Today we: ✅ Rally on Capitol Hill ✅ Meet with congressional leaders ✅ Make real change for our community Take 2 minutes to advocate: skincoalition.org/take-action/#/5

👏The CSD is beaming with pride! Our President, Brindley Brooks - and the Founder & CEO of HSconnect.org - HS Connect - wrote an article for the "Skin Health" campaign that launched this morning in USA TODAY! ➡️Check it out here: futureofpersonalhealth.com/skin-health/sc… Mediaplanet USA

The CSD is happy to join with the National Scleroderma Foundation to celebrate June as Scleroderma Awareness Month! To learn more, visit their website at scleroderma.org/awareness.

🤝The CSD is proud to support our member organization, PC Project , during June's Pachyonychia Congenita Awareness Month! #EndThePain

The CSD proudly supports our member organizations HS Foundation , HSconnect.org - HS Connect , and The Association of Hidradenitis Suppurativa and ID during June's Hidradenitis Suppurativa Awareness Month!

📣The CSD's Executive Director, Kelly Barta, is excited to share her expertise at Biotechnology Innovation Organization's BIO2025 in Boston! Join us for her session, "The Power to Shape the Future," on Thursday, June 19. We hope to see you there! #BIO2025 #TheWorldCantWait

The CSD stands hand-in-hand with our member organizations VSI, MasseWorld, Beautifully Unblemished, and Global Vitiligo Foundation during June's Vitiligo Awareness Month and on World Vitiligo Day today, June 25!

📢We invite you to join our new Member Empowerment Series! This webinar is entitled "Attract, Engage, Retain: Mastering Volunteer Recruitment & Retention in Nonprofits" by Lisa-Marie Haygood. 🗓️Date: Thursday, July 24 ⏰Time: 2PM - 3PM ET 🖊️REGISTER HERE: bit.ly/43AjJNT

Prescription Drug Affordability Reform: Solutions should be based on PATIENT experience. 💊 Financial aid? 💊 Insurance denial? 💊 Many meds = $$$? 📢 BE COUNTED: bit.ly/PatientWhy @EACHPIC #PatientWhy #NothingAboutUsWithoutUs

🧬💡 Join the NIH's NOURISH Autoimmunity Challenge! Got ideas on how diet & nutrition can transform autoimmune research? The NIH Office of Autoimmune Disease Research wants to hear from you! 📅 FREE Webinar: Sept 30, 1:30-2:30 PM ET Register: bit.ly/4mC4IRY

We’re at #AAFPFMX raising awareness about skin diseases + the crucial support our member orgs provide! 💙 Our CSD QR stickers are going like hotcakes — swing by Expo Hall 708 to grab yours! #SkinHealth #FamilyMedicine #DermTwitter #CSD 👉 i.snoball.it/p/MlHeb/f

The World Health Organization (WHO) wants your input! Help shape the Global Action Plan on Skin Diseases, the next step in implementing the #WHAResolution. 🗓️ Deadline: Oct 31, 2025 🌎Available in 6 languages Take the survey 👉bit.ly/4mXBRYm #SkinHealth #GlobalHealth #PatientVoice #WHO

🕐 #Medicare Open Enrollment runs Oct 15–Dec 7, 2025 for 2026 coverage! CSD + MAPRx created tools to help: 📘 Part D Guide → bit.ly/46JB08S 🙋 Patient Guide → bit.ly/4q9y25i 📊 Infographic → bit.ly/4qbSEKf #OpenEnrollment #MedicarePartD

The CSD encourages our community to join Dr. Shanmugam of NIH OADR-ORWH for a virtual Updates on OADR-ORWH session on Dec 12, 12–12:45 p.m. EST. Register: bit.ly/4pXtz4J Explore the new NIH-Wide Strategic Plan for Autoimmune Disease Research (FY26–30) on their site.

📣 Save the date! The CSD will host #CSDHillDay2026 in Washington, D.C. from May 17–19, 2026. Join patient advocates from across the country for advocacy training and meetings with policymakers to champion better access to care for those living with skin diseases.

Thank you Buddy Carter for your leadership on this issue! #PBMReform would improve access and affordability to often life-saving prescription drugs for people in the skin disease community. Ask your legislator to take action today: bit.ly/4qKLnRy

CSD's member organization, United Porphyrias Association, is officially 4 years old today! The United Porphyrias Association's mission is to improve the quality of life of the porphyria patient community. Learn more: bit.ly/3ZvHbc7

Join NIH's Office of Autoimmune Disease Research and Vicki Shanmugam, MD (Dr. Victoria Shanmugam), for a webinar on January 29 at 12 PM ET to discuss updates on OADR-ORWH. Learn more and register NOW: bit.ly/4bdZTw6

CSD member Made A Masterpiece, Inc is changing the conversation around skin disease. Their traveling exhibition, “Look At Me. What Do You See?”, celebrates the humanity and resilience of those living with visible skin conditions. Learn more: bit.ly/4rdQysM

February is #EctodermalDysplasiasAwareness Month! #DYK? Ectodermal dysplasias affect hair, teeth, nails, sweat glands and skin. Learn more from the National Foundation for Ectodermal Dysplasias: bit.ly/45GVTka