Tuberous Sclerosis Association
@uktsa
Support, research and advocacy for the Tuberous Sclerosis Complex (TSC) community. Social media community guidelines: bit.ly/3z4j7hz
ID: 1291271958
http://www.tuberous-sclerosis.org 23-03-2013 12:16:05
6,6K Tweet
1,1K Followers
649 Following
TSC Alliance
@tscalliance
The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex
Alastair McLellan
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Kamran Abbasi
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Neil Callen
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Sarah Neville
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Global Health Editor, Financial Times.
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EURORDIS-Rare Diseases Europe
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pharmaphorum
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Julie Penfold
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Freelance journalist specialising in everything health-related. Usually recovering from a sports injury. Likes to run and swim. Sunderland fan.
Epilepsy Society
@epilepsysociety
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Award-winning specialist insurance company. We're here Monday to Friday (9am–5pm). If you need urgent assistance, please call 0345 777 3322.
Emma Sutcliffe
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SUDEP Action
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Disability Wales
@disabilitywales
Striving for the rights and equality of all disabled people. Ymdrechu dros hawliau a chydraddoldeb pobl anabl.
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TheLAMFoundation
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laura donnelly
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Health Editor of The Telegraph. Opinions my own. Mainly. Contact [email protected]
Hugh Pym
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BBC News Health Editor covering all aspects of health (UK and Global). Politics and economics of the NHS. Thoughts from staff and patients always welcome.
Shaun Lintern
@shaunlintern
Health Editor at The Sunday Times. National Press Awards Health Journalist of the Year 2023. Chair of @mjauk. Public interest journalism matters #E17
Emma Powell
@emmapowell2210
Deputy Showbusiness News Editor at The Daily Mail. DM me stories. Ex Evening Standard & Radio Times. All views my own [email protected]
Autism East Midlands
@autismeastmids
We are the largest specialist #autism charity in the East Midlands providing support to children, young people, adults and their families.
Louise Saunders
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Epilepsy Research Institute
@epilepsyinst
Radically advancing epilepsy research. Join the #Onein100 campaign today to help raise the profile of epilepsy and drive research forward. @ResearchNetERI
Disabled Children's Partnership
@dcpcampaign
The DCP is a coalition of organisations campaigning to improve support for disabled children, young people & families. #SENDABetterMessage
Wales Gene Park
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From January 2025, please find us on Instagram @walesgenepark and LinkedIn 'Wales Gene Park / Parc Geneteg Cymru'
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
Nick Triggle
@nicktriggle
BBC health correspondent, Royal TV Society and Medical Journalists' Assoc award winner. Interested in NHS, public health and social care. Views are my own.
David_Suchet
@david_suchet
British character actor, best known for the little Belgian, Poirot, but many other characters too.
LCFC Women
@lcfc_women
The official X account of LCFC Women. For all supporter enquiries, please tweet @lcfchelp.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
International League Against Epilepsy
@ilaeweb
A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy. RTs are not endorsements
Autism Alliance UK
@autism_alliance
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AutismFamilySupport
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Oxfordshire charity using knowledge, understanding, and a whole load of fun, to support children and young people with autism, and their families.
Durham Women FC
@durhamwfc
The official account of Durham Women FC. Members of the Barclays Women's Championship.
MedicsforRareDisease
@medicsforrare
Excellence in rare disease medical training
Torie Robinson 🇺🇦
@torierobinson10
@EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
ResearchNet ERI
@researchneteri
Researcher Network of @EpilepsyInst. Radically advancing research into epilepsy. For #epilepsyresearch funding and capacity building opportunities join The Hub
Zoë Hardy
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Freelance Multimedia Journalist | NCTJ Gold Diploma
Elen Johnston
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Journalist #CardiffTrained
John Ely
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Emily Stearn
@emilynstearn
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NHS Genomic Medicine Service
@nhsgms
Information for and from the NHS Genomic Medicine Service 🧬 #Genomics. england.nhs.uk/publication/ac…
Rare Disease Research Network (RDRN)
@the_rdrn
A new, inclusive, online hub facilitating patient-initiated #raredisease research. #NIHR funded, co-created by the rare disease community, #CamRARE & #PLRH.
Ines Serra
@inessserra
neurosciencing, reading, travelling, sometimes all at once.
AGNC
@theagnc
The Association of Genetic Nurses and Counsellors, representing the profession in the UK and Ireland.
Anna Jansen
@jansen_ac
Tori Riley
@vriley321
PhD candidate in the Feliciano lab studying Tuberous Sclerosis Complex 🧠🥼 (she/her)
Dr Jacyntha
@drjacyntha
Anaesthetic & ICU Reg, London. TROD (Trainee Rep in Organ Donation)💞 Fitness & cake addict.
TANDconsortium
@tandconsortium
Empowering families through technology: TANDem is an international multi-disciplinary project involving multiple stakeholders from the TSC community.
Stacey Bissell
@bissellstacey
Assistant Professor School of Psychology University of Birmingham. TSC and TAND research in sleep, intellectual disability and eating behaviour.
Hilary Swales
@hilaryswales
Retired anaesthetist UHS and Patient Information RCoA. More time to sail and take photos. In love with puffins and Scotland. Often found baking.
Happiful Magazine
@happifulhq
Happiful is a print and digital magazine devoted to #mentalhealth. Order issue 97 now ✨ Subscribe for FREE: happiful.com/digital-subscr…
TSC Talks-The Podcast
@talks_tsc
The Source: Cannabinoids. Digital and Audio Content. Unique Cannabinoid Products https//TheSourceCannabinoids.com #Cannabis #AltMed linktr.ee/tsctalks
Durham Cestria
@durhamcestria
Official partner club of @DurhamWFC. Currently play in FAWNL North Division 1
Muireann Ní Bhaoighill
@muireann_nib
Medical Science Liaison, Transplant | Sanofi UK Personal account, tweets my own and not those of my employer
Richards Lab
@richardslabuob
Research into sleep and behaviour in neurodevelopmental conditions led by Professor Caroline Richards @unibirmingham (retweets are not endorsements)
Shout
@giveusashout
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Tuberous Sclerosis Association India
@thetsaindia
Our Mission is to Ensure Caregivers and Patients are Informed, Empowered and Connected for Better Management of Tuberous Sclerosis Complex.
Foresight in Rare Disease Policy
@rare2030
Preparing a better future for people living with rare diseases. For more info [email protected]