The Victoria & Stuart Project
@victstuproject
Involving people with learning disabilities in end-of-life care planning. Working together to develop a toolkit and resources. Led by @TuffreyWijne (NIHR202963)
ID: 1508433954726203396
http://www.victoriaandstuart.com 28-03-2022 13:21:05
346 Tweet
713 Followers
248 Following
Jo Watson
@jowat
PhD| #SpeechPathology |#AAC |#breastcancer |#BRCA |#renalcancer |deakin_DI |#Diabetes |#Disability |She/her |#HongKong |#Philly|#Melbourne/#VoteYES
Mencap
@mencap_charity
We want the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.
Carolyn
@tootle_toots
Speech & Language Therapist working in a Community Adult LD Team. Previously worked in the voluntary sector. Love: sleep, cake, books & my dogs 🐶🥰🐶
Dimensions
@dimensionsuk
Supporting people with learning disabilities, autism and complex needs to live ordinary lives in their local communities. Proving life really can get better.
Heidi McKay💙🌈 #ChooseLDNursing
@heidimckrnld
#Hellomynameis Heidi, a passionate Learning Disabilities Senior Lead #LDNurse @NCHC_NHS #communitynursing #LDnursesDay22 ❤️ nature🌿🏃♀️ indie & live music 🎶
Mo 🏴🦄
@rupertanddaisy
Mum, Wife, Apprentice in creative shamanism, Animal lover, Reiki lover, Meditation, Music, Nature, Learning Disability Nurse, Equality for all, ❤️💛🌟🐶🧚♀️🦄
Prof Ryan
@sarasiobhan
Activist. justiceforlb.org. @mylifemychoice1. theguardian.com/profile/sara-r… @LearningMet MMU. Dr Dr she/her.
Cormac Coyle
@drcormaccoyle
Chief Executive Officer @trinity_SCS Intellectual Disabilities - Autism | PhD - Adult Safeguarding @QUBSSESW | @IASSIDDasd Executive Committee | Ardmachian
Andrea Bruun
@andreabruun
Research Fellow at @KingstonUni📍Palliative care and learning disability 🌻 @UCL PhD in prognostication in hospice MDTs 🏛 Conversation Analysis 💬 she/her
Kisharon Langdon
@langdoncharity
At Kisharon Langdon we support people with learning disabilities and autism across the UK to live their best lives. #Livingness
Caroline McG
@cmgirr1
Gemma Allen (she/her)
@gemma_allen1
Palliative Care Inclusion & Community Partnership Lead @MSHospice. Co- Founder @NoBarriersHere. Director GA Consultancy. Equity. Research. Education.
Helen Latham 💙
@lathamhelen
Soul midwife TLC trainer (end of life training for carers)
Cicely Saunders Institute at King's
@csi_kcl
The Cicely Saunders Institute @kingscollegelon is the first purpose-built palliative care research institute, part of @KingsNursing
Jill Watson
@jwatson2801
IT Project Manager at Newcastle Hospitals - working on behalf of GNCR : Health Information Exchange (HIE) MSc Project Management APM & PMI member
Joanna
@jmcilmurray
AHP working with primary and secondary care supporting whole system services. Community rehab/reablement /palliative care focus.
Jim Blair ThinkDifferentlyACTcreatively ⚒️🇪🇺🕊
@jimgblair
ConNurseI(L)D @westlondonnhs Patron @DanceSyndromeUK AssProf @NursingKingston Chair @RCNLondon F2PPanelMember @nmcnews Trustee @LDNCharity LDNAdvisor @uklabour
Joanna Grace
@jo3grace
Seeking to contribute to a world where people are understood in spite of difference, Doctoral researcher, The Sensory Projects, TEDx, Trainer, Author. Autistic.
mcr people first
@firstmcr
We are a self advocacy organisation run by and for learning disabled people in Manchester. We give information in a way people understand, and raise awareness
St Christopher's CARE
@stchcare
Centre for Awareness & Response to End of life (CARE). National and international palliative & end of life care education & engagement. Also see @StChrisHospice
Shaping Our Lives
@solnetwork1
We're a user-led non-profit, working to ensure everyone can have a say in the services they use. #InclusiveInvolvementMatters #LivedExperience
Irene Tuffrey-Wijne
@tuffreywijne
Professor of Intellectual Disability and Palliative Care. Let’s talk about dying, death, bereavement and intellectual/learning disability.
Beyond Words
@uk_beyondwords
Beyond Words - Using pictures to help people understand the world. Founded by @BaronessHollins. Charity no. 1183942
John Wonnacott
@jonwonn
PCPLD Network
@pcpldnetwork
Palliative Care for People with Learning Disabilities Network. UK based charity raising awareness and sharing best practice. Shortlisted for NDA Awards 2021.
Zach Moss
@_zachmoss
Work @agooddeath | 🪃 | Trying to do less, but better | Tweets often stolen from someone t-wittier
Jo Giles
@jogiles72
MacIntyre
@meetmacintyre
We're MacIntyre. We provide learning, support and care for children, young people and adults with learning disabilities and/or autism.
Caroline White
@carolinannwhite
@uniofhull researcher - also @dist_care. Interests: adult soc care inc safeguarding. Reader & book buyer. Own Tweets - don't necessarily reflect views of UoH
Dr Nicola White
@nicolagwhite
Senior Research Fellow. @MCPCRD @UCLPsychiatry. She/her. Frequently communicates via gifs. Tweets my own.
