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Discover insights from Oreoluwatoni Oduwole, runner-up of the The Student Voice Prize Contest 2023, on the evolving role of doctors in rare disease patient care and the importance of reliable online resources and ongoing education for doctors and patients alike. communities.springernature.com/posts/navigati…

Iman Muzafar, runner-up of the The Student Voice Prize Contest 2023, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis and poor clinician communication.Medics4RareDiseases Beacon for Rare Diseases communities.springernature.com/posts/endless-…

There are 300 million people worldwide living with a rare disease. #RareDiseaseDay2024 Rare Disease Day

It is Rare Disease Day 2024: Let’s join together to support EQUITY for people living with a rare disease! #RareDiseaseDay2024 Rare Disease Day

There are 6,000 + identified rare diseases. #RareDiseaseDay2024 Rare Disease Day

It is Rare Disease Day 2024: We celebrate all individuals and families living rare! #RareDiseaseDay2024 Rare Disease Day

Thank you to all who support raising awareness of rare diseases. #RareDiseaseDay2024 Rare Disease Day

It is Rare Disease Day 2024: Let’s join together to support EQUITY for people living with a rare disease! #RareDiseaseDay2024 Rare Disease Day

5% of the worldwide population are currently affected by rare diseases. #RareDiseaseDay2024 Rare Disease Day

70% of genetic rare diseases start in childhood! #RareDiseaseDay2024 Rare Disease Day

Leisha Devisetti, a winner of The Student Voice Prize Contest 2023, discusses challenges of rare diseases: limited research & uncertainty. Advocates for better detection, communication, & patient well-being. #RareDiseaseDay2024 Beacon for Rare Diseases Medics4RareDiseases

Leisha Devisetti, a winner of the @RDstudentvoice Contest 2023, shares an article: 'Embracing the unknown: investigating medical communication around uncertainty and its implications on patient and family well-being' ojrd.biomedcentral.com/articles/10.11… #RareDiseaseDay2024

Iman Muzafar, runner-up of the The Student Voice Prize Contest 2023, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis and poor communication from clinicians. Medics4RareDiseases Beacon for Rare Diseases communities.springernature.com/posts/endless-…

Check out the blog post by Chandan Sekhon, a finalist in The Student Voice Prize Contest 2023, discussing the crucial role of inclusive clinical research and the importance of overcoming language and format barriers, especially for rare diseases. communities.springernature.com/posts/rare-dis…

Discover insights from Oreoluwatoni Oduwole, runner-up of the The Student Voice Prize Contest 2023, on the evolving role of doctors in rare disease patient care and the importance of reliable online resources and ongoing education for doctors and patients alike. communities.springernature.com/posts/navigati…

It is Rare Disease Day 2024: We celebrate all individuals and families living rare! #RareDiseaseDay2024 Rare Disease Day

Thank you to all who support raising awareness of rare diseases. #RareDiseaseDay2024 Rare Disease Day

The population of people with rare diseases equals that of the world's 3rd largest country. #RareDiseaseDay2024 Rare Disease Day

It is Rare Disease Day 2024: Let’s join together to support EQUITY for people living with a rare disease! #RareDiseaseDay2024 Rare Disease Day

1 in 5 cancers is rare. #RareDiseaseDay2024 Rare Disease Day