Edel O'Toole(@EdelOToole) 's Twitter Profile Photo

Delighted to be at @Lifearc with artist Andy Dakin and Dr Elena Giusto to showcase our Translational art collaboration showing the difficulties of life with severe ichthyosis. ISG UK Thanks to Dr Carleen Walsh and family.

Delighted to be at #LATSS2024 @Lifearc with artist Andy Dakin and Dr Elena Giusto to showcase our Translational art collaboration showing the difficulties of life with severe ichthyosis.  @ISG_Charity Thanks to @CARLEENWALGAL and family.  #rareskindisease #dermtwitter
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Edel O'Toole(@EdelOToole) 's Twitter Profile Photo

A novel inclusive protocol using care-givers as experts to develop Care-giver Reported Outcome Domains in rare skin disease. please retweet

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Dr Carleen Walsh(@CARLEENWALGAL) 's Twitter Profile Photo

Well done Edel, Andy & Elena. A fabulous project aimed at awareness of ichthyoss. Our children are delighted to have been involved. Our DD's wishes clearly captures the lived experience of skin disease. PPI in action

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