Great to see our colleagues. The wonderful children's epilepsy nursing team Lancashire Paediatric Epilepsy joining twitter too.

Thank you to the Trust Board members from Chorley & Royal Preston who came to our fab Friday feedback session. It was great to have your interest and support.

We are really grateful to Jack and Chloe, who came to Chorley & Royal Preston today especially to help us showcase our service.

So impressed today by the team’s adoption of your work and the positive impact for our patients and their families. I’m sure the team will be delighted to share their experiences

It's so encouraging to get this shout out from #HellomynameisAilsa 💙 Privileged to be working in the fabulous NHS AcademyOfFabStuff

On #halfterm this week and looking for things to do? Why not check out our ‘Leisure Activities’ leaflet: bit.ly/2Grz5e2 If you have any suggestions of resources / activities we could add, or photos of your family out having fun, please email [email protected]

Personalised care in action. It’s actually so simple...Don Redding @CharlotteAugst

Hello Claire. Horay you are now a tweeter too.

A special shout out today, on Rare Disease Day, to all the wonderful children and young people we are priveleged to work with.

Looking for an lovely psychologist to promote the value and importance as part of the MDT on a national study day in July held in Preston. A great opportunity to promote the profession & patients with long term conditions Please email me for more info [email protected]

Draft of our fundraiser poster. See you there! 🍩

Our team is proud of our Consultant Dr Christian De Goede

Great news.

Two new articles: one about data results from the NURTURE study & pre-symptomatic treatment of infants with Spinraza: bit.ly/2JeC8rI; & a summary from Dr Alex Murphy of a study of longer-term results of the nusinersen trials by Darras et al: bit.ly/2w1aGES

We saw William and Thomas in clinic this morning. They are fantastic boys, setting a great example of being active and enjoying exercise. justgiving.com/Alison-Porter1…

Our physio Andrea Selley Art represented the team at The North Star Annual Meeting in London this week. The network is all about improving care and research in Duchenne Muscular Dystrophy. We are looking forward to hearing an update and sharing the learning.

Ready to start our neuromuscular study event. Looking forward to an informative, participatory and fun afternoon.

We had a great study afternoon yesterday. Connection, conversation & idea sharing. Thanks to all the participants from across the region for their enthusiasm to improve care for C&YP with neuromuscular conditions. Christian De Goede Kelly Parkinson Claire Goulden Andrea Selley Art & Ruth

At yesterday's training event we had a workshop on exercise and activity in neuromuscular conditions. Postcards of the sketchnote below were given out as a reminder. They went down well. Feel free to print or share.

Members of the Children's Muscle Team children's muscle team are attending a study afternoon on #SMA hosted by the Manchester Neuromuscular team.