Izzie 💙
@cfsuperstarsmum
Mum to a little CF superstar who makes me laugh everyday. #precisionmedforcf
ID: 567064306
30-04-2012 08:56:11
1,1K Tweet
454 Followers
498 Following
Hear hear. NHS England what on Earth is going on?! Why have you not sorted a deal for #Kuvan ? Why must people with #PKU continue to suffer? Daily Express #dailyexpresscrusade4pku Matt Hancock Boris Johnson NICE Blake Dark NHS
😡this still doesn’t offer equality of access to all parts of the #uk .Cystic Fibrosis Trust We didn’t fight for 4 years to still leave behind a sizeable part of our #cysticfibrosis community in #england STILL NOT good enough for CFers in🏴 #Kaftrio Blake Dark Chris Riches Marion Ferguson
The Daily Express is doing a great job with its crusading journalism. A teenage girl @lilyk_w is asking questions about discrimination and #kuvan and you’ve given her voice a megaphone 📣 and I’m immensely grateful for that. Daily Express Chris Riches Blake Dark Matt Hancock
Thanks Kate. We won’t stop until this outrageous financially-motivated #health #discrimination over #kuvan for #pku sufferers is stopped. NICE admitted it is just down to money. Matt Hancock Boris Johnson Department of Health and Social Care DHSC Media Centre NHS England NHS England Media @lilyk_w abdul kaciw
Pls RT - whatever country you live in #NoOneLeftBehind Vihaan Krishna Vihaan Mom 🚩 #TeamVihaan Vaishnavi FibrosisQuistica MECFA CF Get Loud Tanya Koorts beth Vanstone @Bells50587538 Izzie 💙 Fiveroses CF Team
WARNING: Wholesale energy prices have spiked over the last week, so it's plausible energy firms will pull the cheapest existing customer fixes & replace with costlier. If u are considering fixing, my best guess is go asap. Top tariffs list here moneysavingexpert.com/utilities/-are… Pls share
IMPORTANT Pls share In May govt announced decent help based on predicted 42% rise in the Oct to Apr energy price cap (that'd take a typical bill to £2,800) Now the rise for that period's likely to be 126% (£4,460 for a typical bill) Pls read why & my plea to the new PM Cont/d
5. In January a further 51% rise is predicted by Cornwall Insight taking a typical bill to £5,386/yr 6. The Jan prediction is likely in the right ballpark as we are 7 months through the 10 month assessment period. cont/d
New campaign for Daily Express alongside the Stroke Association and featuring Juliet Bouverie OBE - calling for better #stroke aftercare, reviews and more Department of Health and Social Care and NHS England investment in #thrombectomy access. Steve Barclay Rishi Sunak DHSC Media Centre