VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
ID: 836169384297119744
http://www.vascern.eu 27-02-2017 11:01:31
3,3K Tweet
1,1K Followers
619 Following
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
TheMarfanFoundation
@marfanfdn
The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Samantha Campbell
@samjanecampbell
Julie De Backer
@judbacke
Genetic Cardiologist @uzgent @ugent | Interest in #ACHD and #Marfan | FESC @escardio
Axel Hiram Hdz
@axelhiram
Cardiologia | HC CMNSXXI 🇲🇽 Fellow Imagen Cardiaca H Vall D'Hebron 🇪🇸
rosalind
@rosalindfrnkl
👩🏽🔬
Edwin Ross
@errossr
Zdenek
@zdedolezal
Digital marketing & crypto enthusiast, occasional DJ & music event promoter, #DaftPunk & lasagna worshiper. Allergic to BS.
Dominik Gardáš
@dominikgardas
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
rejoignez les ruches sur discord 🇫🇷
@gazette14
Yémen:400 000 enfants morts de faim(mères, soeurs kidnappées pr être violées,peres,frères tués car refus de se convertir Mauritanie : exclavage arabo musulmans
Giulio Del Vecchio
@giuliodelvecchi
rosa
@rosausdy
Suzan Genova
@suzanmgenova
Board Member & Head of Communications, National Alliance Rare Diseases Bulgaria | ePAG, ERN-ITHACA & MetabERN | Chairperson, Nataliya Foundation & FAST Bulgaria
Andrew Jeon
@andrewjeon2
Kasia Pirog
@kasiapirog1
Geneticist, cartilage biologist, mountaineer. Senior Lecturer at Newcastle University. All views my own.
Lisa Chandler
@appslisa
Proud mum of 3 & nanny to 4🤗❤ Love a bit of theatre/concerts/ travelling. this aint no rehersal enjoy have fun & make loads of lovely memoriesX
Jean Simpson
@jeansimp6
MedicsforRareDisease
@medicsforrare
Excellence in rare disease medical training
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Rebecca Mercaldi
@rfc_mercaldi
Clinical Nurse Specialist in Adult Congenital Heart Disease. Green healthcare enthusiast. (she/her)
Guillaume Canaud (MD, PhD)
@canaudlab
Translational medicine. Hôpital Necker Enfants Malades/Université Paris Cité.
European Reference Network on Rare Bone Diseases
@ern_bond
Share. Care. Cure.
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
XLH, arvelig rakitis
@xlhdk
XLH, arvelig rakitisk (Denmark) helps to support those living with XLH and related hereditary rickets disorders.
Lydia
@lydia00tacp
London based trainee ACP in Neurosurgery! Passionate about people, improvement and education ⭐️
stacey8892
@stacey88921
Mama- Cancer survivor - I teach nursing @QUB and loving it! Nurse for life! Interested in bleeding disorders, rare diseases, stroke care and education
motu proprio
@motuproprio10
Eric Minor
@ericmin22974976
PROS Business Leader, Rare Diseases at Novartis Oncology
Paloma Remior
@palomaremior
Inherited Cardiac Disease Unit, MD. Hospital Ramón y Cajal. Madrid
URANO CIENFUEGOS
@marcialprez18
Hombres gay
Karen Orjuela Traslaviña, MD. MSCR, MBA (she/ella)
@drkarenorjuela
Editor-In-Chief. Equity Neuroscience Journal. Vascular Neurologist with mountain 🏔️ soul and community spirit. Opinions mine @UChicago_Neuro @YaleSOM
Samnong
@samnong007
Nicolas Timmermans
@nicolastmmrmns
PhD Candidate - KU Leuven Nutritional Ketosis in Lymphedema
Jen Marchetti
@jen71marchetti
Survivor turned Advocate. I share to help others live their best life.
Jennifer
@smileatyou2day
MAGA,MAHA,Conservative, Love America, Practice What I Preach, Stand for the Truth. Love Trump, No DMs Please
ASOCIACIÓN CADASIL ESPAÑA
@cadasilespana
Asociación de pacientes familiares de la enfermedad de Cadasil.
