Good news! Our article “ #Ethical Perspectives on Treatment Options with #SpinalMuscularAtrophy Patients” ncbi.nlm.nih.gov/pmc/articles/P… received enough downloads to be a #TopDownloadedArticle in its journal. Basil Darras Muscle&NerveEditor ANA Journals Women Neurologists Group AANEM

Our review on #spinalmuscularatrophy is published in The Lancet Neurology
authors.elsevier.com/c/1iTcE5FFzKyQ…

In our February 2024 issue: a personal view on spinal muscular atrophy therapeutics by Basil Darras, Crystal Yeo, MD PhD, and Eduardo Tizzano thelancet.com/journals/laneu…

And Lifeline interview with Crystal Yeo, MD PhD: thelancet.com/journals/laneu…

Our review on #spinalmuscularatrophy is published in The Lancet Neurology
authors.elsevier.com/c/1iTcE5FFzKyQ…

Thrilled to get to spend some time reuniting in person with my #AANPALF classmate the wonderful Crystal Yeo, MD PhD this evening at #AANAM ! #AANadvocacy American Academy of Neurology

Catching up with Crystal Yeo, MD PhD, coming all the way from Singapore! She gave a brilliant CME talk for Women Neurologists Group on neuromuscular updates last year! #AANAM

Reference article 2 published in ANA Journals

Basil Darras

onlinelibrary.wiley.com/doi/full/10.10…

Refernce article 1 published in Muscle & Nerve

pubmed.ncbi.nlm.nih.gov/35218574/

#AANEM_podcast
Dr. Beecher interviews Drs. Rad and Yeo (Crystal Yeo, MD PhD ) on Spinal Muscular Atrophy, & its management in childhood and adulthood, highlighting cost effectiveness challenges.

#SMA AANEM Muscle & Nerve Harvard Medical School UW Neurology

aanem.org/Education/Podc…

Muscular Dystrophy UK is running a number of virtual muscle group meetings, throughout July and August, that you may be interested in joining. Find out more info and book your place: bit.ly/3uww2ZC Muscular Dystrophy UK

Excellent video summarising the importance of newborn screening for SMA by the Genetic Alliance: #Vimeo vimeo.com/679978338?ref=…

Our paper on #ethical perspectives in #SpinalMuscularAtrophy is open access at Annals of Neurology. Do you know the cost analysis of the 3 innovative therapies? See onlinelibrary.wiley.com/doi/10.1002/an… #NeuroTwitter Women Neurologists Group Aaron Berkowitz Rachel Salas MD, MEd
Tracey Milligan, MD, MS, FAAN, FANA, FAES Stacey Clardy MD PhD

Our paper on #ethical perspectives in #SpinalMuscularAtrophy is open access at Annals of Neurology. Do you know the cost analysis of the 3 innovative therapies? See onlinelibrary.wiley.com/doi/10.1002/an… #NeuroTwitter Women Neurologists Group Aaron Berkowitz Rachel Salas MD, MEd
Tracey Milligan, MD, MS, FAAN, FANA, FAES Stacey Clardy MD PhD

Great paper! Important for all neurologists to read as we are now treating formally untreatable diseases and they are expensive treatments. Let's do this right and do our best to educate our patients. So happy to see the increasing treatments for SMA!

What ethical perspectives are there on SMA treatment? See our paper at onlinelibrary.wiley.com/doi/10.1002/an… Basil Darras Muscle&NerveEditor Women Neurologists Group Aaron Berkowitz Tracey Milligan, MD, MS, FAAN, FANA, FAES Nina Riggins, MD, PhD, FAAN, FAHS, UCNS Diplomate Arpita Lakhotia, MD Jennifer Bickel Kara Stavros, MD, FAAN Michael Okun Northwestern Neurology Residency Spinal Muscular Atrophy UK SMA-Europe Cure SMA

What ethical perspectives are there on SMA treatment? See our paper at onlinelibrary.wiley.com/doi/10.1002/an… Basil Darras Muscle&NerveEditor Women Neurologists Group Aaron Berkowitz Tracey Milligan, MD, MS, FAAN, FANA, FAES Nina Riggins, MD, PhD, FAAN, FAHS, UCNS Diplomate Arpita Lakhotia, MD Jennifer Bickel Kara Stavros, MD, FAAN Michael Okun Northwestern Neurology Residency Spinal Muscular Atrophy UK SMA-Europe Cure SMA

It’s SMA Awareness Month! Do you know the 3 innovative therapies? Risdiplam improves motor function in infants with spinal muscular atrophy Basil Darras Journal of Child Neurology Muscular Dystrophy Association NEJM #SpinalMuscularAtrophy #neurology #NeuroTwitter
answers.childrenshospital.org/risdiplam-spin…

It’s SMA Awareness Month! Want to know more about #SpinalMuscularAtrophy ? Basil Darras and I teamed with Child Neurology Foundation to provide a resource for families, patients and doctors childneurologyfoundation.org/disorder/spina… #NeuroTwitter Women Neurologists Group Child Neurology Society Muscular Dystrophy Association Spinal Muscular Atrophy UK Cure SMA @AANMember

It’s SMA Awareness Month! Want to know more about #SpinalMuscularAtrophy ? Basil Darras and I teamed with Child Neurology Foundation to provide a resource for families, patients and doctors childneurologyfoundation.org/disorder/spina… #NeuroTwitter Women Neurologists Group Child Neurology Society Muscular Dystrophy Association Spinal Muscular Atrophy UK Cure SMA @AANMember