H.E. Mohammed Al Shehhi, #UAE Ambassador to #Cyprus , met with Dr. Androulla Eleftheriou, Executive Director TIF, where they discussed the UAE participation at the upcoming first regional Summit on Haemoglobin Disorders in the Middle East & North Africa (MENA) region.

Today marks #WorldHemophiliaDay , an international observance held to shed light on #hemophilia & other #bleedingdisorders , highlighting the need for further awareness and access to care for countless affected individuals globally.

➡️ wfh.org/world-hemophil… WFH

Flashback to #InternationalThalassaemiaDay 2019, when we saw the fusion of haute couture and meaningful cause. 🧵🩸 Hats off to the Vietnam Thal Association for their chic tribute to #thalassaemia !

Share your #ITD2024 event at: thalassaemia.org.cy/itd2024/events/

Every person fighting #thalassaemia deserves equal chances at #treatment , no matter where they are.

💉 From breakthrough treatments to #healthcareequity , let's make #TreatmentForAll a reality!

Support the cause: 👇thalassaemia.org.cy/itd2024
#ITD2024 #BeAwareShareCare

At 54, Thekla Kyriakou, a #thalassaemia major warrior, inspires us with her story. From #Cyprus to the world, she teaches us that strength isn't about what you face, but how you face it. #ITD2024

Read her story: 👇
thalassaemia.org.cy/itd2024-storie…
Share yours: 👇thalassaemia.org.cy/itd2024/storie…

Calling all changemakers for #InternationalThalassaemiaDay !

Got a #webinar , #blooddrive , or an athletic #event to mark #ITD2024 ? Put it on the Events Map! 📍🗺️ No act is too small when we stand together.

Register your event at: thalassaemia.org.cy/itd2024/events/
#8May #Thalassaemia

One month until #InternationalThalassaemiaDay ! Let's amplify our support for those fighting #thalassaemia and push for accessible #treatment worldwide. 🌍

Raise awareness & drive change. Your voice matters in the fight for #TreatmentForAll ! 🗣️

thalassaemia.org.cy/itd2024/get-in…
#ITD2024

Today is a day to celebrate our most fundamental right – the right to #HealthForAll !

On #WorldHealthDay , we reaffirm our commitment to promoting health and well-being for people with #thalassaemia and #haemoglobinopathies all across the world. 🌏

#MyHealthMyRight #TIF
World Health Organization (WHO)

#RareAnaemias - Rocket Pharmaceuticals announced the #EMA acceptance of their Marketing Authorization Application ( #MAA ) for the lentiviral (LV) vector-based investigational #genetherapy RP-L102 for #FanconiAnemia .

thalassaemia.org.cy/news/regulator…

Around 100M people globally carry #thalassaemia genes, often without knowing.

This #InternationalThalassaemiaDay , understand your risk! #GetΤested & spread the word: Early detection saves lives!

👉Get involved: tinyurl.com/yc35c453
📚 Learn more: tinyurl.com/48dh82m3

We had an inspiring meeting today with potential partners for #EducationalProjects , including the #RenzoGalanelloFellowship .

The session was a melting pot of ideas with reps from many countries. 🌍 This is just the beginning – stay tuned for more updates! #TIFCollab

Let’s #BringThalToLight together in 2024 by illuminating iconic landmarks and public buildings around the world in red for #InternationalThalassaemiaDay on #8May !

Not sure where to start? Download our toolkit and get the guidance you need! 👇
thalassaemia.org.cy/itd2024/illumi…
#ITD2024

Meet Jharana Mallick, a true #ThalWarrior at 29, turning her #thalassaemia battle into a beacon of hope!

Be inspired by her unstoppable journey! 🩸👊

Discover her story: 👇
thalassaemia.org.cy/itd2024.../the…
Share your story: 👇thalassaemia.org.cy/itd2024/storie…

In a promising leap forward for #pediatric #SCD treatment, #Oxbryta has shown to reduce the #sickling and disintegration of #redbloodcells in #children , according to recent findings from the HOPE-KIDS 1 Phase 2a #clinicalstudy .

thalassaemia.org.cy/news/oxbryta-s…

Change begins with #awareness ! Update your social profile with the #ITD2024 frame & make your support for #thalassaemia visible!

Grab your frame: 👇thalassaemia.org.cy/itd2024/resour…
Join the cause: 👇
thalassaemia.org.cy/itd2024/

Share & inspire others to #BeAwareShareCare on #8May !

Great news! EMA's CHMP nods in favour of Novartis' #Fabhalta , a potential game-changer for adults with #ParoxysmalNocturnalHemoglobinuria .

Could we be seeing the first oral monotherapy for this rare #blooddisorder in the #EU soon?🩸
#PNH #RareAnaemias

thalassaemia.org.cy/news/regulator…

On March 25, #patientadvocates and #thalassaemia #warriors met with the President of India, Mrs. Draupadi Murmu, during #HoliFestival .

Their message? It's time for #India 🇮🇳 to unite in #awareness & action with mandatory antenatal #screening and better care for #patients .

George Kritikos' life is a testament to resilience. He was one of #Canada 's oldest #patients with β- #Thalassaemia & underwent almost 800 lifesaving #bloodtransfusions .

👉 Read his story: urlday.cc/0nkc4
✍️ Share your story: urlday.cc/skoys
#ITD2024