Spot-on. I had to advocate HARD to be able to try Remicade over a prednisone series when I was dx’d in 2006. I firmly believe it was the right decision.

Maybe all this fatigue isn’t due to the malnutrition, and maybe the malaise and these mouth ulcers that just cropped up are my early signs of yet another Crohn’s 🔥 (2nd in 3 months, if so). 🤔 Just in time for my next 4-wk Stelara 💉. Time will tell…🥴

I’ve been waiting for over 3 weeks to get admitted to an ED hospital to ensure safety on refeeding. My entire medical team has been advocating for me during this time. Meanwhile, I am trying to navigate wild glucose swings via Google info. Don’t tell me the system isn’t broken…

“During refeeding you’ll retain fluid- likely around your abdomen and thighs.” Me: No. Frickin. Kidding! 😳

In 16 years of battling #Crohns, 6 years of #dystonia, & myriad motility/nutrition issues, I finally feel like I have threads of Hope. A LOT of providers, across multiple HC systems, have pulled together to help me keep my MullMentum Consulting, LLC energy alive. I am humbled. I am blessed.

Great slide for chronic pseudoobstruction (CIPO) by Carlo Di Lorenzo There will never be high quality trials in CIPO. Try various prokinetics and don't forget treating overlapping #SIBO #ANMS2022

Sneak peek at the upcoming sibo guidelines from Baha Moshiree MD, MSci, FACG, AGAF waiting for the publication to explain how to apply the algorithm best. #anms2022

Really important thread here for those of us with abdominal-phrenic dyssynergia!

Proof that it is a disorder of gut-brain interaction…despite the same gut physiologic reaction to ingestion of fructans, the brains of pts with IBS literally processed that information differently on functional MRI! #ANMS2022 Dr Jose Garza ANMS

Ten years ago I lost my baby & had 9 surgeries (incl. hysterectomy) in 4 mos. Today, I met with a new GI for Crohn’s (adding to my team). He asked if I was aware of the impact of Methotrexate, which I’ve taken for 9 yrs, on a baby. PCP did same last week. #ReadTheChart

It’s #CrohnsAndColitisAwarenessWeek and it’s a lot for me to share about my 16 year journey. I detail some of it over on Insta under my MullMentum Consulting, LLC and MeAndMyCrohnies handles.