Leanne Olney
@leanneolney
Mum to one CF super warrior. Fighting for #orkambinow and a life unlimited 💛
ID: 999783174573121537
24-05-2018 22:44:18
2,2K Tweet
398 Takipçi
2,2K Takip Edilen
Please help save our local pool. Thanks 😁 Chatteris Town Council: List The Empress Pool in Chatteris as an Asset of Community Value - Sign the Petition! chng.it/Tr8pxGQr via Change.org UK
Please help save our local pool. ❤️❤️Chatteris Town Council: List The Empress Pool in Chatteris as an Asset of Community Value - Sign the Petition! chng.it/XbHC6Gqf via Change.org UK
-Matt Hancock in today’s Daily Express you revel in joy with #CysticFibrosis community I’m concerned at your words re #TrikaftaNext This game changer Vertex Pharmaceuticals drug needs an immediate NHS England deal when EMA licenced NOT “should” be “earlier” Pls? x.com/nhscfwarriormu…
The wait in Wales must end. We have asked for clarity from @wgmin_health and Vertex Pharmaceuticals for people with #CysticFibrosis in Wales. This week we worked with Welsh Government to provide info on the number of people in Wales who can benefit. #LifeSavingDrugsNow – no more delays.
I am extremely proud of my Daily Express team for their successful 8-month campaign to secure a life-saving Cystic Fibrosis drugs deal for England, Scotland and Northern Ireland (Wales next please!) Brilliant work by Chris Riches Lee 'Madz' Madden Giles Sheldrick #dailyexpresscrusade4CF
/OMG everyone This is why we need #TrikaftaNext immediately it’s EU Medicines Agency licensed NHS England @NHSEnglandNMD Blake Dark NICE WE CANT WAIT FOR A REVIEW AS THIS DRUG.. JUST HAS TO BE MADE AVAILABLE AS SOON AS LICENSED IN EUROPE 👇🏻 Vertex Pharmaceuticals @janedaviescf Cystic Fibrosis Trust
Im sure all at Vertex Pharmaceuticals, NI Health board & her hardworking hospital staff are as heartbroken at this image as all of us. I only spoke to Nicole yesterday and she was very scared. Pls speed up red tape and grant Nicole #trikafta access ASAP. Daily Express Liam Mc Hugh
So now we have confirmation #TrikaftaNext will be fast tracked by EU Medicines Agency BUT unless Vertex Pharmaceuticals change their mind on submitting data NOW, we will not get access in May/June 2020 Please $vrtx, don’t make us wait Peoole will DIE waiting again You must act NOW Matt Hancock 😩
@nhsCFwarriormum Conservatives Paul Scully Crispin Blunt Vertex Pharmaceuticals NHS England Blake Dark Patrick Leahy Cystic Fibrosis Trust Yes I will fight for it
.Tom Newton Dunn .Matt Hancock So encouraged to see this news #CysticFibrosis patients desperately need #TrikaftaNext the next generation coming May 2020 but need Vertex Pharmaceuticals to do a new managed access deal for this Game Changer Now🙏🏻 Chris Riches Cystic Fibrosis Trust Patrick Leahy Ali Dillon 💙 NHS
.Matt Hancock If This Irish Health Minister can do #TrikaftaNext then surely now UK Prime Minister Boris Johnson & our amazing NHS England won’t leave the UK at the bottom of the pile again Vertex Pharmaceuticals Must ACT NOW for an interim managed deal from MAY 2020! #NoOneLeftBehind
.Matt Hancock Chris Riches Hospitals are failing to deliver #lifesaving4cf within the 30 days announced on 24thOct. Seriously ill sufferers are being told 'next year'. Devastating infections, common in winter, cause deaths which could be prevented by timely drug delivery by NHS
#Lifesavingdrugs4cf #Kaftrio Vertex Pharmaceuticals Chris Riches Cystic Fibrosis Trust .Vertex Pharmaceuticals Please save this amazing ladies life She is also a mother & she has tirelessly campaigned to help the CysticFibrosis community in the uk. She is hanging in on a thread. Please hurray up Lewisham and Greenwich NHS Trust Please save a life today. Please 🙏🏻🙏🏻😥😥 $vrtx Chris Riches Cystic Fibrosis Trust
.Vertex Pharmaceuticals This young girl is fighting for her life again Her fragile body can’t take any more So sad this is happening hours after she got Symkevi She really needed compassionate #trikafta Pls sort it NOW👇🏻 📞 📝 🚕 🚛 The whole CF community is 👀 This is high profile🙏🏻😥
Can everyone who sees this share it and tag in Vertex Pharmaceuticals
Daily Express ThankYou Chris Riches helping the #cysticfibrosis crusade for CF .Matt Hancock Let’s get the job done ✅ My daughter is literally hanging on edge of life Give her a future😢 #KaftrioNow #kaftrio Please RT🙏🏻 Blake Dark Cystic Fibrosis Trust Vertex Pharmaceuticals NHS