“It’s racism. It’s medical racism. It’s systemic racism. From the training for doctors to clinical care. The only difference is my child is Latino” #cysticfibrosis #talesofmissednewbornscreening

What percent (%) of patients with CF are Hispanic? If you missed our October PINE 🌲session on CF presented by Dr. Pryor of Colorado Pulmonary and Critical Care Fellows you can watch it on this link: thoracic.org/members/assemb… #cysticfibrosis #disparities #PINE

A new #cysticfibrosis diagnosis is scary enough; imagine if you couldn't get accurate information about the disease in your native language. This is what happened to Cesar & Nora Hernandez, whose 16 y/o son Alex has #CF. Hear more from them in our upcoming #CFMasterClass series!

Please watch and share with the #Hispaniccommunity Center For Latino Patients With CF Latina Magazine latinpress

If you are affected by the recent changes Bryon has made, please reach out and talk with your #cysticfibrosis team

Cystic fibrosis occurs in children of all races and ethnicities around the world

💥 new research adding new to the knowledge about health disparities in Latino and Hispanic people with CF!

Grateful to ⁦CDC⁩ ⁦Cystic Fibrosis Foundation⁩ and The Legacy of Angels Foundation for supporting our work to achieve equity in CF diagnosis ⁦Lurie Children's⁩ ⁦Stanley Manne Children's Research Institute⁩ ⁦NOAACF⁩ ⁦Dr Meghan McGarry⁩ luriechildrens.org/en/news-storie…

We need newborn screening and genetic tests that work in ALL populations. We need to change education and teaching so all medical providers know CF occurs in ALL races and ethnicities

But most important the medical community needs to treat all people with kindness respect and compassion.

Happening tonight! Please join our virtual #cysticfibrosis educational session! eventbrite.com/e/genetica-y-d…

Cystic fibrosis gene mutations that are more common in Hispanic or Latino people are not included in many newborn screening programs. This means families are incorrectly told their child does not have CF

For Hispanic Heritage Month, we celebrate all the Latino/Hispanic people with cystic fibrosis and their families! #HispanicHeritageMonth

A cohort study in Pediatric Pulmonology examines racial and ethnic disparities in cystic fibrosis detection in the California newborn screening program buff.ly/4e7whiD #ebneoalerts #equity4babies #EBNEOEquityAlerts #neotwitter #neoEBM

📅 October 3 at 2 p.m. ET: Join us for the next NIMHD Director’s Seminar to explore the history and impact of residential segregation on Hispanic and Latino health with Dr. Rudolph Rodriguez from UW Department of Medicine. bit.ly/3zhdm5x #NIMHDSeminar #HispanicHeritageMonth