UK MND Clinical Studies Group
@uk_mnd_csg
UK-wide network of clinical researchers, bringing together the expertise & enthusiasm to develop the quality of MND research in the NIHR CRN community.
ID: 943450911292252160
http://www.mndcsg.org.uk 20-12-2017 12:00:00
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Suvankar Pal
@suvankarpal
Professor of Neurodegenerative Disorders & Clinical Trials @EdinburghUni @mndsmart @AnneRowlClinic @EdinUniBrainSci @UKDRI #forthvalleyneurology @nhsforthvalley
MND Australia
@mndaustralia
Care, advocacy and research in support of those living with motor neurone disease (MND).
MND Campaigns
@mndcampaigns
Campaigning with people with motor neurone disease #MND @mndassoc volunteering.mndassociation.org/vacancy/campai…
NIHR Research Support Service (RSS)
@nihr_rss
Confidential methodological advice, post-award support and collaboration opportunities with expert groups in health, public health and social care
PabloGarciaReitboeck
@pablogarciareit
👨👩👧👦👨⚕️🏥🇦🇹🇪🇦🇪🇺🇬🇧 Neurologist @stgeorgestrust. #mnd #myasthenia gravis #clinical trials
ALS Hope Foundation
@alshf
The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.
MND Victoria
@mndvic
MND Victoria provides VITAL care + support for people with motor neurone disease & funds research. Read the latest MND news & stories on our website.
National Institute for Health and Care Research
@nihrresearch
Sharing news and information from the National Institute for Health and Care Research (NIHR). We fund, enable and deliver world-class health and care research.
ALS WORLDWIDE
@als_worldwide
Nonprofit organization that provides FREE guidance and support to people with ALS in over 150 countries. We seek to help people live better and longer with ALS
Robbert Jan Stuit
@rjstuit
#ALS/MND #ALS #MND #entrepreneur #investment #printing #communication #biotech, #Treeway, #advocate
MND Scotland
@mndscotland
Making time count for people with motor neuron disease (MND).
Be Part of Research
@nihrtakepart
Information about how you can be part of health and social care research and the difference research can make, helping future generations live well for longer.
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
MND Association - Manchester & District Branch
@mndmanchester
Greater Manchester Branch of the Motor Neurone Disease Association. We help people across Greater Manchester affected by #MND, their carers, families & friends.
NIHR Involvement
@nihrinvolvement
We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research
Esther Hobson
@drestherhobson
Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)
Brian Dickie
@drbriandickie
Chief Scientist @ MND Association
ALS/MND Alliance
@alsmndalliance
A World Free of #ALS #MND
MNDA SE Wales
@sewalesmnd
We provide advice and support to people living with MND and their families in SE Wales. We also fundraise towards national research, to find a cure for MND.
Neuroscience Institute
@neuroshef
Tackling the biggest challenges in neuroscience by bringing together #SITraN and researchers across medicine, science and engineering.
MND Assoc VIP & Events Team
@mndvipteam
News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
Euan MacDonald Centre
@euanscentre
We conduct vital research into motor neuron disease. Based at the University of Edinburgh, we unite over 250 scientists and doctors across Scotland.
Steve Bell
@stevebellmnd
Retired from MND Association
NIHR Sheffield CRF
@crfsheffield
We are a @NIHRresearch Clinical Research Facility; a partnership between @SheffieldHosp & @sheffielduni. Location: Royal Hallamshire & Northern General Hospital
FightMND
@fightmnd
FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: fightmnd.org.au/donate/
MNDA Soton & Winch
@mndasoton
Southampton & Winchester Group of the Motor Neurone Disease Association. Championing the amazing work of our volunteers. #MND
Nicholas Cole
@nickjamescole
Head of Research for The MND Association. MND ALS Research Scientist, Research Group Leader, Adjunct Research Fellow, Kitesurfer, Husband, Dad.
Julie Taghan
@julieunsted
Volunteer for MND West Sussex North Branch. m.facebook.com/mndwestsussexn… #MND easyfundraising.org.uk/causes/mndawes…
Claire Hirst
@clairehirstuk
Jennifer Benson
@jbslt
Independent Speech and Language Therapist with special interest in MND. RCSLT Clinical Adviser for MND,, prog neuro, AAC and dysphagia. All views my own.
