Hi all, Leanne has wrapped up her first week of treatment at Mayo. The doctors are doing a pretty good job of managing the side effects from the chemo and radiation. I'm interested in anyone's opinion on Proton vs. Photon radiation. We are staying at the Hope Lodge in

Hi all, Leanne has started her 3rd week of radiation and chemo. She is hanging in there. We definitely have had some tough days, but trying to stay positive. Her blood work actually looked ok today. Everything is in the normal range. Always watching the ALC and it's barely

UPDATE: 12/30/25 Hi all, 3 weeks from today Leanne and I will be home. We went home last weekend and celebrated Christmas with the family. It was great to be home and so difficult to leave. Lots of tears were shed. Leanne's blood work was not as good this week. Her ALC

UPDATE: 1/6/26 Leanne is still hanging in there but her blood work came back yesterday and they have temporarily stopped hey chemo. ALC is down to .44 and platelets are way down as well. They will be doing blood work tomorrow to see where she is at. Been having issues with

UPDATE: 1/14/26 Hi everyone, I want to thank all of you who have reached out and shared Leanne's story. So this last week has been pretty crappy. Leanne's platelets after way down, 6 being the lowest. She has had 2 platelet transfusions and just got a shot of NPlate which

In trying to deal with everything that is going on, I always come back to this song. It's so powerful and especially this version as Bart Millard explains why he wrote the song. When you are feeling broken, you have to find something that is going to try to help you pick up the

UPDATE: 1/21/2026 Hi all, Leanne finished up radiation and chemo yesterday. We are finally home and, unfortunately, I'm sick, blah. She had to have a total of 3 platelet transfusions in her last 2 weeat Mayo. It was very difficult to watch her go through all of this. It

UPDATE: 1/26/2026 Hi all, I wish I had good news to report but I don't. Leanne continues to have really bad blood work and has been admitted to the hospital. If anyone has any suggestions on things that you know of that help with bad blood work, I'm all ears. I am just not

UPDATE: 1/29/2026 I want to thank everyone who has shared Leanne's story, commented on the post, and reached out to me. I really can't thank you enough. Leanne is finally home after being in the hospital since Monday afternoon. Her blood work continues to be an issue. The

A very interesting deep dive video about Anktiva Never stop researching and learning. Think Bigger! Lori Mills Chiayu Chen, M.D. Bullish ImmunityBio, Inc. Paul Robinson Anktiva | Cancer Immune Stimulation Isn't Enough Without This? youtu.be/5QYPW3edX28?si… via

Thank you for sharing your story Dr. Pete Sulack Keep researching and learning. Ep 5 Beating 1% Survival Odds with Dr Pete Sulack | Learning How to Figh... youtu.be/9NKhziuqoDY?si… via YouTube

UPDATE: 2/6/2026 HI all, Well, it's been another not so great week. Leanne's blood work continues to look bad. ALC is .3, platelets are at 12. I had a very lengthy conversation with her oncologist at Mayo an they are going to be prescribing NPLATE for her platelet and

UPDATE: 2/13/2026 Hi all, Leanne is a week out from her new baseline MRI which will take place next week (February 20th) at Mayo. We are nervous and scared. Leanne continues to have issues with her blood work but is finally getting some help from the medical teams involved

UPDATE: 2/19/2026 Hi all, Tomorrow is fast approaching and Leanne and I are in full scanxiety. If you could please pray for a great result for the MRI tomorrow my family would be incredibly grateful. Thank you!

UPDATE: 2/20/2026 Hi all, I'm sorry I haven't posted yet today. Leanne had an early blood draw and her MRI. We met with her oncologist in the afternoon and then made the 5 hour drive home. Some people are believers in Jesus and the power of prayer while others aren't. I do

UPDATE: 3/12/2026 Hi all, It's been a minute since I have sent out an update. I would love to thank all of again for sharing Leanne's story and for all the people reaching out and sending me information. I can't thank all of you enough. So, after Leanne's good MRI last

UPDATE: 3/13/26 Hi all, Well, it has been a rough day for me today. After almost 3 months of digging, I have been told by Northwestern that they do NOT have a frozen sample of the tumor without preservatives. It really has hit me hard because, as of right now, I really don't