We are seeking people living with SOD1 MND in the UK 📢 Clinical trial results for Tofersen show great promise. People have reported slower deterioration of their condition and, in some instances, their progression stopping altogether.

Heartbreaking news for Paul 💔 On Friday 26th July join us for a unique episode from Paul’s perspective. Watch the promo here:youtu.be/Kwmb_JvR3I4 Advice and support can be found at: itv.com/advice #Corrie

Our mission is to unite and accelerate the search for a cure.🔬 We need urgently to find effective new treatments for #MND/#ALS. But how are we doing this? Take a look at our programme of research to learn more about the critical work we're doing: ukmndri.org/research/

As we enter the summer vacation period we thought you might like to read the latest on the UK MND Research Institute that's in its first year of operation. We hope you find interesting. #united2endmnd #als #mnd united2endmnd.org/2024/07/26/dev…

Don’t forget to tune in tonight for our special episode of Coronation Street “Billy & Paul’s Special Day” told from Paul’s perspective. Dedicated to the wonderful #MND warrior Rob Burrow CBE. 8pm on ITV & ITVX

PLS RT⚠️A warning for Fellow Warriors, we’re not Disabled enough for a Disability Pass!!! 🤬Disney Walt Disney World

This 👇is shameful from Walt Disney World Disney #MND #ALS is a life limiting disease with no cure. People living with MND want to make memories with loved ones and not face this type of discrimination. Immediate work needs doing to change this Liz Kendall APPG on Motor Neurone Disease

Hey Walt Disney World Disneyland Resort this is so disappointing to hear. ALS/MND is such an underfunded, under reported terminal condition, it needs you more than ever to do the right thing and reverse this decision. Let Debbie enjoy your park with her family making memories 🙏🏻💖

Enough is Enough!! I will not sit back and watch vulnerable,newly diagnosed warriors be fed negative misinformation! We need to support each other!! 😡(receipts pending)

Debbie Whitehouse Nick Patients United2EndMND MotorNeuroneDisease David Setters James Smith please share far and wide

📢Have You Taken Our Audience Survey Yet? Take a break to share your thoughts on the type of content you would like to see from us. Your feedback is crucial in helping us create content that best supports the #MND community!📷 forms.office.com/e/xBgZakbAtk

We're proud to share we've committed £225,000 for bold early-stage MND research as part of our Catalyst Awards 🔬 This vital funding is only possible because of the efforts of our brilliant supporters! Find out more about the 3 innovative projects here👇 myname5doddie.co.uk/whats-on/artic…

The acting in Coronation Street has been incredible tonight Peter Ash who plays Paul and Daniel Brocklebank who plays Billy have done an incredible job with this MND storyline #Corrie

Our talented Peter Ash is up for Serial Drama Performance at this year's NTAs ✨ Vote now: nationaltvawards.com/vote #Corrie

Brian Brian Wallach - yes misinformation in our global small #als #mnd community, has sadly spread & caused much damage including false hope.. My blog post on misinfo in my “Devil is in the detail” series. 2 yrs old but 100% relevant today (1/3) & BW Lee onein300.com/2022/06/26/mis…

onein300.com/2022/06/26/mis… …..we must counter, when we can, with science/facts, both calmly & kindly. We can also point patients, families & friends to ALS/MND Alliance organisations with a science directorate for scientific clarification/validation & finally... (2/3) #als #mnd

…the results of misinformation can clearly be seen over last 3 yrs with false hope/unreasonable expectations of drug candidates as well as being divisive. I fear continued misinformation/lowered standards might delay ‘truly’ effective treatments for #als #mnd BW Lee (3/3)

My Amazing team! 🥰

Oh Dear don’t start me off!! 😂😂

RIP JORDY 💔