During closing submissions to the Infected Blood Inquiry, a single thread ran through core participants submissions - a fear that government would not be true to the Inquiry’s recommendations. Sadly, that fear has become a reality. Hearings to resume next month.

This is no time to engage in the luxury of cooling off or to take the tranquilizing drug of gradualism - Martin Luther King Hillsborough Law Now.

It’s world Haemophilia day and what a great opportunity to share a video created by our Youth Ambassadors which proves having a bleeding disorder of any type doesn’t have to define you or hold you back. What a team Haemophilia Society proud of you all. players.brightcove.net/5987230677001/…

Happy World Haemophilia Day, everyone. Finally, women and girls being recognised on an important day for our community. #WorldHaemophiliaDay

Arrived in Dubai for the WFH Comprehensive Care Summit. Each year the WFH carries out youth training for successful applicants from around the world. Very proud to chair the WFH Youth Committee and be a part of training future generations. #WFHCCS #Dubai

First talk I’ve attended about haemophilia care and AI. #WFHCCS2025

On Weds/Thurs next week, the Infected Blood Inquiry will be sitting again to examine governments response to compensation. The delays are causing significant mental health issues within the community. I’ll be on Times Radio at 8:35 this morning to discuss. The Haemophilia Society's Inquiry Team

Arrived in Geneva to attend the World Health Organization (WHO) Essential Medicines List meeting on behalf of WFH Current plans for the list risk a dangerous return to the past for haemophilia and VWD with non-pathogen reduced treatments being recommended as the standard of care. #Haemophilia

Today, the WFH joined in the #WHO 25th Expert Committee Meeting on Selection and Use of Essential Medicines. Radoslaw Kaczmarek & Clive Smith delivered a statement outlining critical updates needed to align the EML with international clinical guidelines. ➡️ bit.ly/3RN97V9

The Infected blood Inquiry will once again be sitting in London tomorrow and Thursday. I’ll be on BBC Yorkshire at 6:30pm tonight and BBC Radio 4 Today tomorrow morning at 7:50am to discuss the ongoing issues around the payment of compensation to the infected and affected.

The Infected Blood Inquiry reopens hearings today for 2 days of evidence about the government's response to its compensation recommendations. Our Chief Executive Kate Burt is part of a panel of witnesses to give evidence this morning.

Some might say - it is better to be right, than to be rushed. Fast and wrong, seems to be the mantra. #InfectedBloodInquiry

This week, we've been in attendance and giving evidence at the Infected Blood Inquiry. The inquiry re-opened for two days of hearings to assess the timeliness and adequacy of the government’s response to compensation. Read more here. haemophilia.org.uk/pi_posts/minis…

The BBC are airing an omnibus of ‘You Do Not Have To Say Anything’ on Saturday at 9pm. Better than any party or rave. Stay in. Join us in looking at the real criminal justice system. The people. The wigs. The heartache. The humour. The stories. ❤️

Our next film “The British Blood Scandal: Poisoned at School” is coming to ITV and ITVX at 9pm on the 20th of May! Read about it on our website here - candour.tv/films/the-brit…

Have your say on new guidelines which set the standards of care for all haemophilia centres in England. NHS England wants your feedback on its revised service specification for the treatment of people with bleeding disorders. Find out more here haemophilia.org.uk/have-your-say-…

The Infected Blood Inquiry will publish its additional report on compensation on 9 July. Its Chair, Sir Brian Langstaff, took oral evidence in May from campaigners, civil servants and Nick Thomas-Symonds, the minister with responsibility for delivering compensation. #contaminatedblood

If you are a barrister or member of the judiciary with a disability we would love to interview you on our podcast 🎤 Please send us a DM and share with anyone you think would be interested 🎤

We're bringing you a packed agenda for this year's conference exploring treatments, public inquiry developments and managing your bleeding disorder throughout your life. All in a friendly space where you can connect with others with similar experiences. haemophilia.org.uk/events/events-…

This Saturday, we'll be holding our annual Service of Remembrance and Thanksgiving - in memory of all of those with bleeding disorders who died due to treatment with contaminated blood products. The service will be live-streamed on YouTube, link below. youtube.com/c/StBotolphwit…