Families Speak Out #EE19 (@familiesout) 's Twitter Profile
Families Speak Out #EE19

@familiesout

Families Speak Out are a group of parents & Health advocates including Aisling McNiffe, Olive O’Connor & Colleen Worthington who are running in the #EE19

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calendar_today22-04-2019 21:19:02

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Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

You have ignored this for years. You clapped yourselves on the back when you brought in the MenB vaccine for the baby vaccine schedule (which is great) but what about those children with debilitating conditions who are on the at-risk list? Do you think that’s fair? #MenB

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

It’s a two-tier system and people are being forced to pay for the MenB vaccine for their vulnerable children for €300 but some have paid €480! Do you think that’s equitable? For a government who says vaccines save lives yet don’t provide them when they are recommended hmm #MenB

Amanda Spencer (@spencercheats) 's Twitter Profile Photo

If you know or have know of anyone with a neurological condition or a family member struggling, can you pls RT so we can help Simon Harris TD and Department of Health understand the need to #investinneurology

Virgin Media News (@virginmedianews) 's Twitter Profile Photo

#WATCH Hospital consultants who are fed up with the length of time patients have to wait to see them are speaking out Half a million patients are currently waiting for appointments @TVMichaelRyan #VMNews #CareCantWait IHCA Laura Durcan Stephen McMahon Irish Nurses & Midwives Organisation

Dr. Kieran Moore (@drkieranmoore) 's Twitter Profile Photo

Well done to Drs Colleran and Durcan / IHCA. This is what we need. Will the government listen? 🤔 What's that sound? A low grumble walrus like at first, rising to the fomenting cackle of cranky geese. Ah yes, disaffected back benchers. An election is on its way. #CareCantWait

RTÉ News (@rtenews) 's Twitter Profile Photo

Very young children living in hotels due to family homelessness struggle to learn to walk or crawl because of a lack of space rte.ie/news/ireland/2…

Raymond Shannon (@raymond18161478) 's Twitter Profile Photo

No consultant No senior psychologist No child care leader No clinical nurse manager These should be in place according to vision for change 2006. That's for a population of 50 000. Now wex.south pop is now 80,000. I never give up fighting for CAMHS and the children Wexford

Sandra (@nidhubhda) 's Twitter Profile Photo

Crumlin Hospital informed me that a 4 year waiting list exists for dermatology out patients appointment. Advice get your doctor to write a referral for SVUH as patient will be 16 at end of month. Dochreidte

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

Before I forget any word on the MenB vaccine for those kids on the at-risk list for whom it’s recommended by HSE National Immunisation Office (NIO) HSE Ireland Department of Health Eilish O'Regan ? It’s so rude that nobody ever replies. If a vaccine is recommended it should be supplied free of charge! #MenB Simon Harris TD

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

No wonder Carers are sick to the teeth of begging for EVERY DAMN THING when the HSE Ireland Simon Harris TD Leo Varadkar @FinianMcGrathTD @KZapponeTD Department of Health HSE National Immunisation Office (NIO) just ignore all correspondence, emails, letters, phonecalls,tweets, letters in newspaper, pleas on the radio/tv!

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

Is it any wonder Carers suffer from mental health issues and depression. I mean you may as well be talking to the wall as to the Govt et al! And if I hear this line...” lessons have been learned...” one more time I’ll 😡🤬😡🤬

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

So delighted for all those families who have children with SMA who finally got their life changing & life saving drug Spinraza #Spinraza but sad for the over 18’s who did not. FriendsOfGrace