At the Patient Centricity & Collaboration conference: "why do patients need 'a stamp' to be a patient expert while industry do not have to prove their quality of engagement'?" Interesting panel discussion.

How do we ensure feedback to enhance our collaboration and show the impact? Today at the patient centricity & collaboration conference, we will present an approach to evaluation. Join (online) and share your ideas Athena Institute

Hora Est! On Dec 17, I successfully defended my PhD thesis entitled "Transforming the health research system: Embedding patient engagement in decision-making" at the Vrije Universiteit Amsterdam (VU Amsterdam). My thesis can be downloaded via this link:…lnkd.in/e3kd3w42

Our article about monitoring and evaluating Community Advisory Boards is out! Thanks all who contributed! EURORDIS-Rare Diseases Europe laura mckeaveney Rob Camp Lidewij Eva Vat @TjerkJanpuntnl Carina Pittens and others! Read it here: institutionalrepository.aah.org/jpcrr/vol9/iss…

Goed artikel van Marcel Levi. Een verandering van mindset waarbij patiënten niet als lastige sta-in-de-weg bij belangrijke beslissingen in de gezondheidszorg worden gezien vraagt om een transformatie van het gehele systeem. Zie ook mijn PhD thesis. medischcontact.nl/opinie/blogs-c…

“To see 1 ophthalmologist, you have to wait at least 6 months, whereas when I was living in Paris, it took less than 48 hrs and I had the choice between several.” Read about the experiences of those affected by #medicaldeserts in rural France The New York Times nytimes.com/2021/08/28/wor…

Nu is ook een korte Nederlandse samenvatting van mijn proefschrift beschikbaar, mocht je vragen hebben neem gerust contact op!

Registrations open for #PEOF 2022 👉 bit.ly/3KCAfR8 Sessions on April 12 & 14 covering diverse topics: ✅Patient Engagement 2022 trends ✅Patient Experience Data ✅Patient Remuneration in patient-pharma interactions ✅ Patient Engagement In Translational Research

Excited to discuss methods for evaluating impact of public and patient engagement in HTA - today HTAi HTAi Patients and Citizens Involve Interest Group

We'll be hosting an open session at the World Congress on #LungCancer on August 6. Join us to learn more about our work, the tools available to adapt & pilot in your country, and share your ideas & needs for accelerating #precisionmedicine. Interested? ✉️ow.ly/kFGY30souac

#SafeMotherhoodWeek brings together key stakeholders,including you to tackle the issue of maternal rights. Our 2022 theme is “Upholding maternal rights in times of crises”. Hear Helena Harnik of The Synergist & share our call to #investinMothers Join us: bit.ly/3Sf7Pju

Interesting presentation from Claudia Egher on Standardizing patient engagement in drug development. And the role of Made WITH Patients in facilitating the embedding of patient engagement in the ecosystem. Looking forward to the discussion on going beyond tools and standardidation.

Dear network, please join me in celebrating the people & initiatives at the forefront of the global #PatientEngagement movement. Nominate someone & submit your great efforts for the first “Made with Patients” award: patientengagement.synapseconnect.org/campaign/made-… #MadewithPatients #PatientEngagement

Don't miss out on the Made With Patients Awards - just 5 more days to nominate someone & submit your initiatives! patientengagement.synapseconnect.org/campaign/made-…

Final days! Don't let that inspiring individual in your team or beyond go unnoticed. Seize this opportunity to recognize their valuable contribution the healthcare space & nominate them for the "Made with Patients" Awards now patientengagement.synapseconnect.org/campaign/made-…

Anca Toma Nicholas Brooke (Made WITH Patients): "I deeply believe in collaboration. I was born with that. But it's so hard to properly describe true collaboration unless you are here and truly feel it. We are here building a system to change a system and be super smart with the resources we have."

Absolutely thrilled to have discovered many excellent patient engagement initiatives and champions and to reveal the winners of the Made With Patients Awards! Take the time to explore the winners! lnkd.in/eTr_n9Uw

Join me in celebrating the people and initiatives shaping the #PatientEngagement space today. Who are you nominating?

Only 10 days left to nominate for the Made with Patients Awards 2024 🎉 ✨ Submit your nominations for champions and initiatives before it is too late! 🔗 eu1.hubs.ly/H07XvgB0