“Kousek” po “kousku” a jednou to půjde 🥹

#NevzdávejSe #NeverGiveUp #rememberwhoyouare #rememberwhereyoucamefrom #DržSe #ANepřestávejVěřit #ZázrakyNepřicházíJenTak #smastory #storyofmylife #spinalmuscularatrophy #slabostnenislabina #Atrofka

Mám za sebou první letošní intenzivní rehabilitace 💪
Děkuju Cortex Neuro Centre a všem terapeutům za protahování, dřinu, ale taky trpělivost a srandy.
Těším se na příště 🙏

#MakatSeMusí #NicNeníZadarmo #CortexNeuroCenter #neurorehabilitace #spinalmuscularatrophy #Atrofka

Amazing for days like this when i have my mini attached to my hip. Enjoying the day out and about and so thankful #Müv #Müv Fl #AltmedFlorida #Disposable #Indica #Hybrid #Sativa #DoMoreMüv #FloridaCannabis #FloridaMMJ #MuscularDystrophy #SpinalMuscularAtrophy #FloridaCannabis Club

The treatment allowed the girl to sit alone and play with her toys for two minutes after seven months of therapy. Explore how: bit.ly/3Up7ldx

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews

Introducing this week’s Digital Spotlight. Sponsored by Roche, this week we will be sharing the experiences of patients, advocacy organisations and HCPs with spinal muscular atrophy. Read more here: rarerevolutionmagazine.com/digital_spotli…
#SpinalMuscularAtrophy #SMA #RareDisease

Researchers note that, while treatments have expanded, there exists a “persistent need for validated biomarkers” to measure individual responses. bit.ly/3UQFzIJ

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews

Looking for a new SMA specialist? Our locator tool helps you find providers conveniently near you. Check it out: bit.ly/4aY0tuK

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

After living with SMA for three decades, Kevin Schaefer has learned to live well with his disease, not fight against it. If you’re trying to do the same, these tips might help: bit.ly/3Wo41SK

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

New article posted on Rare Disease Advisor #SMA : 'Hypoxemia and Hypotension Reported During Spinal Fusion in SMA.' Read the full article here: buff.ly/4bhvhal #spinalmuscularatrophy #neurology #raredisease

Catch up on the #SMANewsToday Column of the Week here: bit.ly/3Qfczre

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

The past couple of years have forced Brianna Albers to build her muscle of persistence, but her “dogged stubbornness” has paid off. bit.ly/3JzyWUD

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

All stakeholders 2gether wid patients 2 improve d lives of those who go thru purgatory while battling the one of d most debilitating, progressive n most 'expensive to manage' diseases ever known, #SpinalMuscularAtrophy

വീണ്ടും കേരളം, അപൂർവ്വ രോഗമായി SMA ബാധിച്ച എല്ലാ കുട്ടികൾക്കും സൗജന്യ ചികിത്സയും മരുന്നും.. കൈ അടിച്ച് സോഷ്യൽ മീഡിയ. #FreeSMAMedicineKerala

വിശദ വാര്‍ത്ത ലിങ്കില്‍ : malayoramnews.com/2024/04/sma-fr…

#Malayoram #Malayoram News #NewsMalayalam #SMA #SpinalMuscularAtrophy

🎧 The journey with #SpinalMuscularAtrophy (SMA) is unique for everyone, and the SMA My Way podcast is here to recognise and celebrate that.

Join us to listen to the powerful stories of our SMA My Way Champions: spkl.io/60124N6Mr

If SMA begins to affect muscles involved in breathing, a pulmonologist or respiratory therapist can help. Explore how: bit.ly/3wkM1Op

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Is traveling on your summer to-do list? What events have you looking forward to warmer weather?

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

#SMA MyWay Champion, Louise, shares her experiences of growing up with #SMA and the transition from relying on her family to relying on personal care assistants. Read her blog here: spkl.io/601542Qq1 #SpinalMuscularAtrophy

Newborn twins fight rare genetic disease, family says itll costs millions of dollars to save their lives #SpinalMuscularAtrophy #GeneticResearch #Healthcare #MedicalScience #RareDiseases [Video] New parents are fighting to save the lives of their newborn… dlvr.it/T6BtkJ

Specialized equipment can make navigating daily life and even symptoms easier. Explore how you might benefit: bit.ly/3UF2dTY

#SpinalMuscularAtrophy #SMAAwareness #SMACommunity #SMALife #LivingWithSMA

Findings out of China suggest “plausible biological explanations” for some of the associations. Read about them here: bit.ly/3Uh0hjd

#SpinalMuscularAtrophy #SMAResearch #SMANews Today #SMANews