Accolade Radiology
@2ndconsult
Radiology 2nd Opinion
Beate Kolset Johnsen
@beate_k_joh07
She/her.Bi.Ehlers Danlos Syndrom. ❤️🐈🐴❤️Socialist,Activist,Peer support worker. Pro Palestine.Nature.Kink.Prepardness. Volunteering. Emergency Medicine.
vasc ai
@vasc_ai
vasc.ai: A vascular surgery-specific #LLM #AI chat interface, developed by University of Toronto's Division of #Vascular Surgery | email: [email protected]
Eczema RDC
@rdceczema4128
Nous sommes une organisation sans but lucratif des malades de le peau : ECZEMA RDC, asbl
Jacqueline Yvonne Gallegos
@jazzeeejaxxx
GenomicOS
@genomic_os
The Operating System for Human Evolution
Aortahub
@arturaortahub
Meeting place for professionals interested in Aortic Diseases Project developed by international expert: Artur Evangelista Updates, interviews, clinical cases
DIGI4ECO
@digi4eco
Digital Twin-sustained 4D ecological monitoring of restoration in fishery depleted areas Horizon Europe Programme GA No101112883
PICKED Project
@projectpicked
Advancing personalized medicine in chronic kidney disease through interdisciplinary research and innovation. #CKD #Healthcare #Research
Nazlıcan TOPRAKTEPE
@nzlcntprktp
🌜❤️🪺🇹🇷
Fatihin Fedaisi
@fa57516fedaisi
ploysiopaido
@democratin72107
Edinburgh Aortic Summit
@ediaorticsummit
Join us at the inaugural Edinburgh Aortic Summit on 12-13th June, 2025 at The Royal College of surgeons of Edinburgh. #EASummit2025
Ervin
@ervin_zhangjq
Pau Puig
@puigpauadvocate
#EDS #PoTS #Dysautonomia Secretary of @AEPOD_es Volunteer at @ANSEDH Views are on my own
persona nerivol
@personanerivol
Edema support foundation
@edemasupport
We are dedicated to raising awareness, advocating for better care, and providing affordable, locally sourced solutions for managing edema across Africa.
European Society of Vascular Medicine
@esvm_
Official account of the European Society of Vascular Medicine #vascular
Eugène SINDIKUBWABO, MD
@mdsindikubwabo
Plastic and Reconstructive Surgery, University of Rwanda( Mmed candidate), SHARE Global Fellow, FCS( ECSA) candidate.
Padiporn Vasinanukorn Limumpornpetch
@drpadiporn
Endocrinologist, and proud mom of two lovely boys
40:40 Recruitment
@4040rec
Specialist Recruitment Partner - Pharmaceutical & Healthcare arena covering the UK & Ireland #pharmaceutical #healthcare #medicaldevices #4040rec #medicalsales
SIMA Asociación
@sima_asociacion
#SIMA es una Asociación Nacional sin ánimo de lucro, formada por los afectados por el #SíndromedeMarfan y sus familiares. Más de 260 familias
ERN EuroBloodNet
@erneurobloodnet
ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases
_ERNRITA
@_ernrita
ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
Suomen Ehlers-Danlos
@edsfinland
Suomen Ehlers-Danlos -yhdistys ry eli Sedy on valtakunnallinen yhdistys, joka jakaa tietoa sairaudesta sekä tarjoaa jäsenilleen vertaistukea ja edunvalvontaa.
Miikka. Vikkula
@miikkavikkula
ERN ReCONNET 🇪🇺
@ern_reconnet
🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
Gillies McIndoe Research Institute
@gillies_mcindoe
A small biomedical research charity developing accessible treatments by repurposing medications and using spheroids/organoids. Your support matters!
ERN-ITHACA
@ernithaca
European Reference Network on congenital malformations and rare intellectual disability (ERN-ITHACA).
EpiCARE
@epicare_ern
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
ERN-EYE
@erneyeeu
ern-eye.eu - ERN-EYE is a European Reference Network dedicated to Rare Eye Diseases.
@ERN_RND 🧠
@ern_rnd
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: bit.ly/33mMY4C