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📣 The APPG on #LongCovid is formally registered and plans are underway for the work ahead! More information can be found on the APPG's webpage. If your MP is not an Officer/Member, do ask them to join (if eligible)! Link below ⬇️ #APPGLongCovid

🚨1/3. UK #LongCovidClinics - the real situation!🚨 In light of figures frequently quoted in Parliament of the number of #LongCovid Services that are supposedly operating in the UK, we submitted Freedom of Information requests to every UK NHS Trust, Health Board & ICB.

Long Covid Support 🌍 This is true I’m afraid. I was meant to start with the Doncaster and Bassetlaw Teaching Hospitals Doncaster long Covid clinic. After months of paperwork& planning got an email to say oh well the funding is only until March 2025& ‘essential training’ would take that long so offer withdrawn and ‘take care’.

📣 1/3. The #LongCovid community has been crucial in defining the condition & advocating for better outcomes. On #LongCovidAwareness Day, we invite you to join us for our Community Strategy Launch! 🌟15 March 2025, 2pm GMT - Lyric Theatre, Hammersmith, London W6 0QL, & online🌟

💖 This #ValentinesDay we send our love out to the #LongCovid community. What would it say on your cupcake? ⬇️

📣 Is your MP a Member of the #LongCovid APPG? If not (& they are eligible to join), urge them to become a Member of this vital cross-party platform & attend the meeting for MPs (& Peers) only on 26 Feb.! We have drafted suggested email content - link below. ⬇️ #CovidIsNotOver

🔥1/3 Fireside Chat from The #LongCovid Clinic - What You CAN Do! Weds 26 Feb 2025, 6pm GMT - Non-Restorative sleep & Autonomic Rehab. Binita Kane & Helen Oakleigh talk with Dr. Raouf (Ron) Gharbo, Director of Autonomic Rehabilitation at Virginia Commonwealth University. ⬇️⬇️

As International Long Covid Awareness Day approaches, we are releasing our latest survey for Keyworkers with #LongCovid. We’ll share this with Department for Work and Pensions and others to highlight the need for compensation scheme NOW! surveymonkey.com/r/D3HJH5Z Please share widely our friends in the LC world, Thanks!

On Covid-19 #DayofReflection we remember all those we have lost, we think of the millions suffering now with #LongCovid, and we remind the world that Covid Is Not Over.

This is heartbreaking news. Ondine was a force of nature and had a huge impact in her relentless drive to secure recognition, research and rehabilitation for people with #LongCovid. It was a privilege to have known her, and my heart goes out to everyone who knew and loved her

Dr Amir Khan GP Long Covid SOS @longcovidsos.bsky.social Chris Packham did you know it's #LongCovidAwareness day? Many of us can't engage with the natural world the way we used to thanks to #LongCovid, we need people like you to advocate to #cleanTheAir. P.s., please read audubon.org/magazine/new-b… #HorizontalSpoonbillClub

Proud to have co-authored a new Long Covid Support 🌍 Long Covid Kids / [email protected] report on LC clinics in UK w/ Margaret O'Hara Oonagh Cousins Sammie McFarland - See you over there 🦋 @GarethEvans1977 Michael Alexander Mike Ormerod Helen Goss Kirsty Stanley. Services must a) not close & b) meet the needs of #pwLC. 🙏 #ClosingClinics

New Long Covid Support 🌍 Long Covid Kids / [email protected] report showing the sorry state of affairs for people desperately seeking #LongCovid services in England, at the same time as drives to reduce the welfare bill - will the government join the dots?!

📺 1/2 Thanks to David Gregory-Kumar & BBC Midlands Today for covering our #LongCovid clinics report (written with Long Covid Kids / [email protected]) & our Trustee Margaret O'Hara for speaking: “These people could work - but they need medical help, they don’t need a life coach” Report link ⬇️ #ClosingClinics

#LongCovid was on 5Live today. If you have the energy, please text 85058 thanking them for covering it and asking them to continue the conversation. If they’re flooded with thanks, they’re more likely to keep covering it.🙏 Long Covid Support 🌍 Long Covid Kids / [email protected] youtu.be/TepQ_S3oDpk?si…

📣📍George’s Journey update!! Our fantastic fundraiser George Brill has made it to St. Ives today on his #EndToEnd walk, and has grabbed himself a very well deserved Cornish pasty!! 🤩Link below to donate to George’s #LongCovid Support fundraiser. ⬇️

📣 As we hear news from the U.S. that the Office of #LongCovid Research and Practice is apparently being closed, we thought we’d bring another video to you for #LongCovidAwareness month! A huge thank you to Maria Van Kerkhove of World Health Organization (WHO) for making this recording for us. 🙏

📣 1/3. ONLINE EVENT!! Join Long Covid Support & Long Covid Kids / [email protected] for a webinar to present & discuss findings from our recent report on #LongCovid healthcare services in the UK. When: Tuesday 29th April 2025, 4pm UK time Register on Eventbrite - link below ⬇️ #ClosingClinics

💖 This September, Lisa is running the #WindsorHalfMarathon to raise awareness and funds for our charity. Her partner lives with #LongCovid and Lisa is running to bring hope and support to others affected. Cheering you on, Lisa!!👏 See the link below for Lisa’s fundraiser! ⬇️

1/3. On 14 May 2025, there will be a joint meeting for Parliamentarians between the APPG on #LongCovid and the APPG on ME. A main focus will be on research, with several guest speakers. Ask your MP to attend! More details below ⬇️ #WorldMEDay