Thrilled to have ⁦Anna Evans⁩ from ⁦Cystic Fibrosis Trust⁩ talking about the campaign that led to the recent huge success of access to drugs AMRC intro to ppa. Fascinating

So proud that the fund we set up in memory of my friend Lindsay Riddoch is now funding research that will hopefully improve people’s lives. Today is a good day ☺️🤞🏼💓

tuc.org.uk/news/disabled-… Disabled people; ▪️Work 60 days for free per year being paid until 1st Nov. ▪️Paid 20% less than their non-disabled peers earning on average £2.10 less an hour. ◾️Lose out on £3800 pa compared to non-disabled peers. The #DisabilityPayGap has to end

Our #inspiringwords auction is now open🤩! It features books hand-picked by household names, who signed them and told us what the work meant to them. Browse to see who was inspired - and by what. 1/16 bit.ly/3naL3dE

Scratching your head about Christmas presents? Our Words That Carry On auction has some really big names donating their favourite reads.. and they could be yours to gift! Time to win all the xmas brownie points 🤓🎁

Thank you to Mayor of London, Sadiq Khan Sadiq Khan for the opportunity to speak about the huge sacrifices and challenges faced by people with cystic fibrosis in the last year. We talked about the impact of #COVID19, inequalities, and the support we need now and in the future.

Nearly 6 months since the first people with #cysticfibrosis started to be prescribed #Kaftrio, we hear from our Policy & Evidence Manager, Anna Evans, on the latest developments in access to CFTR modulators & our work to ensure access across the UK: bit.ly/3pw1gvl

Our cross-party report is out today on the impact on poverty of not maintaining the £20 uplift in UC and WTC. We recommend: 🔒Keep the uplift ↔️ Extend it to legacy and related benefits ❌Suspend the benefit cap Read the full report here: appgpoverty.org.uk/wp-content/upl…

OUT NOW - This DBC report reveals 82% of people, the majority of whom are disabled, have had to make stark choices; heating their homes or putting food on the table. Read this crucial report that reveals why the Govt must urgently #IncreaseLegacyBenefits bit.ly/3j5j1PR

Our #PhD opportunity is now open! We’ll be sponsoring a Doctoral Studentship focused research around personality disorders and autism. Please share with your networks - applications due 30th April findaphd.com/phds/project/d…

If you have experience of mental health needs or of caring for someone, NHS England and Improvement are recruiting Expert Advisors to help shape and policy within their adult mental health programme. 👉 bit.ly/3qIg36K

Today is my last day Cystic Fibrosis Trust - so much has changed since I started in 2016 and it’s been a privilege. Looking forward to a new challenge @NHSX

.Words That Carry On is funding a #PhD on why #Autism may be missed/misdiagnosed in some people given a diagnosis of personality disorder. Discover why it's important to have people with relevant #LivedExperience doing #MentalHealth research👉 mcpin.org/we-want-to-hea… Anna

.Aisling Burnand is leaving AMRC after leading us for 7 years. We're so grateful for her hard work driving positive change for our charities and their communities. Please join us in thanking Aisling for all she has done for the sector.

Delighted to see some of the cranes made to remember Lindsay on display with the 140,000 that bedeck St Johns Church in Edinburgh. An extraordinary display well worth a visit. Details here: peaceandjustice.org.uk/what-we-do/pea…

Dr Fiona Riddoch co-founded Words That Carry On in memory of her daughter Lindsay, who wanted to see improved mental health services developed with lived experience. High-quality research is essential to this, says Fiona 👉 mentalhealthresearchmatters.org.uk/mental-illness… #MentalHealthResearchMatters

Great to meet with cancer Minister Helen Whately MP this morning to share the views of those with rare and less common cancers (including sarcoma). Cancer52 also on Bluesky @cancer52org.bsky.social Pancreatic Cancer UK Ovacome - the ovarian cancer support charity Ovarian Cancer Action Target Ovarian Cancer @JosTrust Sarcoma UK

Apply today for the Daphne Jackson Trust #Fellowship, in honour of Aisling Burnand CBE. What are we looking for?🔍 🧪Specialisms in #MND or #respiratory Infection 📅3 years #research experience &/or a #PhD 🧑‍🔬Returning researchers following a #career break ➡️bit.ly/3muOrES

Could you be Cancer52’s new Chair of the Board? If you’re a proven leader with an understanding and passion for the needs of people with rare and less common cancers we’d love to hear from you. Learn more: bit.ly/41tO0KV

Excited to officially launch Cancer52’s Manifesto for rare and less common cancers tomorrow in Westminster…watch this space for more information! #C52Manifesto