Extra Special Kids (@esk_ireland) 's Twitter Profile
Extra Special Kids

@esk_ireland

The ESK Group of Ireland has 200 members. We are all mums of children with life limiting conditions. Sign the Petition! chng.it/jBnhWPzQ via @Change

ID: 799724714189062144

calendar_today18-11-2016 21:23:24

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Noreen Curtis (@achilldoc) 's Twitter Profile Photo

The Irish Times There are no words ... Also The Irish Times - come and work an 80 hour shift with me and then write about that. I promise to wake you for every call. Simon Harris TD @DonnellyStephen Leo Varadkar @MichaelRingFG

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

You have ignored this for years. You clapped yourselves on the back when you brought in the MenB vaccine for the baby vaccine schedule (which is great) but what about those children with debilitating conditions who are on the at-risk list? Do you think that’s fair? #MenB

Raymond Shannon (@raymond18161478) 's Twitter Profile Photo

No consultant No senior psychologist No child care leader No clinical nurse manager These should be in place according to vision for change 2006. That's for a population of 50 000. Now wex.south pop is now 80,000. I never give up fighting for CAMHS and the children Wexford

Sandra (@nidhubhda) 's Twitter Profile Photo

Crumlin Hospital informed me that a 4 year waiting list exists for dermatology out patients appointment. Advice get your doctor to write a referral for SVUH as patient will be 16 at end of month. Dochreidte

martinmcmahon (@williamhboney1) 's Twitter Profile Photo

So it turns out that privatization of #CervicalCheck led to sub contracting, sub sub contracting and sub sub sub contracting with quality reducing all the way along the line. Exactly what happens with all priviatization. Who'd a thunk it?

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

Thanks to everyone who RT’d or shared my letter elsewhere, it’s much appreciated. Here’s another chance if you didn’t yet! Thank you 🙏 google.com/amp/s/www.iris… #CareCantWait #clearthelisteveryday

Make Way Day (@makewayday) 's Twitter Profile Photo

As #MakeWayDay campaigners we know that most people’s heart is in the right place. Most obstacles are due to lack of awareness. Parking on the footpath is the top blocker and we’ve enlisted the support of Assistant Commissioner Dave Sheahan of An Garda Síochána

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

It’s flu season. So get the vaccine if you’re on the at risk list. It’s available now in most Doctors. It’s really important & this year the Aussie Flu is coming, it’s not good. Jack is immunosuppressed so the whole family get vac’d. Just a reminder for those who do vaccinate.

Nev Ross (@nevrossdublin) 's Twitter Profile Photo

For Carers out there It’s finally Tuesday, that means it’s 6 more days until it’s Monday again and then 365 days until it’s another year, no weekends off, no holidays to recharge, no payment, not recognised, just a cycle of #Day2Day providing #24hrcare Regina Doherty MEP Mark Fitzpatrick....

arlette lyons (@arlettemlyons) 's Twitter Profile Photo

I’m in search of a charity in Dublin that would allow my lovely 16 year old to do some volunteer work he is in ty and is looking to do 2 weeks in October??? Any suggestions thank you

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

************TODAY********* there is a campaign outside Leinster House at 1pm, Some people will be wearing the Changing Places T-Shirts, Some are wearing yellow. The campaign is driven by the Adults Services Council in the CRC. #incLOOsion CRC Changing Places Ireland 1/2

Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️#Striving (@mcniffecent) 's Twitter Profile Photo

The adults are there in their own right representing people with disabilities. Their focus is Changing Places, Accessible Transport, Respite and Homecare packages. They will have copies of the CRC Prebudget Submission with them. Pls go along to support. CRC 2/2

Extra Special Kids (@esk_ireland) 's Twitter Profile Photo

thenewchildrenshospital.ie/index.php/2020… Pls read & share regarding the new children’s hospital fiasco! No date in sight for completion yet price tag is now €2.4 Billion!!! And no maternity Co-location for ill newborns so outcomes can’t & won’t improve so still at risk of death or disability. RT

Extra Special Kids (@esk_ireland) 's Twitter Profile Photo

Hold your precious children tight. In the past 4 mths we have lost 5 little children from our lovely little support group of medically complex children with life limiting illnesses. JackandJillCF LauraLynn, Ireland's Children's Hospice CHI at Temple Street @CMRF_Crumlin #LifeIsSoPrecious #AppreciateEachDay