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16 risk loci for #SpontaneousCoronaryArteryDissection MetaGWAS 9292 Ctrl+1917 case SMC Matrix: COL4A1/2, HTRA1, ITGA1, FBN1, TIMP3, THSD4 Coagulation: F3 Opposite genetic link b/w #SCAD & CAD!🤠 Dr. David Adlam & N Bouatia-Naji, PhD labs Nature Genetics 2023 nature.com/articles/s4158…

SCAD AND MENTAL HEALTH – CONTRIBUTE TO RESEARCH! Edinburgh Napier University study to investigate the prevalence of mental health issues in SCAD patients. If you are a UK-based SCAD patient, please fill in this questionnaire before 31 July. survey.napier.ac.uk/n/zz8ba.aspx.

LIVE STREAMING Mayo Clinic Presentation 6/16 @ 7:30pm (CDT) on SCAD Research Inc. FB page. Drs. Hayes & Tweet will present research w Q&A: Before 7:30pm (CDT) click facebook.com/events/3507787… Note: Although not required to log in to watch, you must log in to ask questions online.

Terrific Grand Rounds Smidt Heart Institute at Cedars-Sinai by Esther Kim on #FMD 📌prevalence 4-6% 💃🏻disproportionately affects women 💔multi focal most common 🧩present as HTN, stroke, tinnitus & seen in #SCAD ✅>50% multivessel involvement

A Bendigo nurse is on a mission to raise awareness of fibromuscular dysplasia (FMD) after losing her only sister to the rare disease and receiving her own life-changing diagnosis. abc.net.au/news/2023-07-1… BendigoHealth ICU

Congratulations tinachrys and all those behind the #ukfmdstudy 🥳 Great news for our #fmd community in the UK, we know it’s taken a lot of you and your teams time and effort!

Fibromuscular dysplasia, or #FMD, is a condition in which abnormal cell development in the artery wall can lead to serious health consequences. The FMD registry, which is managed by @mcorrp at Michigan Medicine, has now expanded to international centers: prunderground.com/the-fibromuscu…

Cardiology Grand Rounds this Friday. Daniella Kadian-Dodov, MD of Icahn School of Medicine at Mount Sinai presents "Fibromuscular Dysplasia: Looking Beyond the String-of-Beads" -in person and via Zoom. #CME available. Register here: texasheart.org/event/texas-he… #GrandRounds #Cardiology #FMD Daniella KadianDodov

#ImagesinVascMed - 68-year-old female with presented with chest/back pain. Imaging revealed 5.5cm abdominal aortic aneurysm. During endovascular repair, ‘string-of-pearls' renal arteries noted, consistent with fibromuscular dysplasia. @TobyRichardsUCL buff.ly/3NWma4W

In the latest issue: Dr. Kądziela and colleagues share short- and long-term outcomes of renal artery angioplasty versus stenting in patients with fibromuscular dysplasia. #FibromuscularDysplasia buff.ly/49Hi9dh

In honor of #WorldHypertensionDay, we share a classic Patient Information Page on #hypertension, including diagnostics, meds, and more! Image shows correct positioning for measuring blood pressure doi.org/10.1177/135886… Written by Shireen Elizabeth Ratchford

University Hospitals FMD and Arterial Dissection support group webinar "Celebrating FMD Awareness Month and Misconceptions about Fibromuscular Dysplasia: The Most Important Facts Learned from the US Registry" with Heather L Gornik and Dr. Jeffrey W Olin youtu.be/t1CUBIaUU6w?si…

#fibromusculardysplasia #FMD included as a possible cause of chronic mesenteric ischemia in this Cleveland Clinic journal of medicine article. ccjm.org/content/91/9/5…

A major driver of FMD has been identified by a team of scientists incl our Director Prof Prof Jason Kovacic. The Nature Cardiovascular Research study could help lead to new treatments for the disease which effects ~5% of adults and can cause stroke, heart attack + kidney failure: victorchang.edu.au/news/cause-fmd…

We're excited to share this Mount Sinai Health System Icahn School of Medicine at Mount Sinai press release about the paper published today in nature tinyurl.com/yc664pat "the team said changes in the gene UBR4 played an important role as a key driver of FMD" Dr. Jeffrey W Olin Prof Jason Kovacic

nature.com/articles/s4416…

The research update webinar video is available on our YouTube channel. Thank you Dr. Jeffrey W Olin and Prof Jason Kovacic for updating our patient community on this research! #FMD #FibromuscularDysplasia #mtsinainyc Mount Sinai Health System Victor Chang Cardiac Research Institute youtube.com/watch?v=fcGTbC…

Virtual #FMD support group led by Heather L Gornik of UH Harrington Heart & Vascular Institute in collaboration with Pam Mace, RN of @FMDarteryis garnering the participation of patients worldwide. uhhospitals.org/for-clinicians…

#FMDgenetics study update with Dr. Jeffrey W Olin and Prof Jason Kovacic is available on our YouTube channel! youtube.com/watch?v=fcGTbC… #fibromusculardysplasia #fmdresearch #supportfmdresearch #geneticsoffmd

Join our Strand of Strength during the FMDSA's Annual Appeal! Every donation—big or small—adds a ‘bead’ to our Strand of Strength. Add your bead today at fmdsa.org/donation-form/ and help us reach our goal to keep making an impact! #StrandOfStrength #FMDSAStrong #fmdsa