 's Twitter Profile Photo

Big day tomorrow for all our excellent clinicians and experts in haematology and #SickleCell and of course their patients. Awareness and advocacy are vital. #SickleCellAwarenessDay