On #WorldHepatitisDay, we honor the strength of those living with sickle cell disease who rely on life-saving blood transfusions. While these treatments are vital, they also highlight the importance of safe, informed, and equitable care to prevent risks like viral hepatitis.

LLU Medical Center is the 2025-2026 Best Hospital in the Riverside-San Bernardino metro area by U.S. News and World Report U.S. News & World Report! 🏆 We are among the elite 13% of all 4,400 U.S. hospitals that earned a #BestHospitals designation. 👉 Read more: bit.ly/45qmyBW

Dr. Amie Patel, Associate Director, UCLA Health Sickle Cell Disease Program, an NCSCC participating clinic, shares how her sister's journey with sickle cell disease inspires her to provide trustworthy, empathetic care. Read more here. tinyurl.com/kbtfwhkr

Acute chest syndrome is a serious and common complication of SCD. UCSFSickleCell created an easy-to-follow educational flyer that explains its cause, how it’s diagnosed, how it’s treated, and how to help prevent it. Check out their flyer & resources here. tinyurl.com/4th6khrk

August is National Wellness Month, a reminder to care for yourself in big and small ways. NCSCC encourages all, but especially sickle cell warriors, to prioritize mind and body wellness.

Are you passionate about helping those living with SCD? Register for the California Sickle Cell Counselor Training! This 7-module program offers up-to-date SCD education for health pros, community workers, and educators. Start with Module 1 at scdfc.org/training.

Rare diseases frequently go misdiagnosed or undiagnosed due to: 📝 Low awareness 🧪 Barriers to diagnostic testing 🥼 Limited access to specialists Learn more: bit.ly/4e6KWLD

Attention families with teens & young adults living with SCD: You’re invited to Sickle Cell Disease Foundation's Transition Open House on August 28, 6–8 PM. Meet the CIBD team, learn about transitioning to adult care, & get expert guidance. To learn more and RSVP visit: tinyurl.com/mttyj8s3

.Loma Linda U. Health’s Adult Sickle Clinic invites adult sickle cell warriors and their families to join their monthly support groups for connection and support. Meetings are every fourth Thursday from 5:30 to 7:30 PM. Email [email protected] or call (909) 558-7000 to learn more.

At NCSCC, we know SCD is more than symptoms, it’s navigating how race, gender, income and where you live shape care. This #IntersectionalityAwarenessMonth, we’re breaking down barriers so every Californian with SCD gets the support they deserve.

Today on #WorldHumanitarianDay, we honor those working every day to uplift communities, advance equity, and expand access to health and nutrition. Humanitarian work starts locally—with trusted partnerships and a shared commitment to wellness for all. 💚🌍 #Go4Wellness

Don’t miss CABlackHealthNetwork’s legislative briefing, “The State of Black Maternal Health in CA” on Aug. 27, where experts will discuss policies for equitable Black maternal care, critical for those living with SCD who face higher pregnancy risks. Register here. tinyurl.com/2ap3twvx

#DYK? There are more than 7,000 rare diseases, and these conditions affect between 25 and 30 million Americans. Rare is everywhere. Watch now to learn more: bit.ly/4kgUwy7

Florida lawmakers secured $3.75M to close gaps in SCD care by funding transportation to their 15 Centers of Excellence and supporting autopsies to guide treatment and public health. Like NCSCC, this is a key step toward comprehensive care. Learn more here. tinyurl.com/bdd82hkf

Doctor Mohammed Bukari, director of UCSF Fresno’s Sickle Cell Clinic, leads a unique SCD program, championing comprehensive care to individuals living with sickle cell disease. Learn more about his contributions here. tinyurl.com/2fb9fd8h

In 2023, Harbor-UCLA Medical Center's outpatient red blood cell exchange program was awarded the Top 10 LA County Productivity and Quality Award. Today, this NCSCC participating clinic continues to transform SCD adult care and improve health outcomes. Learn more here. tinyurl.com/86pp5hxj