Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿

@vevshughes

Trying to negotiate Stage 4 BC for almost 9 years. Looking for others who understand the good, the bad and the ugly. No DM’s or hatred please. I’m doing my best

ID: 1115720306000191488

calendar_today09-04-2019 20:57:04

2,2K Tweet

1,1K Followers

1,1K Following

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

I always seem to be maudlin here. I’m not, at all, like this in reality. It’s just if i complain of anything publicly it’s like dialling 222 for the arrest team and I’m swamped with love and well meaning sympathy. Very often the thing that i would most like is somebody just

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

I’m going to step right out of my shell and start a new podcast in Welsh for Welsh speakers who would benefit from a podcast, by me, initially in Welsh but with an English version. I’m going to start selling gifts for newly diagnosed sufferers . The Welsh version is call

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

My little online gift shop to buy Welsh language gifts for friends with cancer including a range of Welsh Cards and clothing, gift merchandise. I am in the process of setting up a Welsh podcast. I will be hosting it but could do with a Stage 4 co presenter who is also thriving.

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

So it’s cancer survivor day. All in all 17 years of that stupid rain cloud hanging over me. Almost 19 of those years sh*t scared that i was going to die imminently. 5 good friends lost, my mother being diagnosed stage 4. I’ve retired because I can’t stand conflict and resolution.

So it’s cancer survivor day. All in all 17 years of that stupid rain cloud hanging over me. Almost 19 of those years sh*t scared that i was going to die imminently. 5 good friends lost, my mother being diagnosed stage 4. I’ve retired because I can’t stand conflict and resolution.
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

Capivasertib is working!!! My ca125, I have lobular MBC, most of my sites for metastases are abdominal, bowel or reproductive organs, is down from a peak of 71 on Christmas Eve, thanks mate, to 10. That is phenomenal for my body. I am beyond happy. Pics of my happy place

Capivasertib is working!!! My ca125, I have lobular MBC, most of my sites for metastases are abdominal, bowel or reproductive organs, is down from a peak of 71 on Christmas Eve, thanks mate, to 10. That is phenomenal for my body. I am beyond happy. Pics of my happy place
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

He lit up my life and I know that he is never far. When we both are in our garden, that’s when I feel him loving me so much and holding my hand. Dementia stripped him of so many things, but he said ‘goodbye Vevs’ my pet name a few weeks before he died. This is my dad Vinny and I

He lit up my life and I know that he is never far. When we both are in our garden, that’s when I feel him loving me so much and holding my hand. Dementia stripped him of so many things, but he said ‘goodbye Vevs’ my pet name a few weeks before he died. This is my dad Vinny and I
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

I am on a mission to provide a service in Welsh for people living with cancer who feel more comfortable speaking and listening in Welsh. There will be reels, podcasts, a webpage with interactive story boards and links on all platforms. If anybody would have any interest in being

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

Tomorrow is our 18th wedding anniversary. 17 of those years have been living with the shadow of cancer. Cancer can destroy many things but it can’t destroy our love. We are the lucky ones and I thank my little angel everyday for the opportunities that we have been given

Tomorrow is our 18th wedding anniversary. 17 of those years have been living with the shadow of cancer. Cancer can destroy many things but it can’t destroy our love. We are the lucky ones and I thank my little angel everyday for the opportunities that we have been given
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

Today I was asked how I’ve managed to live so long. I really don’t know. I took the decision to live the same life that I’ve always lived at a slower pace. I drink wine, occasionally, eat a fair amount of chics, we do eat cleanly. Homemade, good food and we drink lots of water

Today I was asked how I’ve managed to live so long. I really don’t know. I took the decision to live the same life that I’ve always lived at a slower pace. I drink wine, occasionally, eat a fair amount of chics, we do eat cleanly. Homemade, good food and we drink lots of water
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

facebook.com/share/1Bxhf8Di… I’ve never really shared much of my experience with people about Living with Cancer. I have always been protective of my children and family. However, the time feels right to share this as it may just help others living with Stage 4 Cancer. #thankscancer

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

First CT Scan since starting Capivasertib on Wednesday, also MRI spine and pelvis for right hip pain. I try not to be but I am absolutely terrified. Life can turn on a pinhead. I feel so well. Except for excruciating right hip pain. Which has resolved today 🤦🏼‍♀️ Typical

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

Is there a setting on your car’s Sat nav that won’t send you on Motorways? Just spent 2.5 hours driving through random villages on a normal 1.5 hour journey. It was lovely but so slow!

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

If, and only if, this year works out for me I might be the luckiest lady in the world. No, I won’t live any longer but, my pension pot is so close. I have checked SO many times that Trev can collect it if I’m not here BUT, if I live until October I’ve surpassed all expectation

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

My amazing oncologist tried to phone me today but I was on the phone to a lovely friend. When I phoned back I spoke to his nurse. I’ve not had the full result back BUT if I am right not only is Capivasertib keeping me stable it’s also chomping its way through my cancer cells.

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

I’m setting up a Welsh web based support group in Welsh for any person who would benefit from hearing other people’s stories, listening to my story. At the moment it is focussing on Living with Cancer. However Ffynnu.cymru will be available to all Welsh Speakers living

Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

I love gardening. It’s my hobby, it calms me and seeing growth helps me to focus on my own ability to keep growing even during my darkest days. For every day in the garden I suffer from debilitating back pain for days afterwards. Will I stop gardening/walking/Pilates? No way, I

I love gardening. It’s my hobby, it calms me and seeing growth helps me to focus on my own ability to keep growing even during my darkest days. For every day in the garden I suffer from debilitating back pain for days afterwards. 
Will I stop gardening/walking/Pilates? No way, I
Vevs Hughes 🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@vevshughes) 's Twitter Profile Photo

I’m still here, still sitting with my cancer. It’s behaving, for now. We stopped squabbling. We accept that this is now our life together. Since I shifted this gear from loneliness, fear, isolation, anger at life, and sat down quietly. I realised that I would not swap my life for