Tom Kindlon

@tomkindlon

With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs

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Cort Johnson

@cortjohnson

Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years

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@richardvallee.bsky.social

@richardvallee

I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing

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Prof Doug Kell CBE #FBPE #FBPA🔶🇪🇺

@dbkell

I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE osf.io/pnxcs/ dbkgroup.org/longcovid/. Nothing I say is medical advice

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jebadeee 👾

@jebadeee

virtuals | btc eco | degen 🌞🌙 | MVHQ | Melb, Aus | #womeninweb3

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Solve ME/CFS Initiative

@plzsolvecfs

Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ ow.ly/jQji50Srbuv

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A 😎 Long Covid + MECFS Billboards

@aaronca11

@lcmebillboards @lcmepirates notrecovereduk.org

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Dan Wyke 🦠➡️🧠🔥

@dan_wyke

M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)

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MarinaCostaMcK

@costamari33

Marina Costa McKenzie. Born in the US, living in Italy. Lover of Justice and crazy for Democracy. Lawyer. Person with #MECFS #MyalgicEncephalomyelitis

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Marco

@littlegeneral07

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Eliza Charley | Actress on Pause

@elizacharley

🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her

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Sabrina Poirier (On Hiatus) 🇨🇦

@sabrina_poirier

Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro

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Anna Davidson | OzSAGE | #CovidisAirborne

@pmgpsc

Director of the Port Stephens GP Super Clinic | OzSAGE Member | @RealOzSAGE | FDRP & Mediator

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irredeemable crybaby 🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸

@byowife

if ur looking for shit i posted myself u already lost the argument🥰 always showing my ass in some way (sometimes NSFW lol), u can support me below🫶 beem: eeit

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davidtuller

@davidtuller1

Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.

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Katy B

@katybruce108

Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME

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Rivka

@rivkatweets

Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions

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Nia Luxton

@niaaluxton

PhD (Macq), MHPOL (USYD). MAppSc (USYD), BScHons (Ulster). Senior lecturer, Physiotherapy, long COVID, health policy & promotion, climate change. Ever hopeful

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PwME 4 bioMEdical research

@valebodi

Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer

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#MEAction Network

@meactnet

A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet

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SoeMac

@soemac_

SoeMac is a wellness product that increases blood flow & tissue oxygenation for people with CFS, ME, Long Covid, COPD, Asthma, and many other conditions

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𝐏𝐚𝐮𝐥𝐚💗

@flower_of_june

“𝐒𝐨𝐦𝐞𝐝𝐚𝐲 𝐈 𝐰𝐢𝐥𝐥 𝐰𝐫𝐢𝐭𝐞 𝐩𝐨𝐞𝐦𝐬 𝐚𝐛𝐨𝐮𝐭 𝐭𝐡𝐢𝐬. 𝐁𝐮𝐭 𝐟𝐢𝐫𝐬𝐭 𝐈 𝐦𝐮𝐬𝐭 𝐬𝐮𝐫𝐯𝐢𝐯𝐞 𝐢𝐭.”🪽 ☾ ✧ ❀ ✧ ☽

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Marky Mark

@mrkstdngr

#ME #CFS #CCI #POTS #MCAS

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Kelly Fawcett

@kellymfawcett

Data enthusiast and self-proclaimed nerd | she/her | disabled queer 🌈 | white settler | all views are my own

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SC

@shoshacapps

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Billy Hanlon

@bhanlon15

ME/CFS | Long COVID | IACC

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Stacey

@woodnuttstacey

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Illustrator Interrupted

@franceyme

amandafrancey.com illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid @franceyme.bsky.social

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Jason I

@jason_isaia

AFL Fantasy #32 2024 Mild ME/CFS 2016-2021 Mod/Sev ME/CFS since 2022 ME FB Link Below 💙AFL & EPL & Golf Everyone has confirmation bias, so stress less.

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Michael Alexander

@michaeltikus

I like animals 🐙 Covid? Not so much. Views my own. @Long_Covid @RenegadeRes @WeCrunchME @OneSpoonProject

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Pekka Puupää 🇺🇦

@raichu_pokem0n

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Keagan Blair

@keaganblair

Tired and chronically chill

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Complex Health Australia

@complexhealthau

Grassroots #CSX collective #ComplexHealth #ChronicHealth #MedicalNeglect #Trauma #MedicalGaslighting #Inaccessibility [email protected]

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AloneLonghaulLady

@ladylonghaul

severe ME • needs more 🥄 • LC 2020 • prefers clean air • some adult language • #ADHD #HSD #pwME #FBLC #MCAS #CareShareGive ladylonghaul.bsky.social

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Jan

@jan88090069

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EndMalnutritioninME

@malnutritionme

Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. 25megroup.org

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LidiaTheresa

@lidia_theresa

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Arthur

@unreal_arthur

ME Patient-ly Waiting for Biomedical Research #GreatestMEdicalScandal unrealarthur.bsky.social @unrealarthur.bsky.social

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Cristian Serious

@cristianserious

Sharing my personal journey of navigating life with Chronic Fatigue Syndrome, CCI/AAI, and TC. #cci #mcas #mecfs #mespine

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Brutus Berserk

@brutusberserk

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zedsrigil

@sunsweptforest

forest.haven they/them AuDHD me/cfs and more nature music outer space

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Luna

@tonaze125663

Can we be good friends? I'm looking for a serious relationship

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Yann me-cfs.bsky.social

@yann_mecfs

I’m more active on BSKY now bsky.app/profile/me-cfs…

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Minghao Gong

@minghaogongd960

Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!

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Jan

@jan995783030021

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Nirshitau

@nirshitaubxuxn

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KB

@pwdonlinesafety

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FionaPWME @fioname.bsky.social

@fionapwme

Was a journo/writer/editor. #MECFS has crushed my life for almost 15 years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)

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Bea is Chronically Persisting✨

@be_kinderr

Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻‍♀️Scientist/Advocate [email protected]

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Mark Vink, MD

@huisarts_vink

Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth

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Donna Chatterton

@donnachatterto

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Martynas Bendorius

@smtalkk

Co-owner of DirectAdmin, owner of MC2 Insight. NDPH and post-Lyme patient with #POTS 🦠

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Science for ME online forum

@s4me_info

We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.

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Anne Wilson

@annewil87285253

CEO, Managing Director, Director

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Sam Connor

@criprights

human + disability rights activist | cofounder bolshy divas | social media assassin | cripchick | disability consultant | views are my own | sam-i-AM

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