Brian Wallach Dr. Danielle Carnival Aditi Narayan Minkoff 🙂

Thank you Rep. Eric Swalwell!! You are what our country needs more of!

On this Valentine’s Day I want to take a moment to say that I love this ALS community. We fight like family but like family we also would do anything for each other. Here’s to this community and to making the impossible real, together.

Wonderful!

It’s been days now since this video was posted, but I can’t get it out of my mind. This beautiful, strong young woman is all of us, fighting to tear down systems that have institutionalized injustice and the idea that some of us are expendable.

This cause is close to my heart - please sign: sign.moveon.org/petitions/cdc-…

In a study recently published in Frontiers in Pharmacology by ALS TDI scientists, Alan Premasari, Anna Gill, and Fernando Vieira, M.D., present evidence implicating previously unexplored therapeutic target for C9ORF72-mediated ALS. als.net/news/als-tdi-s…

This cause is close to my heart - please sign: sign.moveon.org/petitions/dela…

If you actually want to end ALS make it a part of a $6 billion research rocket ship: ARPA-H. Rosa DeLauro understands that. So does @NIHDirector. But too many don’t. So please: pass👇 on. #ALSinARPAH

This young couple & now young family stole my heart long ago. Eric needs to be here for his baby girl & BrainStorm has a therapy can help w/ that. It's time to stop the madness & allow Eric what he needs to preserve his body until the cures arrive. U.S. FDA #Nurownworks

Thank you Energy & Commerce Democrats for hearing the plight of ALS families. We look forward to seeing the action as a result of this. #ALSChampions

It’s been 24 hours since @gopleader McCarthy threatened violence against Nancy Pelosi. RT if he should apologize or resign.

Masks are back & I couldn’t be more pissed. I hate them. I was ready to burn them. But you know why we have to wear them? THOSE GUYS in the House Republicans — they lied about vaccines & the damn virus is back. RT if it’s time McCarthy’s GOP tells the truth about vaccines. #ThoseGuys

#ThankYouBrandon

New analyses of Phase 3 trial data support a meaningful effect and evidence of slower progression in ALS patients with less severe disease. buff.ly/3EjaMcL

When I came to this morning, I had to pinch myself to make sure the passing of the #S1813 #ACTforALS Act for ALS wasn’t just a magnificent dream!Such a massive win for this community.I already hear the loud cheer for that first unbelievably lucky EAP participant. #CURESFORALL

The moment this community worked so hard for all year is finally here: today at 3:30 p.m. ET, President Donald J. Trump will sign ACT for ALS into law!! This could not have happened without the tireless advocacy of this community. Watch the live stream here: youtube.com/watch?v=yY1QNO…

President Biden signed #ACTforALS into law. We are thrilled to celebrate this enormous step forward. Congratulations to those waging the fight against #ALS for making today possible. We look forward to swift implementation as we continue working to deliver new treatments. #ENDALS

There's no reason for me to look under the tree. I've received my gifts early. ACT4ALS is now law supporting my greatest passion of allowing access to inv therapies previously denied You'd love the conversations we're having w/trial sponsors now 2022 will be a better year for us

Exactly one month ago, Act for ALS was signed by President Biden. We can finally begin the work of finding a cure and saving lives. Retweet this if you are ready to #EndALS