World FTD United
@worldftdunited
FTD associations and advocates around the world uniting to create @worldFTDunited | Many countries, one world, one hope to #EndFTD
ID: 771438402923294720
https://www.facebook.com/worldFTDunited 01-09-2016 20:03:43
373 Tweet
398 Followers
46 Following
FTLDA
@ftldaorg
Educating the world about Dementias affecting younger populations. ftlda.org #ftd #psp #lewybody #alzheimers
Denis Costello
@rarecare
Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Alzheimer's Association
@alzassociation
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ
Warner Bros. Discovery
@wbd
A leading global entertainment company offering the world’s most differentiated and complete portfolio of content across TV, film, streaming and gaming.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Jon Rohrer
@jonrohrer
Professor of Neurology @drcionucl Queen Square @UCLH. Specialist in dementia. Rohrer team research/public engagement @FTDtalk - we run @GENFI1 FPI @EDoFTD
Alzheimer's Society
@alzheimerssoc
We want a world where dementia no longer devastates lives. That’s why we give help to everyone living with dementia today, and hope for the future.
Cassandra Kaizik
@cassandrakaizik
UCSF MAC
@ucsfmac
The UCSF Memory and Aging Center cares for people with, researches the causes/cures for, and educates people about degenerative brain diseases. #NIAfundedADRC
Marco Cola
@soffitto
C'è da divertirsi ultimamente!
NeuRA (Neuroscience Research Australia)
@neuraustralia
An independent, not-for-profit, medical research institute dedicated to improving the lives of people living with brain and nervous system disorders.
Sharon Denny
@ssdenny
Program Director, The Association for Frontotemporal Degeneration
The PSP Association
@pspassociation
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA 🧠
The AFTD
@aftdhope
AFTD envisions a world with compassionate care, effective support, and a future free of FTD. #EndFTD
RareConnect
@rareconnect
🌐Connecting #raredisease patients globally at rareconnect.org. 💻Website help at @RareConnectSup.
Margreet Mantel,
@ftd_mantelmc
partner JW '61 had #FTD dec'12-nov'19 ⚰️ | Fronto Temporale Dementie | Docu Papa | margreetmantel.nl | ftdlotgenoten.nl | blog | 🚺'99 &🚹'03 | Inzet met Zorg |
Rare Diseases Clinical Research Network
@rarediseasesnet
NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Nat Rev Neurology
@natrevneurol
Nature Reviews Neurology is a clinical review journal from Springer Nature. Follow us for the latest updates in neurology from the journal and beyond.
GENFI
@genfi1
Genetic Frontotemporal Dementia Initiative. We are now part of the worldwide FTD Prevention Initiative (FPI): thefpi.org
Alix
@alix_dbl
2ème ligne @OvalieCaennaise 🏉 Fed. 2 | #sensibilisationDFT @FranceDFT 🙌
CT FTD Foundation
@ctftdfoundation
We are a charity working to raise money and awareness for a less common type of dementia, frontotemporal dementia (FTD).
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
FTD Lotgenoten
@ftdlotgenoten
Lotgenoten organisatie voor Frontotemporale Dementie #FTD, voorheen de ziekte van Pick. #endftd volg ook @FTD_MantelMC en kom naar de Lotgenotendagen.
UCSF Dementia News
@ucsfdementia
Latest #Dementia, #Alzheimers & #MemoryLoss Research @ucsf: A news service from the University of California San Francisco, a leading health sciences innovator.
Dementia Friends
@dementiafriends
You can join over 3 million Dementia Friends who are changing people's perceptions of dementia. Brought to you by @alzheimerssoc Join at bit.ly/DFriends
FTDtalk
@ftdtalk
We are the @jonrohrer lab @UCLIoN - our work aims to help people with frontotemporal dementia and associated disorders - we run the @GENFI1 FPI @EDoFTD studies
A/Prof Adrienne Withall
@dradriennew
Dharawal Yuin | Ageing @ the margins | Young onset dementia | Cognition, dementia, crime, justice health | Equity | Creative, blue sky thinker | Psych@UNSW Aust
Katie Brandt
@katiebrandt6
Advocate. Caregiver. Parent. I have a weakness for Starbucks, stripes & guacamole. Love is my GPS.
FTDUK
@ftduk1
We bring together researchers in the UK working on frontotemporal dementia and associated disorders including PSP, CBS and MND. Register at website!
Penn FTD Center
@pennftdcenter
The University of Pennsylvania Frontotemporal Degeneration Center
fFTD Support
@fftdsupport
We provide support for families with the genetic forms of frontotemporal dementia including mutations in the progranulin, tau and C9orf72 genes
DRC@UCL
@drcionucl
#Dementia Research Centre, Dept. of Neurodegenerative Disease, @UCLIoN, @UCLBrainScience, @ucl_slms, @ucl tinyurl.com/Donate-DRC
Frontier at Brain & Mind Centre
@frontier_usyd
Frontotemporal Dementia Research Group @BrainMind_Usyd Researching #dementia #FTD #PPA #neurodegeneration #ageing #endFTD
Asso France-DFT
@francedft
Association pour les Dégénérescences Fronto-Temporales, pour les malades & les proches | Membre de @AllianceMR | #DérisionFT → youtu.be/gUtjZUjv0gI
MindMate
@mindmateapp
MindMate is the best app for baby boomers & seniors. Be more active & improve your brain health. Also suitable for people with Alzheimer’s and dementia.
RareDementiaSupport
@raredementia
We run specialist support group services for individuals living with, or affected by a rare dementia diagnosis including: FAD, FTD, fFTD, PCA, PPA, LBD & YOAD
FTD Registry
@endftdregistry
The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).
Walker Neuro Lab
@walkerneurolab
Neurodegeneration Pathobiology Lab studying TDP-43, on a mission to cure #MND #ALS & #FTD. Led (and most tweets) by @adamkeithwalker. @QldBrainInst, @UQ_News.
ICFTD 2018
@icftd2018
11th International Conference on Frontotemporal Dementia to be held Sydney Australia from 11-14 November 2018
FTD News
@ftdnews
Frontotemporal Dementia (FTD) News. Raising awareness of frontotemporal lobar degeneration. 🎗️🧠 #endFTD
Claire MC O'Connor
@clairemoconnor1
Senior Research Fellow, occupational therapist, #OT, #dementia, maximising function, QoL, animal lover. Live/work on Dharawal & Eora land. Opinions own. She/Her
UW Memory Brain
@memorybrain_uw
@Alzheimers_NIH research, diagnosis and treatment @UWMedicine, and dementia-friendly community outreach. Sign up for news: tinyurl.com/2p9etywb
FTD Unit Boston
@ftdunitboston
The FTD unit at Massachusetts General Hospital is dedicated to the diagnosis, treatment, and research of frontotemporal degenerative diseases
AFTDA
@theaftda
Australian Frontotemporal Dementia Association - Care, Support, Cure. To find out more, please visit our website.