Support Xtraordinary Joy, Inc, on eBay! charity.ebay.com/charity/charit… via eBay for Charity US

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Thank you for a wonderful 2018!

Human Foosball Tournament in Gainesville to benefit Xtraordinary Joy wcjb.com/content/news/H…

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So honored to share this video of our heart youtu.be/t3GvTmRlYHk

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What an amazing team of FLORIDA Scientists sharing results and collaborating to come up with treatments for #xq27xq28deletion Outstanding work and accomplishments! Blown away 🌬

One of our wonderful research scientists presented data at recent Am Soc for Mass Spec conference. This rockstar Univ of Florida team showed that Xq27/28 deletion is a disorder of lipids and metabolites. They now have new targets to develop therapeutics. Thank you Hoda Safari Yazd and Garrett Lab

Very disappointed to learn Amazon is discontinuing the AmazonSmile program which has been beneficial for many #raredisease nonprofits that lack name recognition & corporate sponsors but serve patients who likely have no FDA-approved treatment. We need companies to #CareAboutRare

read more about our Xq Cuties by visiting our updated website. Hover over these faces of JOY to learn more. They are the whY to our X chromosome research. xtraordinaryjoy.org

Lots of issues cut cross many rare chromosome & single gene conditions, which is why Unique links families not only on the diagnosis, but also on the symptoms & challenges they face. More at rarechromo.org #rarechromoday #uniquebutnotalone #bettertogether #genetics #fact

Children with rare chromosome & single gene disorders develop at their own pace & don't often meet normal' milestones. Tomorrow, #rarechromoday, we celebrate their Uniqueness. Who wants to do 'normal' anyway? Whatever that is! More at rarechromo.org #genetics

Masquerade Ball Sponsors: Tables now sit 🔟 of your VIP guests for our catered meal. For the same Donation amount. What value! Reserve your table NOW! And JOYn our amazing community partners. xtraordinaryjoy.org/partners

Congratulations to the newest UF Chemistry PhD, Dr. Sina Feizbakhsh Bazargani successfully defended today! FLORIDA

This is how we UnMasked JOY in 2022. Now let’s get registered for year 8, November 18th. It’s going to be BOLD! xjoy.ticketspice.com/unmask-bold-jo…

We are sooo excited to be teaming up with Kelsey Stewart Hunter OLY , Athletes Unlimited and Give Lively for Athlete Causes. Make sure you cheer on former Gator Great and USA Olympian Kelsey Stewart Hunter this season while she plays for Xtraordinary JOY! #BeUnlimited ESPN July 28 Gators Softball

Masquerade Ball 8 is going to be great! Our team gathered at our new venue with measuring tape and lots of ideas to map out our two-story event. Get tickets xjoy.ticketspice.com/unmask-bold-jo…