As a community I think we'd all like an update on Hailey Mann's situation as soon as possible Cystic Fibrosis Trust NHS Grampian Nicola Sturgeon From previous experience, it seems entirely possible that Hailey could have #Kaftrio by the end of this week if the right people make that happen.

Good on you Marc! There are thousands of us in the UK desperately waiting to start this drug ASAP! I should know as I was up all night coughing (for my 49th year!)

Ali Dillon 💙 NHS Blake Dark Matt Hancock Jillian McNulty Only 19 days (maximum) till we get that all important .European Commission rubber stamp Please hurry up Don’t make us wait another 19 days Do it now We are desperately waiting🙏🏻 I’d like Jess to get this before she goes off to university #kaftrio .King's College NHS .Healthcare at Home

24 weeks ago to the day, I started #kaftrio #trikafta. At the time, my ability to run was pretty much non-existent, managing just 1min on flat treadmill. With a bit of help from NHS Couch to 5K, I’ve just ran for 20 minutes without stopping. I couldn’t be happier! #ThanksTrikafta

Happy Friday! I’ve heard from a journalist that eligible CFers should have access to #kaftrio from 28 Aug. Bring it on...

During lockdown, there was little prospect of returning home or starting a great new medication... but hope came with this trick, which you can read about on my blog - 'Seeing is believing'... timwotton.wordpress.com

Dear Marc & the CF community... I started kaftrio this morning! Early stages feel like an IV stirring things up! Here’s comes the hot stepper! 🤗😉

Annabelle💘 Carlie Pleasant - Motherhood vs Cystic Fibrosis 🫁 #UK CF campaigner Sharon Ali Dillon 💙 NHS Tim Wotton @MrDeanP @_MissMoo_ Christina Walker 💙 Gayle Pledger David Turner (gs65 on B S k y) Jess Oli Dillon Geoff Maynard Daily Express Blake Dark Vertex Pharmaceuticals LEE ANDERSON Matt Hancock

Cystic fibrosis treatments: 700 more will enjoy access to new drug express.co.uk/news/uk/133613…

Proud moment to share some cf patient insights at #ecfs2020

#cysticfibrosis #cftrust I've been on the new CF drug #Kaftrio for a few months now. Something Changed! is my new blog... timwotton.wordpress.com

Check out some of the reasons I feel optimistic, despite all the gloom of the pandemic, via my latest blog post 'Optimistic'... wordpress.com/view/timwotton…

Delighted with Cystic Fibrosis Trust for the kind promotion. Onwards & upwards! Love to all CF community who are more resilient than they ever realise x

Very kind promotion from @CfJimmyb about my CF survival memoir ‘How have I cheated death?’. Thanks & all the best for CF Week!

“I have a strong urge to write something that will change people... to give them a way of seeing something they didn’t even realize they weren’t seeing.” - Mallory Smith ✨ So she did. 🎬 And now the documentary based on her secret journals comes out January 25th.

Let's help people with #cysticfibrosis in poor & middle income countries gain access to life-saving CFTR modulator therapies A RT or small donation will help Tanya Koorts CF Srbija FibrosisQuistica Vaincre la Muco #SAM2025 cf/Aware Nick Talbot Tim Wotton Emmah Money crowdfunder.co.uk/p/cf-drugs-for…

It's not always been easy to share my hidden disability in the workplace. I hope this is changing with increased diversity, inclusion & belonging. Here's my testimony via my blog post '(In)visible in the workplace'... timwotton.wordpress.com/2022/11/04/inv…

"This has to be for everyone" #Trikafta4all At 51 and still playing hockey (in a team with his son!) Tim Wotton is living proof of how effective #Kaftrio/#Trikafta really is All people with #cysticfibrosis in every country should have the chance to access CF modulators #hope

What's it like living with Cystic Fibrosis? Tim Wotton gives an insight into his life living with the genetic condition and what keeps him going #cysticfibrosis #lifeunlimited nebicorum.co.uk/blogs/news/unl…

Thrilled to have benefited from 3 years of the CF wonder drug Kaftrio! Enjoy my little celebration video!