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Now I know we hate wearing masks and being reminded that Covid exists, but they talmbout some “razor blade throat” variant dropped and I’m perfectly fine not having that!!! So I’m staying STRAPPED 😷

Time reports on NB.1.8.1 “genetically equipped with changes that allow it to infect cells more efficiently. That means it could spread more easily” Article then asks “How do I protect myself against new variant?” & fails to even mention masks/clean air🤦‍♀️ time.com/7289133/new-co…

I believe NICE ME/CFS guidance harms patients with misinformation. Here is one: keeping people with ME/CFS in the dark, implying the condition is permanent, and disallowing brain retraining and cognitive approaches other than helping people cope. NICE

📢 Calling all researchers working in #MECFS research The UK ME/CFS Biobank is offering free ME/CFS samples to researchers through a competition to drive progress in ME/CFS research #MyalgicE #MEresearch 🌍 We're looking for applications worldwide 👉 bit.ly/MECFS-samples

Chris Armstrong, PhD, presents on "Molecular Insights on Post-Exertional Malaise" during the International ME Conference Week, hosted by UK charity Invest in ME Research. Up next: David Systrom, MD. #IIMEC17 #BRMEC14

Trying to cure myalgic encephalomyelitis with graded exercise therapy is like trying to cure lung cancer with smoking cigarettes

Another tick-borne disease death. Powassan is a horrific virus that kills ~10% of its victims, causes brain damage in others, & can be transmitted in 15 min. Ppl don’t take tick bites seriously enough. Prevention is imperative. Treat shoes w permethrin, do checks often!

New research published in the Journal of Immunology reveals two distinct immune subtypes of ME/CFS, identified through cerebrospinal fluid (CSF) profiles. This landmark study provides the first CSF-based immune subtyping of #MECFS, underscoring the importance of examining root

Sometimes during the day the fatigue is so bad I can’t even sit outside because it’s too much stimuli… then at night I gain so much energy I can do laundry, shower, clean and have a date night. So I’m grateful for that but I miss the sun and breakfast out. Any recommendations on

Started Abilify again, wish me luck.

Recently added this 'Cure ME/CFS' tote bag to the shop line up! If you'd like one, link is below or in bio. One of our customers is using it as there bag for short hospital visits 💙 We are also now shipping to Canada 🇨🇦 #MECFS #LongCovid

Masitinib, a tyrosine kinase inhibitor, was found to effectively inhibit SARS-CoV-2 replication by targeting its main protease 3CLpro, both in vitro and in mice. 1/

Excited to be separating subgroups of LC and MECFS patients in collab with Jack | amatica health In this case I am an outlier in the more “normal” metabolic group (label No 34 on the left) However, that group has markers higher for neuro- and chronic inflammation Amatica Health

“We think that [MENSA] might help us understand an immune snapshot of response to viral proteins… there are no differences in standard antibody responses to viral proteins when we look at the serum of LC vs Covid-recovered patients… but when we look at the short-lived MENSA

PATIENT #1 - 1 MONTH UPDATE One month ago, Patient #1 in our case studies received a dose of Pemgarda monoclonal antibodies through his doctor, under the EUA. He combined this with 10 days of Paxlovid, with the goal of clearing persistent SARS-CoV-2 virus, which we strongly

Chillin’ at the local pub after the Invest in ME conference!

"As one of the many Stanford University alumni who have had their lives turned upside down by #LongCovid, I’m very disappointed that Stanford is legitimizing the views of those who have openly downplayed the suffering of people with LC.." stanforddaily.com/2025/02/13/sta…

Wow so much Long Covid and ME research happening. It seems overwhelming compared to even 2 years ago.

This was me for almost 2 years. It can and will get better. Keep the hope alive ❤️