📌 Pinned Tweet 2.0 (meant to be shared) #UniteToFight2024 Largest global #LongCovid & #MECFS Conference ✅ Free access ✅ 100% online ✅ Inclusive and interactive 📅 Date: 15th-16th of May 2024 9:00 am-7:15 pm (CEST) More than 35 speakers from all over the world 🌍 More

I've always tried to provide a good return on investment for my Trial By Error project on poor research on ME, ME/CFS, Long Covid, etc. The May campaign has reached 30% of the goal, with 150+ donations. Thanks to all past, current and future supporters!!! crowdfund.berkeley.edu/project/42302

On #WorldMEDay please recognise people with #MECFS Anthony Albanese @billshortenmp Mark Butler MP Amanda Rishworth MP Senator Jordon Steele-John Ged Kearney Kylea Tink Steve Georganas MP Katy Gallagher @michrajah

#BlackDressDay 2024, now 31 years since Alison wrote ‘Forget Me Not’

#GreatestMEdicalScandal #JohnVsJonVsME #BlackDressDay

#GreatestMEdicalScandal #JohnVsJonVsME

#GreatestMEdicalScandal #JohnVsJonVsME

#GreatestMEdicalScandal #JohnVsJonVsME #BlackDressDay

Our worlds have become even smaller. The most severe of us continue to be neglected by governments about issues that threaten our lives, including COVID and cutting essential NDIS funding. Please support us by writing to MPs to ask they care about the most vulnerable in society.

#SevereMEday #SevereME #MyalgicEncephalomyelitis #MECFS

🚨New Publication Alert🚨 Dr Natalie Eaton-Fitch and NCNED researchers share novel advancements in understanding the immune mechanisms behind #MECFS and #longCOVID in a recent article published in JCI Insight. 📖 Read the full article here: insight.jci.org/articles/view/… JCI insight

🗣️The federal Health Minister Mark Butler will speak at the Parliamentary Friends of #MECFS meeting 18th Nov 👩🏻‍💻 Pls join event via zoom to ⬆️ attendee numbers 🗳️ Politicians notice numbers 🛌Cameras can be off to allow resting Click on link to join zoom tinyurl.com/2zt7wbas

Join us to call on politicians to give a #FairGoToME this election! Follow your election candidates on social media and let them know that their #mecfs and #longCOVID policy will decide your vote!

Election candidates must commit to change for the #MECFS & #longCOVID community. Ask for their election commitments today! Leave a comment on this post sharing why you need more from the next government & tag your local candidates. Tell them you want a #FairGoForME!

CALL TO ACTION - FEDERAL ELECTION! If you live in a marginal seat, your vote could decide the election! Help us get a #FairGoForME! Let us know if you live in a marginal electorate! #mecfs #longCOVID

Today is #InternationalMECFSAwarenessDay We remind the Prime Minister that, on election night, he promised that there would be No One Left Behind. Help us ask him to give a #FairGoForME by leaving a comment on his FB page! m.facebook.com/AlboMP?

Snap Protest to mark ME/CFS and Fibromyalgia Awareness Month 1pm Saturday 17 May 2025 State Library, Melbourne If you are unable to be there due to chronic illness, you can write a short message to be read out at the protest. Please send it to [email protected]

⏰ ME/CFS isn't something you 'get over' quickly. For many, Severe ME means decades of profound disability, isolation, and lost life opportunities. We need research, recognition, and respect. #SevereMEDay #SevereME #HiddenButHere #BeTheLight #ResearchME