Ahead of aHUS awareness day this Tuesday, I am happy to collab on a q&a in my Rare Disease Girl substack with an expert on the disease Richard Burwick, MD, MPH ! taylorcoffman.substack.com/p/ahustma-expe… #TMA #ahus #complement #hematology #nephrology #raredisease

It was such a pleasure doing this Q&A with my good friend Taylor Coffman ♐️ to discuss #aHUS and #TMA as we approach aHUS awareness day aHUS Awareness Day. Please read this Q&A to learn more and sign up for Rare Disease Girl substack to follow Taylor's journey and advocacy for aHUS.

On aHUS Awareness Day 2024 an interview with Richard Burwick, MD, MPH about #aHUS by Taylor Coffman ♐️ open.substack.com/pub/taylorcoff…

Differentiating HELLP and aHUS in the Postpartum Period Re-sharing this article and learning thread 🧵 on aHUS awareness day. aHUS Awareness Day ahajournals.org/doi/10.1161/HY…

Once triggered during my pregnancy, I had hours and not days. Thanks to my team of doctors, I survived. Despite this disease’s rapid nature, it currently takes a while to diagnose (a month on average, which can be too late). So please share. It could save lives. #ahus #tma

Powerful conversation about survival, optimizing medical care that’s nimble when you have a dynamic case, & reminders to physicians & patients about communicating to get the best outcomes EMcentric #pregnancy #nephrology #hematology #RareDisease podcasts.apple.com/us/podcast/the…

Minnesota won the debate. #debate

Thank you NPR and Chandelis Duster for covering this national conversation and including why it is so important for women to hear this information. npr.org/2024/10/04/nx-…

Sometimes you gotta write out your anger, even if it’s indirect anger.

I’m gonna leave this here: yahoo.com/news/head-nasa…

Spot on. Thank you, The New York Times.

Tuesday’s Election Day ep is about love, access to healthcare, advocacy, passion, and so much more. Honored to hold the space in this way on my little show. Tune in on Nov. 5 for The Life Shift podcast (Taylor’s Episode). Thelifeshiftpodcast.com

Taylor Coffman ♐️'s story is one to listen to as you are in line to vote. It is about her agency, power, and will to survive when all the odds are stacked against her. I am super inspired to have this convo and see Taylor's work built upon her journey. thelifeshiftpodcast.com/s3e155

This part of Taylor Coffman ♐️’s story really stuck with me. Today, this feels important to highlight when so much agency may be gone for some. Taylor reminds us to choose a partner who can do the work, make the hard decisions, and show up when everything is dire.

Come on Joe President Donald J. Trump this would be cool:

I Spent Weeks Near Death In The ICU. Asking My Doctors To Do This One Thing May Have Saved My Life. buzzfeed.com/taylorcoffman/…

BYE Twitter X! I’m gonna stop tweeting and going on this app- but find me on THREADS or IG instagram.com/taylorcoffmanm…

Also now I’m engaging here: bsky.app/profile/taylor…

I approve this message.

Our Christmas tradition is back! For the 11th year in a row, Z wrote a new oddball holiday jam - this one is called “The Little Things” 🐶🎄🥇 To watch every xmas tune we’ve ever done… tinyurl.com/yb7na9hr