NurOwn Sign-On Statement iamals.org/action/nurown-… I ask that whoever sees this signs on and supports the ALS community. The fact that ALS Patients are restricted from accessing treatments is absurd, cruel, and outright inhumane. axeALSFoundation

My brother was taken from us almost 8 months ago. He should be here to deliver this message in person #fuckALS #diedwaiting U.S. FDA #futuretweet #scheduledtweet

#endALS #Drugsinbodies #nurownworks

CONGRESS & Dr. Robert M. Califf, the NUROWN AdComm hearing is on September 27th, in 7 days PLEASE WATCH: youtube.com/watch?v=c-2-33… Ensure an END to the CRUEL FDA Biologics regulatory RIGIDITY for #ALS, a disease WITH NO SURVIVORS since 1869. #TotalityOfEvidence #NurownWorks

40 yr old Kate Peters has #ALS. She's a #Veteran of the #Navy & #USMC, and combat veteran of Operation Iraqi Freedom 🔹In 2007 -- sixteen years ago -- Brig General Tom Mikolajcik USAF (ret) told Congress that #Veterans with #ALS needed access to treatments NOW: "If these

#endALS #nurownworks

#endALS

Have you ever heard of an #ALS patient able to stand out of his wheelchair unassisted? Matthew Bellina who received 7 #NurOwn doses, could! U.S. FDA FDA Biologics Dr. Robert M. Califf Please #ApproveNurOwn! #PWALS need #NurOwnNow! #NurOwnWorks #NurOwnPreservesFunction

Tests yesterday confirmed that Chris will not wake up. In life, Chris offered his body to a clinical trial to help others. In death he will do the same. He remains on life support while organ donation is arranged. We are so proud of him.

Please if you ever cared about someone with ALS. Now is the time to help. The Adcom meeting to approve Nurown was a complete and utter disgrace. Patients who showed actual proof, that they got better with Nurown, were actually berated and chastised, They were told that they were

It's my brother's birthday. He would've been 41. Had he had access to #Nurown or options at the very least, he might be here to celebrate. Instead, he got a joke of an Ad Comm as a gift U.S. FDA FDA Biologics #FuckALS #endALS #drugsinbodies

#endALS

Today I turn 40. Chris had planned a big party for me. He was so excited, telling me, “I can’t wait to celebrate you the way you deserve to be celebrated.” Today I woke up to a world without him. Then I found these & remembered he left me so much evidence of his love.

Take a break from scrolling! #signup for info on how you can participate in this fantastic event.STAY UP TO DATE on how Pittsburgh Pirates are working together with I AM ALS remembering #theironhorse and doing their part to raise #ALSawareness #LG4 #PleaseShare iamals.org/action/pirates…

We are thrilled to share this news! For Love and Life: No Ordinary Campaign, the inspiring documentary about the founding of I AM ALS, will begin streaming on @primevideo on May 28th!! #ForLoveAndLife Prime Movies @amazonmgmstudios

Hey Milwaukee Brewers Tampa Bay Rays Los Angeles Angels Chicago Cubs Baltimore Orioles Minnesota Twins Los Angeles Dodgers Chicago White Sox Detroit Tigers Colorado Rockies Miami Marlins Fans!👇Santiago @New_Spence Melissa Miller-Waters, PhD Hillbilly Hipster Christine Gilmore RN

Get your #LouGehrig Day Merch!👇 Santiago Mike Harrington @New_Spence Melissa Miller-Waters, PhD Hillbilly Hipster Christine Gilmore RN