David Harling BEM
@davidharling1
National Deputy Director for Learning Disability Nursing at NHS England. A proud RNLD & RMN. Purveyor of kindness, quirkiness, and a light sprinkling of humour.
Ela
@ela48049037
Generate
@generateopps
Your Life Your Support - We focus on people’s strengths, promoting independence and inclusion, through learning, work and leisure opportunities.
Sue Marsden 💙
@suemarsden6
Palliative Care Community Team Leader at GBCH ; Chair of the @pcpldnetwork ; RNLD passionate about LD, autism, EOLC. tweets are my own. she/her
Courtney Francis 🏳️🌈
@mrcjfrancis
Learning Disabilty, Autism Clinical Nurse Specialist @UCLH Tweets re: #Wellbeing👨🏾⚕️ #HumanRights🕯 #Inequality📊 #LGBTQIA 🏳️🌈 & #Intersectionality🔀
Caroline Dodd
@cdodd09
🇬🇧🇨🇦 CYP nurse @mpftnhs @weCYPnurses volunteer
Camden People First
@infoscpf
Self-Advocacy project run and led by adults with learning difficulties for adults with learning difficulties.
Christine Towers
@christnetowers
Founder of Together Matters and creator of free resources. Visit website to download new guide about planning for the world of work.
Vivienne Trott
@vivienne7221
A proud daughter, sister, wife,mum,nurse and friend to lots ❤. #proudofcommunity
Richard Keagan-Bull
@rkeaganbull
Member for L'arche and a trustee for Walsingham Support. I am a Research Assistant at Kingston University. My book is out now
Jenny Miller
@jennympamis
CEO PAMIS supporting people with profound learning & multiple disabilities & their family carers. Passions:inclusion, education, values based practice,CPToilets
IASSIDD
@iassidd
IASSIDD is the first and only world-wide group dedicated to the scientific study of intellectual disability.
People First Keighley & Craven
@pfkcr
We are a self advocacy group run by and for people with learning disabilities.
phoebe mooney
@phoebemooney10
learning disability clinical nurse specialist working in palliative care ✨ member of the specialist advisory group for the PCPLD Network 😊
🌻Jane Nickels🌻 MA, RNLD
@jane_nickels
Learning Disability Nurse trying to improve the lives of people with dementia and their families. My views are my own 💜 Proud trustee of the @PCPLDNetwork
@jansunman
@jansunman1
Meg Wilding
@mwilding5
Best Practice Health & Wellbeing Facilitator @meetmacintyre Project Lead of @VictStuProject within MacIntyre. All views are my own.
Saff Davies 💙🇺🇦
@daviessaff
Bass playing, veggie food-ing, Learning Disability Nurse. FNF Scholar ‘21. Fuelled by music, reading, running, walking, job, friends, family, my girl👩👧
Claire Thurgate
@thurgateclaire
British Journal of Learning Disabilities
@bjld_wiley
Interdisciplinary international peer-reviewed journal with contemporary debate and developments in research, policy and practice. Published by @WileyEducation
Julia Skelding
@julia_skelding
Nurse Consultant RNLD, Health and Justice service @TEWV. MA Autism, PGCert MH law & prof practice. passionate about quality care. views are my own
kerrymhamilton
@kerrymhamilton1
Head of Membership at Voluntary Orgainisations Disability Group
VIP Red Bag
@vipredbag
To improve the healthcare and support people with learning disabilities receive while in hospital [email protected]
Anita Taylor
@anitajt01
Best Practice Facilitator @meetmacintyre supporting EasyRead Creators & Checkers, Intensive Interaction and MacIntyre Dancers E: [email protected]
Aurora Nexus
@auroranexus_
Welcome to Aurora Nexus! We're a charity in South East London passionate about supporting and empowering people with learning disabilities.
Learning from Lives and Deaths - LeDeR researchers
@aliveleder
Our team aims to help improve healthcare for people with a learning disability and/or autism. We're from KCL and share work with researchers from UCLan + KU.
Laura Swift
@laurasw44065104
Alison Rodgers / support worker LD/ ASD
@alisonr57042331
Mental health Support worker for Learning disabilities Autism for over 10 years. My son is in a phyciatric hospital where he's spent half his life
Inclusive Researcher in FE
@fe_researcher
PhD researcher in inclusive and participatory research design within a Further Education context. Research assistant. Folk artist. Songwriter and musician.
Sarah Gibson
@gibsons2go
Jacqueline
@j_a_c_q_u_e_s_
year 1 Learning Disability Nurse in training #enoughisenough
Jane Bernal
@janeber94825429
Bearnairdín Uí Mhearlaigh
@bernardine1234
“Integrity is doing the right thing, even when no one is watching” C.S. Lewis
Josephine and Jack
@jnjproject
We believe that people with learning disabilities have the right to their own choices about life and love We're Josephine and Jack. Patron @sallyephillips
Sarah Pope
@sarah_ldnurse
Comments are my own! #RNLD #FNFscholar #PNA #EGA and always trying ❤️
Paula McGowan OBE
@paulamc007
•Hon University Fellow- Fac Health •Founder The Oliver McGowan Mandatory Training •Patient Safety •Hoping for a 🌎 where everyone can live together peacefully
Nicola Payne: Health & Families Manager
@nicolap321
@MacFamilies @HealthLD @meetmacintyre since 2005 : health for all , supports people to live a good & meaningful life, Dying to Talk breaking down barriers 💜
Kathryn Mannix
@drkathrynmannix
Retired palliative care doctor. Writer: 'With the End in Mind', 'Listen.' Wants us to understanding dying more, fear it less, listen better. Rep: @DHAbooks