Exciting news as the USA adds SMA to its nationwide newborn screening program: curesma.org/news/nbs-updat… Now that just needs to be implemented by the individual states. @smatrust SMA-Europe

We’re delighted that on 12 July, our group of Young Disabled Campaigners @MD_Trailblazers will be hosting an evening reception at the UK House of Commons to mark their 10 yr anniversary, seeing 100 attendees join forces to hear about their work. Find out more: qoo.ly/qkezu

We are pleased to be involved with a new project to estimate the costs and benefits of providing young disabled children under 5 years with powered mobility aids. The project is being led by Bangor University and you can find out more at bit.ly/2IVLJ1F

August 2018 edition of Journal of Anatomy now online. 2 reviews on human dentition and knee anatomy as well as research papers on stem cells, musculoskeletal anatomy, developmental biology & more: onlinelibrary.wiley.com/toc/14697580/2…

Take a look at our updated 'Support in Employment' factsheet! Thanks to Hogan Lovells this factsheet now includes information on your rights as an employee living with a neuromuscular condition as well as detailing available support and how to access it: qoo.ly/qnh4j

We have received an updated map from Biogen which shows the latest status of global access to nusinersen.  You can view the document on our website at  bit.ly/2z84e3o

New wristband challenge to get Leeds primary school children active. Read the blog & get involved! childfriendlyleeds.wordpress.com/2017/11/09/new… … via Child Friendly Leeds @3030wc Carnegie Education

Huge thanks to all who got involved during #BabyLoss Awareness Week 2017. Read about stats/info from the week: bit.ly/2ykWIkP

Please support our campaign to #FastTrack access to treatments by writing to your parliamentarian. We have template letters on our website: qoo.ly/j66u6

Whoop! Go Srin Madipalli fantastic news #Congratulations x.com/bnsjanecampbel…

PhD project available in my lab in Aberdeen (UK), aiming to work out the link between: ubiquitination, VEGF, hypoxia and defective angiogenesis in Spinal Muscular Atrophy: edinburghneuroscience.ed.ac.uk/project/2018-S… SMA-Europe Cure SMA SMA Research

It's The X Factor final time on #ITV. This year’s winner will be raising vital funds for Together for Short Lives and Shooting Star Children's Hospices with their Winner’s Duet 💜

Fantastic effort for #TeamRowan 💚 thanks Wakefield TriClub and juniors x x.com/smatrust/statu…

💚💚Steve 💚💚 x.com/smatrust/statu…

This awesome fella ran 34.4 ultra Trail miles yesterday fundraising4sma for the @smatrust he’s raised just under £800! Thanks so much Steve!!! justgiving.com/fundraising/st…

Who’s ready for my second Schools Fitness Week 😊🙌🏻 Everyday next week at 10am (UK time) I’ll be doing a live workout for kids on my YouTube channel 😊💪🏼 Please share and help spread the word thebodycoach.com/blog/body-coac…

Our Scientific Research Correspondent James Sleigh has written a report about SMA Support UK at the International Scientific Congress on SMA 2018. More than 100 laboratory & clinical SMA studies were presented by researchers from across the world: bit.ly/2EZByMw

Supporting all the fantastic runners 1km from the end of the TCS London Marathon especially @smatrust runners ❤️