Ammar Al-Chalabi
@ammaralchalabi
Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
COMMEND Project
@commendproject
Adapting and evaluating Acceptance and Commitment Therapy (ACT) for improving quality of life in people with Motor Neurone Disease
PostGas
@postgasmnd
A UK multi-centre study aiming at understanding the optimal nutritional management for people with #ALS #MND who are fed enterally following a #gastrostomy.
MND Register
@mndregister
MND Register for England, Wales & Northern Ireland #MND #ALS
Better NIV for MND
@niv_4_mnd
A research programme which aims to enhance the efficacy of non-invasive ventilation for people with #MND #ALS
DiAMoND Study
@diamondstudy_
Developing a decision aid to support individuals with MND to decide whether to have a gastrostomy feeding tube|@mariecurieuk & @mndassoc funded|@unisouthampton
Emily Mayberry (she/her)
@ejmayberry
Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
does not exist
@mndsw_care
we are trying to leave Twitter as a moral step, but lack of support means deactivating account seems nigh impossible…just says oops try later. can’t even escape
Emma Davies
@emmacdavies97
NIHR Sheffield BRC Research Project Manager & UK Parkinson’s Clinical Studies Group Coordinator 🧠 BSc in Psychology, MSc in Clinical Neurology.
MND-SMART
@mndsmart
Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
HOTP Lay Summaries Sheffield
@sheffneurohotp
A group of scientists from Sheffield Institute of Translational Neuroscience who write lay summaries of research articles about neurodegenerative diseases.
UK Parkinson’s Disease Clinical Studies Group
@uk_pd_csg
Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.
ALS Research Forum
@alsresforum
An open-access resource helping scientists to accelerate ALS drug discovery by fostering collaboration, reporting the latest news & sharing research tools.
MNDA West Sussex South
@mndawss
MNDA WSS Branch - Chichester, Worthing, Shoreham and the Chanctonbury Villages across to the Sussex Hampshire border. Text MNDSANDY 10 to 70085 to donate £10
Philip Brindle
@philipbrindle
Diagnosed with motor neurone disease in 2015 and user of the Head Up Collar. Member of the Sheffield Motor Neurone Disorders Research Advisory Group.
Suresh Chhetri
@drsureshchhetri
Neurologist at Lancashire Teaching Hospitals NHS Foundation Trust, Preston MND care and research centre.
Sussex MND Network
@sussexmnd
Sussex Motor Neurone Disease Care & Research Network. Brighton & Sussex Medical School. Working with @UHSussex & @mndassoc to improve care for PABMND in Sussex
MND West Dorset
@mndwestdorset
The West Dorset Branch of the Motor Neurone Disease Association supporting local people living with MND, their carers & families. #WestDorset #MND @MNDassoc
Chris McDermott
@profcjmcdermott
Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
NIHR Sheffield Biomedical Research Centre
@sheffieldbrc
An @NIHRresearch infrastructure aiming to reduce the translational gap between research ideas and the development of treatments diagnostics & medical technology
The Nick Smith Foundation
@forsmudger
Charity 2018-2023 leaving a lasting legacy for Nick Smith who died at 38 from MND. Supported MND research, bereaved children & rugby league with £200k raised.
KittyMillar RN QN
@kitty_millar
Queens Nurse, Clinical Nurse MND & MS, education, Farmers wife. All views expressed are my own.
Nuffield Department of Clinical Neurosciences
@ndcnoxford
World-leading programmes in basic, translational and clinical neuroscience research at the University of Oxford.
MNDCOVWARKS
@mndcovwarks1
Hi,we are trying to raise awareness and support for people affected by MND in the Coventry and Warwickshire area. Please follow and support.
ProSec3
@pro_sec3
A multi-centre evaluation of excessive saliva management in patients with motor neurone disease
OptiCALS
@opti_cals
@NIHRresearch funded programme focused on nutritional management in #ALS #MND. @neuroshef, @CTRU_Sheffield, @ScHARRSheffield at @sheffielduni / @SheffieldHosp